Uterine Papillary Serous Carcinoma: What treatments did you have?

Wow! that is just the best! Forever grateful and this made my day... i think of you too so yes all of you keep up the good wishes for each ither💕💕👍

Hello Brave Lady Friends, Just seeing the Facebook messages of current posts reminded me that I hadn't let you know that I participated in the Nov. 3 Walk to End Women's Cancer in Washington, D.C. in honor of GoldenGirl and PolkaGal. The post-it in the center of the second photo shows your names. I'm celebrating NED since a 3/20/17 dx of stage 3a UPSC. My last CA-125 was 9 (after a high of 76). Sorry to interrupt your ongoing conversation but I wanted you to know that I was thinking of you.

Prayer, dear brave lady, and leaning on the Everlasting Arms. It had to be all His doing, Dear. My life is in His hands. Much love, Judy

My CA125 holds steady at 10. It was never higher than 18 ever though even before the surgery and chemo..

I too was denied the sandwiched chemo - radiation - chemo cycle and in the end did 6 cycles of chemo. My chemo was 6 weeks after surgery. It was the lymph node involvement that worried them. No pelvic lymph nodes were positive just 2 paraortic nodes which they removed. I could have done radiation at the end but on further discussion oncologists said all it does is stop it form returning to the pelvic area not anywhere else and they didn’t think because of no positive action anywhere in my pelvic are that it would be helpful. Also once you have it there you can’t have it again so Ive kept. It for alter treatment which god willing Ill never need... We are all doing amazing well and the biggest struggle I find is. I’m constantly doing research to see whats out there and just arming myself to be my own advocate. Reading the posts here about drugs used is help. Each place has a different protocol it seems. I just wish they’d get together and compare what they are all finding!! Canada doesn't offer post surgery chemo drugs it seems. This forum certainly helps. Yes please check out the Grandondo. Vancouver to Whistler. Sept, 12

The chemo drugs were the standard Carboplatin & Taxol, which the tumour responded to initially, but then didn't. I was denied radiotherapy sandwiched between chemo cycles, and at the end because it was not expected to contribute to my survival. My cancer seems to have progressed before I had surgery, and then I had another 3 months wait before chemo.
You must been exceedingly fit. I presume the Pyranees are the ones in France. I must check out the Granfondo ride. I am pleased that you were regarded as curative and are now NED.

H Judy (Miraclegirl). Aromasin seems to have served you very well indeed. The doctor who prescribed it may have been ahead of their time. I hope the Letrozole does the same for me. It is made by Mylan, a New Zealand company. One of my reasons for keeping active is to maintain a strengthening of my bones. There are a couple of other drugs that have been mentioned to me, Keytruda and Avastin. Avastin obstructs the cancer from developing its own blood supply. Keytruda is being found to be effective with a number of cancers but I'm not sure if there has been any trials completed for endometrial cancer. As you say, there is little research done on our particular diagnosis and stage. I am about to have a CT scan which will show how effective the radiotherapy I had was. Fingers crossed. It was very hard to go through, all the more so because I had to go to Australia to get it. However there are few effects of it hanging on now. I would be very interested to hear about any other factors which you think contributed to you remarkable survival. Glenda

I suspect its the late effects of chemo as I have the same thing and have never been on the drug of which you speak. The leg jerks are quite painful and usually happen at night in bed..

And I just cycled the pyranees, did a triathlon in august and will do a granfondo ride next Sept.! Neither of the drugs you and miraclegirl were given were offered to me? I guess I need to know the pathology of my tumour. More research. It seems to never end but this is a good thing! Ecstatic to here you are training and the bike ride sounds intriguing. I am in Canada. What drugs made up your “non -curative” chemo? What an odd phrase to attach to out..Keep setting goals and reaching them that’s what I’m setting my mind to do. Ive been NED since May 2018 now. Chemo ended Oct. 31/18 but my oncologist says the NED goes from when the surgery removed it? They also said they were going for curative not palliative care. I will be asking about the drugs you tow ladies have mentioned. God bless all of us!

Glenda007, woman of great courage! I so appreciate your response and sharing!!! Thank you so much for sharing this with me. I will ask my doctors about this Lexatrole. Glad to hear there is another followup drug for us. I wish my original oncologist were still available to me. May I pray for you in your journey? If you are so inclined, please stay in touch with me, and I will do same with you. I will also ask my current oncologist about this drug next time I see her. Do you know who the manufacturer is? Pfizer has been providing my Aromasin via their patient asistance program. Every year I have to reapply. Don't know yet if they will continue for 2020. Hoping to hear soon. Many thanks for sharing your journey with me, Glenda.

I wish I could be around to hear you say, "Hey, I made it! My 80th birthday!" You go, Gal!!

Judy (Miraclegirl)