Uterine Papillary Serous Carcinoma: What treatments did you have?
Is there anyone out there who has gone through the treatments for this? I have had surgery , and chemo taxes/carboplatin. Radiation is suggested but no one seems to have any data to refer to as we are such a small group I’m guessing. Very nervous moving forward as to what to do.
Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.
I still meet with my alternative medicine MD every three months in addition to seeing either an oncologist or the Women’s Cancer Center of Seattle Physician’s Assistant every three months. I still take 15 Coriolus supplements and 8 Reishi Gano supplements a day. I’ve been following Dr. Fuhrman’s nutritarion diet for 7 years now and stopped drinking any alcohol 4-1/2 years ago. During this COVID lockdown I’ve done a lot of work on healing trauma in my 2nd chakra and in sound healing. I’m working with infrared light. Actually, none of these ideas are from SHARE. They are from other resources.
my CA 125 has never been higher than 18 even when they discovered the uterine cancer.. it was steady at 10 for 2 years now it’s 12??? I found i was losing balance, was nauseous after exercise and my head felt “ off” an mri discovered the tumor.. i m happy to hear your energy is back. i was also feeling so good and ready to compete in triathlons again but c’est la vie! i continue to use the turkey tail and the other mushroom supplement . think of you and polka gal often. what other tips have you picked up for staving off recurrence.?
Dear Polkagal, thank you for your good thoughts. I have been NED for 3-1/2 years now. And my energy and stamina have finally increased. I did a walk again for Foundation for Women’s Cancer a few weeks ago. Last year I did it with my sister in Washington, D.C. This year it was virtual. I walked for you and golden girl 2 again. I haven’t actually started with SHARE’s helpline yet. I have been working on other projects. I check in with SHARE’s support group every once in a while and I never miss their presentations by doctors on uterine cancer and preventing its recurrence. Sending love and light to you and golden girl 2. xo
Oh, Golden Girl 2, I am so very sorry to hear this news. You have been through a really rough time. I’m adding you and polkagal to my prayer list again. Can I ask how you knew about the tumor? Was it your CA-125 or did you have physical symptoms? I’m so glad your surgery was successful. May this remission be forever.
yes it was 2 years remission for me too then ... of all unheard of things it appeared as a small tumor in my left cerebellum!! the oncologist was stunned.. did surgery and the tumor just popped out and no signs anywhere else of it! no further treatment as they are going to take the watch and see approach 🤷♀️ oh and 5 weeks after my original brain surgery i had to get it all done again due to infection🥱 but onward and upward I say.. thanks for thinking of us!
@goldengirl2 and @embeth99 Hello friends! Just had another check-up round, which always makes me think of you both. Praying all is well with each of you. All continues to go well for me, I am 2 years in remission now, and very grateful. Embeth99, how goes your work with Helpline? Wishing the best for both of you 😊
@starko thank you for clarifying. I plan to ask my gyn/onc/surgeon about this when I see her next week.
I have asked many times about the protein aspect as my pathology says over-expression of p53.. which is a protein ... i will look into this test. Thank you
HE4,S is a test for a certain protein in your blood. My Mayo gyn/oncologist/surgeon feels it is the most important indicator of all. My local oncologist did not use it until I asked for it. Why not be certain?
I don't know what HE4 or S are either, don't believe I have had that done?