I’m concerned about my husband using CPAP post BMT. does anyone out there have this concern and what advice can you give? Thank you.
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@lag630, I'm wondering what in particular you are concerned regarding using the CPAP after your husband's bone marrow transplant. Might you be worried about infection?
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Yes. The moist environment and all. Is this equipment that should be swabbed with 90% ETOH?
This is a really good question! Your husband will be very susceptible to bacteria and fungal infections so this machine and all the tubing will have to be scrupulously clean. I’m just thinking out loud, your husband is already immunocompromised with his health and the meds he’s on and so far this hasn’t been a problem for him health wise.
So whatever he’s doing to keep it clean seems to be working ok. Swabbing with 90% ETOH will certainly disinfect the surfaces it touches and is a good idea.
But I also know he can’t possibly be the only BMT patient who’s potentially had this issue come up. So my suggestion is that when you’re both in for a meeting with the transplant team, ask for their opinion. Or you can send a message through your husband’s portal to a nurse coordinator of his health team. They’re really great with fielding questions and concerns.
How is your husband maintaining his machine now to avoid bacterial growth?
Soapy water and rinse. Yes I will use the patient portal and reach out to the nurse. If they tell give me a protocol for cleaning CPAP post BMT, I will share the info.
After a little more research and picking the brain of one of fellow mentors, @johnbishop, who has first hand knowledge of CPAP machines, I found that there are some very effective CPAP cleaners on the market that will sanitize the machines/parts with a high degree of efficacy in killing and preventing growth of bacteria.
One product called SoClean seems to be the front runner in the business.
It uses ultraviolet light to kill the bacteria on all surfaces, assuring clean and germ free breathing. This is the same process used at Mayo with their sanitizing Robot who comes into rooms after a patient is discharged. It disinfects the entire room with the ultraviolet light.
There is also a conversation on the Connect forum you might find of interest. — What is your CPAP Cleaning Routine?: https://connect.mayoclinic.org/discussion/cpap-cleaning-routine/
When your husband has his pre-transplant educational classes he will (you both will, as his caregiver) have a lot of information tossed your way for avoiding infections.
Cleveland Clinic, another reputable transplant clinic, has really good information online on prevention-post transplant. While it doesn’t specifically cover CPAP machines it gives a comprehensive guide to staying safe, what to avoid such as room humidifiers, and common things we might overlook. Where I stayed for my 100+ days, the first thing I ask housekeeping for was a new shower curtain liner in my bathroom. They were great in accommodating my request.
Have you looked into one of the disinfecting machines for your husbands CPAP?
We did try one ( I think it was SoClean) a few years ago but he didn't like it; I don't remember why. The links you suggest are very helpful. Thank you! I'll check with nurse to see if vinegar/soap &distilled water will be sufficient.
You might want to check this Facebook Group of CPAP users. A lot of the research on CPAP occurred at the University of Sydney in Australia and ResMed (AU company) is one of the leaders in the field. Everyone seems to have adjustments in use. Generally, they advise to wash the mask and tank at least once a week in a mild detergent. Others wash the mask every day to get rid of oils. But there are even sterilization machines which I think is overkill. https://www.facebook.com/groups/cpapreviews
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