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Do you have urinary incontinence after prostatectomy & radiation?

Posted by hmctgraybill51 @hmctgraybill51, Apr 16, 2022

Hello, I underwent a prostatectomy in Sep 2017. Gleason score of 9 with a positive margin. 8 months later began radiation tx with rising PSA. As of this date my PSA's have been undetectable however, I continue to have moderate to severe incontinence. I have seen two urologists with one suggestion the male sling and the other the artificial urinary sphincter for relief. I'm looking for any men with experience in either of these procedures and your comments. Thank You

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chippydoo | @chippydoo | Feb 6 10:35am
In reply to @jeff1963 "@mgarrett9ball I am 7 weeks post-op and my situation is similar to yours, maybe I am..." + (show)
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@mgarrett9ball I am 7 weeks post-op and my situation is similar to yours, maybe I am a little better and maybe I can see a little progress over time, but still mostly incontinent when walking for more than a couple of minutes.

I am remaining hopeful that it will get better, doing kegels, working on getting approval to start PT/pelvic floor training, surgeon wants me to start on drugs to treat possible UTI and drug to stop bladder spasms (have not started either drug yet).

Have finally gotten into a better routine (pads, pull ups, changing throughout the day, etc) to keep myself dry and skin healthy.

It's easy for me to get discouraged, but keep thinking of the 3 month milestone, hoping for improvement by then. Also count my blessings that (as far as I know) surgery has made me cancer free, and small setbacks are worth the price.

Good luck! Hope this gets better for you.

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@jeff1963 I has some decent control 2 months after surgery and at 5 months I was officiation high school lacrosse without a pad. I leaked a tad but found the pad irritating while running and black short hid it. When not running I was continent. Kegel's might be for life. A small price and they can be done anywhere even standing in line at the grocery store. Staying present in today is a very important practice for me. Yesterday is history and tomorrow is a mystery.

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Jeff Marchi | @jeffmarc | Feb 6 11:40am
In reply to @chippydoo "@jeff1963 I has some decent control 2 months after surgery and at 5 months I was..." + (show)
Profile picture for chippydoo @chippydoo

@jeff1963 I has some decent control 2 months after surgery and at 5 months I was officiation high school lacrosse without a pad. I leaked a tad but found the pad irritating while running and black short hid it. When not running I was continent. Kegel's might be for life. A small price and they can be done anywhere even standing in line at the grocery store. Staying present in today is a very important practice for me. Yesterday is history and tomorrow is a mystery.

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@chippydoo
Those really thin depends shields might work just fine for you while running There’s 58 to a box. They’re quite thin and absorb a fair amount, I used them for years.

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chippydoo | @chippydoo | Feb 6 2:20pm
In reply to @jeffmarc "@chippydoo Those really thin depends shields might work just fine for you while running There’s 58..." + (show)
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@chippydoo
Those really thin depends shields might work just fine for you while running There’s 58 to a box. They’re quite thin and absorb a fair amount, I used them for years.

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@jeffmarc That's what I was wearing. 12 months post radiation I am back to leaking so wear them when everything is irritated. Thanks for the product point.

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Dr. Daniel S. Elliott | @elliottdaniel | Apr 2 8:49pm

You should be very careful regarding slings after radiation therapy. Data shows that the sling does not work well and usually the sling is not recommended. The gold standard for men with incontinence following prostate cancer treatment including specifically radiation therapy is the artificial urinary sphincter.

Dr. DS Elliott

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chippydoo | @chippydoo | Apr 3 10:32am

I retired from officiating just before radiation an ADT. The thins do work well for me. No longer paid to run, so I don't lol.

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