Do you have urinary incontinence after prostatectomy & radiation?
Hello, I underwent a prostatectomy in Sep 2017. Gleason score of 9 with a positive margin. 8 months later began radiation tx with rising PSA. As of this date my PSA's have been undetectable however, I continue to have moderate to severe incontinence. I have seen two urologists with one suggestion the male sling and the other the artificial urinary sphincter for relief. I'm looking for any men with experience in either of these procedures and your comments. Thank You
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I’ve had an artificial urinary sphincter for several years now. It has been very helpful although my urge incontinence can be so severe at times that urine pushes through the sphincter. If I urinate on a schedule those urges are fewer. Except for the discomfort for the few weeks after it’s insertion, I have experienced no pain and using the apparatus is second nature now. My only suggestion would be to check out Botox before going the sphincter route. Best wishes.
No, they aren’t using an ultra sensitive test. I’ve read that ultra test results can vary from lab to lab and even the time of day. My personal opinion is that the ultra results add little value but can cause needless worry and concern. And, so far, my oncologist hasn’t requested the ultra tests.
How long did you wait after procedure to start back up on TRT?
About a year. I had severe low energy and a great bit of difficulty walking I went thru physical therapy. had a brain scan and they all don.t have any ides.
after TRT I feel great.
Talk to your doc
I had my proton beam radiation in Dec 2020 and started therapy in September. Non of the doctors brought up the issue there only answer was physio therapy. I first sent a saliva sample to an online site and it then came back way low,
These are the tests I took
CHM 004283 Luteinizing Hormone(LH)
CHM 004020 DHEA-Sulfate
CHM 010363 IGF-1
CHM 005009 CBC With Differential/Platelet
CHM 010322 Prostate-Specific Ag
CHM 140103 Testosterone,Free and Total
CHM 002188 Triiodothyronine (T3)
CHM 376137 TSH+T4F+T3Free
910385 Cardiovascular Report
CHM 082016 Sex Horm Binding Glob, Serum
CHM 001453 Hemoglobin A1c
CHM 322000 Comp. Metabolic Panel (14)
CHM 303756 Lipid Panel
CHM 081950 Vitamin D, 25-Hydroxy
CHM 004515 Estradiol
At first my PSA climbed a little over .1 but after 3 months it was back <.1.
Insure you talk to a doctor failure with field it may not be appropriate for you if your cancer was more advanced.
I had my prostatectomy in 2006. Had to use 2 large pads for two years. Then had the sling device installed. Now I’m down to one medium pad per day.
Active surveillance does not mean you won't have the treatment. Instead, it means you've chosen to wait at least a little longer. So in a sense, we always start out with active surveillance, no matter what we choose. My urologist wants to start at around 0.10 (on the uPSA–tracking with ultrasensitive PSA. The long term consensus used to be starting at 0.20.
So the trend has been to start sooner for better results, not to wait any longer when the PSA is already past 0.2. UCLA, Johns Hopkins, and others have moved toward starting at 0.03 for better long term results and perhaps less total radiation also. If you're still in active surveillance, you might want to ask yourself how you will know that your surveillance has noted enough activity that you are ready to act.