1. < Digestive Health

Update on MALs situation

Posted by cowtownusa @cowtownusa, Jan 5, 2024

I finally got the ultrasounds yesterday to find out the severity of the MALs ( median arcuate ligament syndrome) it appears to be mild although it doesn't feel that way symptoms wise. Next step will be a phone appointment to determine if I am a good candidate for surgery. Once determined the date will be set, then it will be the 5 hour drive one way where I will have the surgery. After surgery I pray there are no complications considering I live in the "middle of nowhere" with no nearby adequate health care that has the knowledge to deal with MALs or possible afterwards complications.

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John, Volunteer Mentor | @johnbishop | Feb 1 7:48am
In reply to @princslea21 "Hi, I'm new to this group. Can someone please tell me where to start for an..." + (show)
@princslea21

Hi,
I'm new to this group.

Can someone please tell me where to start for an official diagnosis of MALS? As in which exact doctor and/or type of MRI (area/contrast/no contrast/CT scan, etc.)?

I was diagnosed with endometriosis (I was covered) and had laproscopy to remove it. I was left with pain in my lower-right side. Fast forward four painful years later and I was finally diagnosed with Pelvic Congestion Syndrome, Nutcracker Syndrome to be exact. During the surgical procedure to correct that a stent was placed in my left renal vein. I had relief for a short-lived time. I am now living in excruciating pain every single day. I have severe back pain when standing, stomach pain at all times, especially after eating. The pain also radiates down my thighs/legs, tingles, and sometimes I have pain that radiates down my right arm. I am looking for a 100% sure diagnoses and I am looking at MALS for some real hope of finally getting my life back.
Thank you so much for your help, consideration and time.

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Welcome @princslea21, Mayo Clinic has some information on diagnosing MALS that hopefully can answer your questions while you wait for members with experience to respond - https://www.mayoclinic.org/diseases-conditions/median-arcuate-ligament-syndrome-mals/diagnosis-treatment/drc-20505007.

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