Upcoming SBRT

Posted by gshep @gshep, 2 days ago

Upcoming SBRT. For those who have had SBRT and experienced, can you offer any advice for diet during this treatment period ? Can you discuss any side effects as the result of SBRT, during treatment and after treatment ? I’m hoping I made the right choice in choosing SBRT. Thank you

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This page has a list of foods to avoid about a quarter of the way down. "MSK Precise" is their name for SBRT. https://www.mskcc.org/cancer-care/patient-education/about-msk-precise-prostate

Side effects for me started the second week and were tiredness (took a nap every afternoon), burning urination and a weak stream. Flowmax helped with the weak stream, and avoiding spicy foods and acidy drinks (orange juice, coffee) helped with the burning. After two months I didn't need Flowmax anymore.

If you're doing ADT with SBRT the side effects of ADT will be far worse than anything from SBRT. Make sure you see a sexual rehab doctor if you plan to be sexually active after treatment. They put me on 20 mg of Viagra a day for two years to help keep blood flow and prevent damage.

Good luck!

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@scottbeammeup

This page has a list of foods to avoid about a quarter of the way down. "MSK Precise" is their name for SBRT. https://www.mskcc.org/cancer-care/patient-education/about-msk-precise-prostate

Side effects for me started the second week and were tiredness (took a nap every afternoon), burning urination and a weak stream. Flowmax helped with the weak stream, and avoiding spicy foods and acidy drinks (orange juice, coffee) helped with the burning. After two months I didn't need Flowmax anymore.

If you're doing ADT with SBRT the side effects of ADT will be far worse than anything from SBRT. Make sure you see a sexual rehab doctor if you plan to be sexually active after treatment. They put me on 20 mg of Viagra a day for two years to help keep blood flow and prevent damage.

Good luck!

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Ok thank you. No ADT at this point. I’m still working, will this be a problem ?

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Sorry just new don’t know all the terms!did a blood work up and have a psa history of 15 years from 3.5 at 51 years old gradually to 6.7 at 68 then this year 27 got an mri 1.3 cm lesson and just got a biopsy yesterday awaiting results otherwise no problems sexual, urinating bowels ect.Feel very healthy very active baseball, pickelball,golf,fishing,gardening travel.Any suggestions on non invasive treatments ?
Cheers and tks

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@scottbeammeup

This page has a list of foods to avoid about a quarter of the way down. "MSK Precise" is their name for SBRT. https://www.mskcc.org/cancer-care/patient-education/about-msk-precise-prostate

Side effects for me started the second week and were tiredness (took a nap every afternoon), burning urination and a weak stream. Flowmax helped with the weak stream, and avoiding spicy foods and acidy drinks (orange juice, coffee) helped with the burning. After two months I didn't need Flowmax anymore.

If you're doing ADT with SBRT the side effects of ADT will be far worse than anything from SBRT. Make sure you see a sexual rehab doctor if you plan to be sexually active after treatment. They put me on 20 mg of Viagra a day for two years to help keep blood flow and prevent damage.

Good luck!

Jump to this post

@gshep I completed my SBRT this past Monday. I was on ADT (Orgovyx) since March 26. My oncologist said it's necessary to deprive the cancer cells of what they feed on. I understand it will take months for the cancer cell's DNA to be damaged enough and their blood supply to stop, so the cancer cells can't multiply anymore. In mid-July, I will have my 1st post-radiation PSA. I hope my PSA to be undetectable in the near future, then I can be off Orgovyx. Maybe after 8 months or a year, my oncologist indicated.

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@pilotdave I was PSA 7.5 in Nov.2024, and 10.06 in February. Surgery was my first choice, but at 68-1/2, my family was worried I wasn't young enough for surgery so I had SBRT instead (completed this past Monday). Each one of us get to choose our treatment method -- which one is best for us individually & our loved ones supporting us in this journey.

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My brother had five sessions of SBRT to treat his Gleason 4+3 PC 2 years ago. His radiation was done at UCSF by Dr. Roach, considered one of the best radiation oncologists.

He was given no diet requirements before having the five sessions. I had never heard of diet requirements for SBRT before, except in this forum a few months ago. I guess there is no universal requirement.

When I had my three sessions of SBRT on my spine no food recommendations were discussed.

Now, if you’re having IMRT or EBRT radiation five days a week for weeks, then diet can be a factor. You definitely don’t want gas problems while being radiated that often.

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I had no dietary restrictions for SBRT (just suggestions for foods to stop if they irritated me). At the time of my therapy, I had no irritation over the 20 sessions, so my only dietary change was postponing my tea until after my appointment, since it's a diuretic and makes things tough with a full bladder.

A year later, I developed a "mild" case of radiation cystitis. At that point, I did have to go *very* easy on tea, alcohol, spicy foods, and anything carbonated until the irritation died down a bit and I got the urge incontinence under control (at its worst, I was waking up every 20 minutes at night to go to the bathroom; now, I'm fine again even on a trans-Atlantic flight).

YMMV

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@gshep

Ok thank you. No ADT at this point. I’m still working, will this be a problem ?

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It shouldn't be. The tiredness was manageable. I had the luxury of a nap but could have done without one. A tip that might help: see if you can schedule yourself to be the last appointment of the day. Then you can go home and if you're too tired just go to bed.

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@jeffmarc

My brother had five sessions of SBRT to treat his Gleason 4+3 PC 2 years ago. His radiation was done at UCSF by Dr. Roach, considered one of the best radiation oncologists.

He was given no diet requirements before having the five sessions. I had never heard of diet requirements for SBRT before, except in this forum a few months ago. I guess there is no universal requirement.

When I had my three sessions of SBRT on my spine no food recommendations were discussed.

Now, if you’re having IMRT or EBRT radiation five days a week for weeks, then diet can be a factor. You definitely don’t want gas problems while being radiated that often.

Jump to this post

Sloan Kettering really stresses diet - even for SBRT. In Cyberknife, Even though the beams are tracking the fiducials, a passing gas bubble can move the prostate (along with the fiducials) and cause surrounding tissue to be impacted.
That’s why MRIdian systems are so much better - they automatically stop the beam if the prostate moves out of the target area - and they don’t even use fiducials.
But even that system relies on a very low fiber, no gas diet.
Phil

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@gshep SBRT includes a number of types of radiation machines. Each type of machine has different levels of tissue exposure. I had the Mridian machine but today, I would also be ok with the Elekta Unity as well. The Mridian had margins of 2 mm (because it had a built in MRI vs using fused images) versus other SBRT machines that had 3-5 mm margins (and no real time MRI built in). That meant more healthy tissue exposed and greater side effects.

I had a slight reduction in urination flow after the third of my five treatments. Flomax took care of that. No other side effects.

I had no dietary restrictions but try to eat somewhat healthy and stay active.

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