Upcoming Chiari malformation surgery

Posted by kobefam1103 @kobefam1103, Mar 19, 2023

Saw mayo neurologist in march 2023, strongly recommend surgery. Have appt w Dr Chachiana towards end of month. I’m def doing the surgery. Anyone have experience w the decompression surgery and /or Dr Chachiana? Thx

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macw | @macw | Apr 2, 2023

In reply to @kobefam1103 "Is he w Jacksonville? Did your daughter have a syrinx or cyst? Thx!" + (show)

She did not.

macw | @macw | Apr 3, 2023

In reply to @kobefam1103 "Is he w Jacksonville? Did your daughter have a syrinx or cyst? Thx!" + (show)

She did not.

macw | @macw | Apr 3, 2023

In reply to @kobefam1103 "Is he w Jacksonville? Did your daughter have a syrinx or cyst? Thx!" + (show)

Sorry- he is in Rochester.

nancy82415 | @nancy82415 | May 14, 2023

Just wondering @kobefam1103 how did your appointment go, if I may ask? I hope you received the answers you needed and calming your fears. Did you schedule surgery?

@macw how did your daughter’s surgery come out, if I may ask?

I hope both of you are feeling better than you were before your appointment and your daughter’s surgery. 🙏🏻

macw | @macw | May 14, 2023

In reply to @nancy82415 "Just wondering @kobefam1103 how did your appointment go, if I may ask? I hope you received..." + (show)

Our daughter is amazing and I will forever sing Mayo’s praises! Hardly any pain Nancy!!! Taking after you!

She is breathing now at night and her headaches are less. We are soooo blessed!!!

Bless Mayo and the doctors and nurses! They have a calling!!!

Nancy- your communication has been so enlightening! I promise to pay it forward the rest of my life!

nancy82415 | @nancy82415 | May 14, 2023

In reply to @macw "Our daughter is amazing and I will forever sing Mayo’s praises! Hardly any pain Nancy!!! Taking..." + (show)

@macw I am so happy to hear that everything went well. Really happy to hear hardly any pain!

Yes, I totally agree. The doctors and nurses truly have a calling. I believe their talent is GOD given. The doctors have such a wonderful bedside manner with the ability to explain everything in layman’s term and so personable. The nurses truly are angels of mercy so compassion and respectful. Parts of their job are not very glamorous and can be embarrassing for the patient, but they perform the task and putting the patient at ease while doing it. They are truly amazing.

Wishing your daughter a smooth recovery. With this type of surgery the recovery may take months to truly be back to normal, but slow and steady will get her there.