Unruptured Brain Aneurysm

Posted by badnaples @badnaples, Nov 22, 2021

Hello! I recently found out I have a 4mm ACOM during a CT scan, waiting CT angio appointment, question is....live life normally? OK, to travel (fly), exercise etc. Can't get answers from doc, they say all this will be covered during pre-op which is weeks away and in the meantime causing me anxiety not knowing what I should or should not do. Not sure if I have symptoms, various headaches, mild, dull, various areas of the head, but have those often and for long time, and stuffy nose so assume its sinus. Any help is appreciated, suppose to travel in 48 hours. I read all this about rupturing and frightens me. Is it something that would happen suddenly or gradually from a leak. Help! THank you.

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I found out about my 4mm aneurysm because I was getting headaches at the beginning of skiing each day - I guess the combination of altitude and sudden spike in BP must have been the issue - there doesn't appear to be any bleeding, so I guess the headache was just from pressure when my BP increased. I'm awaiting my first appointment, but I'm just wondering if surgical treatments like coiling/clipping/stent are likely to make it so that I can continue to do things like ski.

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Profile picture for tainan @tainan

I have advice on how to help yourself stabilize your brain aneurysm, I had a similar experience. Please contact me by private message, I will explain it to you.

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My advice is maintain normal BP 126/70. Eat low salt diet. Elevate your bed to 45 degrees to sleep. Aquatic exercise to prevent blood flow into your BA. That's how I keep my BA stable in size since 2022. Every year I had MRA done at the same time. This year I had my MRA done in
7/3/24. The results are BA stable and no remarkable.
Hope this information is helpful. Take care.
Tainan

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Profile picture for shamb52 @shamb52

I have an unruptured 5.2 mm saccular brain aneurysm. It is in a difficult place to reach so haven't considered surgery yet but have an appt to get a second opinion this month. I am told it is good that it was detected but this isn't as reassuring as it sounds. We are still scared constantly. Am told to keep blood pressure and stress down to prevent growth.
I would love to hear surgery success stories for difficult to reach brain aneurysms. @jessica79, I hear you loud and clear. And yes, symptom of a sudden severe headache will have my husband calling an ambulance for sure.

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@shamb52: I know you're getting a 2nd opinion but am curious what the doctor recommended in your initial consultation. I have a 6.5 mm aneurysm and have been told I can watch-and-wait, or coil. Mine is in a location where clipping is not an option. I chose watch-and-wait initially, I have been doing that for 9 months, but think my fear is, perhaps, keeping me from making the best choice.

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Profile picture for Colleen Young, Connect Director @colleenyoung

Hi @tainan, for your safety, your personal contact information has been removed as per the Community Guidelines (https://connect.mayoclinic.org/blog/about-connect/tab/community-guidelines/). We recommend sharing personal contact information using the secure private message function rather than in the public forum.

However, I'd also like to point out the benefit of sharing here in the support group where you all receive support and information from several people and learn from each other.

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Thank you for removing my personal information.

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Profile picture for tainan @tainan

I have advice on how to help yourself stabilize your brain aneurysm, I had a similar experience. Please contact me by private message, I will explain it to you.

Jump to this post

Hi @tainan, for your safety, your personal contact information has been removed as per the Community Guidelines (https://connect.mayoclinic.org/blog/about-connect/tab/community-guidelines/). We recommend sharing personal contact information using the secure private message function rather than in the public forum.

However, I'd also like to point out the benefit of sharing here in the support group where you all receive support and information from several people and learn from each other.

REPLY
Profile picture for shamb52 @shamb52

I have an unruptured 5.2 mm saccular brain aneurysm. It is in a difficult place to reach so haven't considered surgery yet but have an appt to get a second opinion this month. I am told it is good that it was detected but this isn't as reassuring as it sounds. We are still scared constantly. Am told to keep blood pressure and stress down to prevent growth.
I would love to hear surgery success stories for difficult to reach brain aneurysms. @jessica79, I hear you loud and clear. And yes, symptom of a sudden severe headache will have my husband calling an ambulance for sure.

Jump to this post

I have advice on how to help yourself stabilize your brain aneurysm, I had a similar experience. Please contact me by private message, I will explain it to you.

REPLY

In rereading reports, I discovered that not only do I have a brain aneurysm (anterior communicating artery) but I also have an aneurysm in a carotid artery. Both have been stable over the last year since they were first identified. Repeat CTA already scheduled for next year. One CTA to monitor both.

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Profile picture for jessica79 @jessica79

The surgeon went on with the intent of coiling but thought the risk of rupture was greater than leaving it alone and watching it because of position. My younger sister had a large aneurysm burst and ended up with about 8o coils then later had it clipped. She later passed away from it. Mine is probably genetic. I’ve heard about a new gamma laser procedure that I’m going to look into.

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Keep us updated! My aneurysm is in a very difficult location in my brain so looking at all options before getting a second opinion this month.

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Profile picture for tainan @tainan

MRA is software for Vascular test as MRI. Ask your doctor for the test.
Tainan

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I have a brain aneurysm as well, a hard to reach one. But I was told that the MRI and MRA tests I had at Kaiser in California didn't reveal the true size of the aneurysm. So Center for Neurosciences in Tucson did a CTA which revealed it was 5.2 mm, not 6 mm as told by Kaiser. Just ask a lot of questions and get a 2nd opinion. That's my method.

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