Unruptured Brain Aneurysm

Posted by badnaples @badnaples, Nov 22, 2021

Hello! I recently found out I have a 4mm ACOM during a CT scan, waiting CT angio appointment, question is....live life normally? OK, to travel (fly), exercise etc. Can't get answers from doc, they say all this will be covered during pre-op which is weeks away and in the meantime causing me anxiety not knowing what I should or should not do. Not sure if I have symptoms, various headaches, mild, dull, various areas of the head, but have those often and for long time, and stuffy nose so assume its sinus. Any help is appreciated, suppose to travel in 48 hours. I read all this about rupturing and frightens me. Is it something that would happen suddenly or gradually from a leak. Help! THank you.

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@mkoch

Sarahjo; I had a 6mm aneurysm coiled 3 months ago. I had asked my neurosurgeon at UCSF
(rated #3 for neurosurgery in the U.S. based on U.S, News and World Report's annual rankings)
about any limitations after the coiling procedure and he said there were no restrictions. But I was told 6 months prior to having the aneurysm coiled that the most important thing was to keep my blood pressure below 130 and not to do anything that puts my head upside-down, both which add pressure to the aneurysm and could cause it to leak out.

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That’s great info! I’m sure everyone is different, but this at least makes me fell hopeful. Thank you. I found out last Friday and then went into the weekend without even a chance to talk to anyone. I’ve been pretty anxious - which I’m sure is doing wonders for my BP!

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@lisalucier

Hi, @sarahjo900 - welcome to Mayo Clinic Connect. It would frustrate me to have a headache at the beginning of each day I was trying to spend skiing. I'm glad you found out about your 4 mm aneurysm, just to be informed.

The question about surgical treatments like coiling/clipping/stent and whether you will be able to do things like ski is perfect for a neurologist or a neurosurgeon who performs these procedures.

When is the first appointment you mentioned? How have symptoms been since the aneurysm was discovered?

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Additional CT scans tomorrow and appointment is on Monday, Mar 31.

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@sarahjo900

I found out about my 4mm aneurysm because I was getting headaches at the beginning of skiing each day - I guess the combination of altitude and sudden spike in BP must have been the issue - there doesn't appear to be any bleeding, so I guess the headache was just from pressure when my BP increased. I'm awaiting my first appointment, but I'm just wondering if surgical treatments like coiling/clipping/stent are likely to make it so that I can continue to do things like ski.

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Sarahjo; I had a 6mm aneurysm coiled 3 months ago. I had asked my neurosurgeon at UCSF
(rated #3 for neurosurgery in the U.S. based on U.S, News and World Report's annual rankings)
about any limitations after the coiling procedure and he said there were no restrictions. But I was told 6 months prior to having the aneurysm coiled that the most important thing was to keep my blood pressure below 130 and not to do anything that puts my head upside-down, both which add pressure to the aneurysm and could cause it to leak out.

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@sarahjo900

I found out about my 4mm aneurysm because I was getting headaches at the beginning of skiing each day - I guess the combination of altitude and sudden spike in BP must have been the issue - there doesn't appear to be any bleeding, so I guess the headache was just from pressure when my BP increased. I'm awaiting my first appointment, but I'm just wondering if surgical treatments like coiling/clipping/stent are likely to make it so that I can continue to do things like ski.

Jump to this post

Hi, @sarahjo900 - welcome to Mayo Clinic Connect. It would frustrate me to have a headache at the beginning of each day I was trying to spend skiing. I'm glad you found out about your 4 mm aneurysm, just to be informed.

The question about surgical treatments like coiling/clipping/stent and whether you will be able to do things like ski is perfect for a neurologist or a neurosurgeon who performs these procedures.

When is the first appointment you mentioned? How have symptoms been since the aneurysm was discovered?

REPLY

I found out about my 4mm aneurysm because I was getting headaches at the beginning of skiing each day - I guess the combination of altitude and sudden spike in BP must have been the issue - there doesn't appear to be any bleeding, so I guess the headache was just from pressure when my BP increased. I'm awaiting my first appointment, but I'm just wondering if surgical treatments like coiling/clipping/stent are likely to make it so that I can continue to do things like ski.

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@tainan

I have advice on how to help yourself stabilize your brain aneurysm, I had a similar experience. Please contact me by private message, I will explain it to you.

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My advice is maintain normal BP 126/70. Eat low salt diet. Elevate your bed to 45 degrees to sleep. Aquatic exercise to prevent blood flow into your BA. That's how I keep my BA stable in size since 2022. Every year I had MRA done at the same time. This year I had my MRA done in
7/3/24. The results are BA stable and no remarkable.
Hope this information is helpful. Take care.
Tainan

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@shamb52

I have an unruptured 5.2 mm saccular brain aneurysm. It is in a difficult place to reach so haven't considered surgery yet but have an appt to get a second opinion this month. I am told it is good that it was detected but this isn't as reassuring as it sounds. We are still scared constantly. Am told to keep blood pressure and stress down to prevent growth.
I would love to hear surgery success stories for difficult to reach brain aneurysms. @jessica79, I hear you loud and clear. And yes, symptom of a sudden severe headache will have my husband calling an ambulance for sure.

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@shamb52: I know you're getting a 2nd opinion but am curious what the doctor recommended in your initial consultation. I have a 6.5 mm aneurysm and have been told I can watch-and-wait, or coil. Mine is in a location where clipping is not an option. I chose watch-and-wait initially, I have been doing that for 9 months, but think my fear is, perhaps, keeping me from making the best choice.

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@colleenyoung

Hi @tainan, for your safety, your personal contact information has been removed as per the Community Guidelines (https://connect.mayoclinic.org/blog/about-connect/tab/community-guidelines/). We recommend sharing personal contact information using the secure private message function rather than in the public forum.

However, I'd also like to point out the benefit of sharing here in the support group where you all receive support and information from several people and learn from each other.

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Thank you for removing my personal information.

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@tainan

I have advice on how to help yourself stabilize your brain aneurysm, I had a similar experience. Please contact me by private message, I will explain it to you.

Jump to this post

Hi @tainan, for your safety, your personal contact information has been removed as per the Community Guidelines (https://connect.mayoclinic.org/blog/about-connect/tab/community-guidelines/). We recommend sharing personal contact information using the secure private message function rather than in the public forum.

However, I'd also like to point out the benefit of sharing here in the support group where you all receive support and information from several people and learn from each other.

REPLY
@shamb52

I have an unruptured 5.2 mm saccular brain aneurysm. It is in a difficult place to reach so haven't considered surgery yet but have an appt to get a second opinion this month. I am told it is good that it was detected but this isn't as reassuring as it sounds. We are still scared constantly. Am told to keep blood pressure and stress down to prevent growth.
I would love to hear surgery success stories for difficult to reach brain aneurysms. @jessica79, I hear you loud and clear. And yes, symptom of a sudden severe headache will have my husband calling an ambulance for sure.

Jump to this post

I have advice on how to help yourself stabilize your brain aneurysm, I had a similar experience. Please contact me by private message, I will explain it to you.

REPLY
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