Unexplained neuropathy

Posted by kelsey2 @kelsey2, Apr 15 4:23pm

Hi Everyone,
I wanted to see if anyone has symptoms like me or might know what I have. I have had electric shock pain in my left shoulder my whole life. It would happen once a year usually and be dibilitating but because it only lasts a few seconds I never had it looked into.
Last August I had a week of severe shocks and after lots of dr visits and seeing a neurologist was placed on lyrica which I take each day.
I now seem to have two or three weeks of absolutely no pain and then I will have a night of severe level 10 pain. The shocks only last a few seconds but happen every 10 or so minutes for a 12 hour period usually at night. This week I had the electric shock pain in my shoulder and also my lower back.
I have researched a lot and can't seem to find anyone with these symptoms and would love to try to find a way to explain what I have and see what I can do to help.
Thanks for reading:-)

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Hi @kelsey2, Welcome to Connect. It can get discouraging after having lots of doctor visits and seeing a neurologist to still not have any answers or a diagnosis. There is another discussion that sounds similar that might be helpful to read through to see if others are having similar symptoms:
— Electrical shocks throughout my body.: https://connect.mayoclinic.org/discussion/electrical-shocks-throughout-my-body/.

@jenniferhunter @braedenl2202 and @ab6540183 have posted about electrical shocks and may have some experience or information to share.

Have you had any injuries or trauma to your back or shoulder in the past?

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Thanks @johnbishop
No, no known trauma though it did start last year around the same time that I was training to be a firefighter. Yes, I’d be keen to hear from anyone else. The pain now has me question what work I can do in the future as the pain is so unpredictable and intense

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@kelsey2

Thanks @johnbishop
No, no known trauma though it did start last year around the same time that I was training to be a firefighter. Yes, I’d be keen to hear from anyone else. The pain now has me question what work I can do in the future as the pain is so unpredictable and intense

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Since you mentioned it started around the same time you were training to be a firefighter, I'm wondering if there is a possibility that you have some sort of injury that went unnoticed?

"A brachial plexus injury can keep you from feeling any other injury to the affected area, so you may not notice that you're hurt."
— Brachial Plexus Injury: https://www.hopkinsmedicine.org/health/conditions-and-diseases/brachial-plexus-injuries

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@johnbishop

Since you mentioned it started around the same time you were training to be a firefighter, I'm wondering if there is a possibility that you have some sort of injury that went unnoticed?

"A brachial plexus injury can keep you from feeling any other injury to the affected area, so you may not notice that you're hurt."
— Brachial Plexus Injury: https://www.hopkinsmedicine.org/health/conditions-and-diseases/brachial-plexus-injuries

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I thought so too. But I had an mri of my brachial plexus both sides, my neck- cervical spine and shoulder. I’ve also had a brain scan to rule out anything else. I’ve also had tests at my neurologist which showed no nerve damage or the large nerves. I’m at a loss now

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Sorry to hear about your electric shocks increasing. Both my son and I get them. We both have Hereditary Neuropathy with Pressure Palsies (HNPP). It's a rare type of neuropathy. I mostly get the shocks in my lower back or feet. I've had them in my elbow. It feels like a lightning bolt and makes me jump. It's one zap and it's over. So strange. They are infrequent for me, maybe once a month for decades. Stabbing pains are more common for us, but still sporadic. Not sure how often my son gets the shocks. Neither of us have taken any meds for that since it's sporadic. It would be hard to tolerate if constant. You're not alone. I hope the doctors can figure yours out and help.

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@kelsey2 Wow, that is an unusual form of neuropathy (to me). How old are you? As we age we start to make less of many important protiens and chemicals that our body needs. Perhaps trying some supplements a few weeks at a time may show one that is helpful. I have read forums that show Taurine (a natural amino acid) supplements are helpful for a variety of conditions. We make less of that as we age.
Have you read all the previous posts mentioned above by John (the volunteer mentor)? Here is one that was completely successful but required an extensive diet change:

gardeningjunkie | @gardeningjunkie | Nov 15, 2019
My electrical shocks and stinging were random, anywhere inside my skin. It felt like I imagine a cattle prod would feel. Like you doctors thought I looked fine. I started on an annual Kenalog-40 corticosteroid shot and this was amazing and kept the electrical taser stings away for about 10 months, then it would slowing begin again. This went on for several years. Steroid shots in the long run are bad news. I finally bit the bullet and began an anti-inflammation diet, a real sacrifice-zero processed sugar and zero carbs for a 3 months detox then zero processed sugar for life, limited natural sugar like a piece of fruit 3- 4 days a week and safe carbs like rice, but zero gluten for life. I began this last Oct 2018 when the corticosteroid shot was wearing off and the stinging and zapping was starting up again. By Dec 1 when I normally had this shot I didn't need it! Now 13 months later and staying true to the Dr William Crook anti-inflammation diet, The Yeast Connection Handbook, I still am electrical shock free. This Dec will be 2 years since I required the potent and not so good for you corticosteroid shot.

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I am reading in several places online that vitamin B6 can possibly cause neuropathy or worsen it. B6 is found in most multiple vitamins. Just wanted to pass this on since so many of us are taking supplements. Check yours for Vitamin B 6. Wishing you all peace and comfort, Bcool123

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@kelsey2

Thanks @bcool123 @crossette and @californiazebra @johnbishop these have been really helpful.

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I’m 60 yrs old now…your post caught my eye about electric shocks. It reminded me of a time back in high school…I think I had 2 episodes of an electric shock in my neck. The first time I spun around thinking someone had done something to me from behind…but no one was there. I never had them again. Unfortunately I do now have idiopathic Neuropathy (7 yrs diagnosed)…I doubt it’s related.

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I have neuropathy and have those electric shocks once in awhile in my calves. It’s definitely like being stuck with a cattle prod

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