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Undiagnosed symptom: swollen eyelid
Dear all, I am attempting to find help online in hope to be pointed to the right direction because after visiting several doctors and specialists, my wife is not able to get help identifying the symptoms.
Since 2023, her left eyelid is swollen. The swelling is most pronounced in the morning, and then on a good day it may recede by evening. The intensity of the swelling varies from day to day.
Here I am posting image of her eyes in 2022 and then pictures of her eyes in 2023 and early 2024. The difference is stark.
We visited several doctors, generalist and specialists. They all dismissed her saying it's nothing. One said it may be related to thyroid but tests results were negative.
Thinking it was water retention, we cut down her carbs down to zero for a week or so without effect. We tried cutting down salt and do potassium supplements. Nothing changed. We tried hydration with lots of water intake, nothing. We tried elevating her pillows when sleeping, nothing there either.
We don't know where to turn ourselves to now.
She's a 41 year old female without any medical conditions, 174 cm, 64 kg.
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I tried looking a few things up online about this and this is what I found
Demodex blepharitis
Look it up and check her symtoms. I hope your wife
will get answers soon.
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1 ReactionJust a thought, does she sleep on the side that her eye is swollen on? If so, I wonder if she is collecting fluid due to pressure on her eye with pillow pressing on that eye. If that's not the case, I would suggest to see another Opthalmologist for a 2nd opinion.
God Bless you both and praying right now.
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2 ReactionsDoes this happen everyday, including vacations or time off from a job?
My only suggestion would be keep a detailed diary for a few days of everything
eaten and done, the type of weather, exercise including walking to a store.
Include timestamps, watch for missing time and record the condition of the eyelid the next day.
Does she have a chair that is in the sun or near a heat source that she uses, record everything.
In the end, it may be that the spoon needs to be removed from the cup before drinking 🙂
If not an every day occurrence, record activities and diet daily until it happens.
Don't forget to record washing of face and showering, any make up used, hair spray, etc.
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1 Reactioni have been having this problem with both eyelids since last year, at one point both eyelids were actually scaley, and very itchy, my doctor said i was allergic to something, i quit using my prescription eyedrops, (Xiidra) but i really think the Dysport shots i received in my forehead actually caused my problems, i had been using Botox without any problems at all, if your wife has received Dysport this might be her problem, after 5 months my eyelids are almost back to normal.
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1 ReactionHave you ever figured anything out? I’m having a similar thing happen though for not as long but no one seems to be taking me serious with it. And I’ve found no answers!
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1 ReactionI have struggled with a similar problem for several years, primarily in my right eye but also some swelling in the left. I have done everything from allergy shots and testing, auto immune testing, and tried every type of treatment I can find. Nothing has worked. Doctors dismiss it as allergies or eye eczema, but can't seem to prescribe anything to help relieve the problem. I wish I had advice to offer, but nothing has worked for me.
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1 ReactionSame issue, right eye been swelling randomly throughout every day for 4+ months. Nobody can help.
It is driving me nuts.
If I blink hard it swells.
If touch it it swells.
If I do nothing it swells.
Dr barely looked.
Optometrist said I just need to live with it.
Opthamologist said nothing wrong with my eye but provided antibiotics eye drops.
Tried allergy pills and drops a-z, hot compresses, cold compresses, anti-inflammatories nothing.
I feel like maybe using a saline neti pot to rinse my sinus makes a short hour or two improvement... maybe.
I am leaning toward it being connected to sinus issues but I could be wrong.
I have swelling around both eyes also no help - doesn’t go away
I’ve had the same issue with my eyelids swelling for a month now. Went to an opthamalogist that said it’s a severe allergic reaction. Which yes, that’s exactly what it feels like but what’s causing it?! I haven’t changed anything other than I moved four months ago. This reaction should have happened right away if it were something in the house.
I take Zyrtec daily for outdoor/pollen allergies.
I tried benedryl last night and it helped. Then swelling came back.
Could it be Thyroid Eye Disease? A symptom is swollen eyelid(s) because your lacrimal gland is inflamed.
Try looking for a TED specialist in your area. They may do an MRI or even a biopsy. Prednisone may also help with the swelling but only after the condition that's causing the swelling/inflammation is determined. And if you did nothing the swelling may go away after 24 months. However, it's still good to know what the cause of the swelling is. Good luck!!