Undiagnosed and unsure if it's all in my head
I've had peculiar symptoms for months starting October 31st. What started as eye droop, went to pins and needles (tingling) across my left arm and leg and then spread to the rest of my body. For weeks, I had issues when I first woke up from getting off the bed and generally had struggles with some day. Since my symptoms are acute, I believe when it goes away for a few weeks it's gone.
Since of my eye pain and fluid leaking out of one of my nostrils doctors had considered IIH/csf leak for sometime, but the lumbar puncture came back 19 (so practically normal). I had no papilla edema when tested by the eye doctor. Since, previously at the beginning of the journey doctor's have labeled it stress related and have mentioned me to being hyperfocused on my sensations, I am wondering if there is a possibility this is all in my head.
Of recently I have been dealing with weird stiffness in my right arm, going to my knees and legs. The pins and needles flared again after a two weeks or so with minimal sensation. I had tests for autoimmune, but everything came back normal. I have no idea what else to do at this point, I have a follow up with neurosurgery, but I don't know what else to do. As a younger individual, I feel dismissed by so many of my doctors and have been online for school for this semester due to this. Rheumatologist immediately said there was no way that anything autoimmune was going on a few days ago, so I went home immediately. I have had spine and brain MRIs (had chiari 11.75mm, but probably unrelated) and EMG, at this point I probably have nothing left to explain it atp.
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Have you had a neurology consultation.?They would be more medically attuned to pursuing your symptoms for follow up. Assuming you had
unproductive MRI , CT and PET results.?
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Yes, I have had a neurology consult. That's when I got the different autoimmune testing done, unfortunately it is very hard to find an appointment with my new neurologist, I have only been once. I had to replace my own neurologist after a terrible first appointment with him. Have not had any PET or CT, only one MRI done. I have been trying to ask to get another one done, but I have braces, so seeing issues such as CSF flow obstruction from the Chiari, etc is pretty much out of the options right now.
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