What Kind of Radiation Did You Get for Your Gynecological Cancer?

Posted by Helen, Volunteer Mentor @naturegirl5, Sep 29, 2022

I was diagnosed with endometrioid adenocarcinoma (Stage 1a, FIGO Grade 1) in 2019. I was treated for a recurrence in late 2021 with radiation therapy. I had 25 external beam treatments and 2 brachytherapy treatments. I'll share more details about the lengthy preparation and the actual treatments in a separate post below.

I know of members here who have had or are going to have radiation treatments. Would you like to share your radiation treatments and experiences with one another? This is a great way to support one another.

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

Profile picture for Helen, Volunteer Mentor @naturegirl5

This is what happened when I had external radiation therapy at Mayo Clinic in Rochester. I was instructed to start drinking water about 45 minutes to 1 hour before each radiation therapy session. My bladder was supposed to be full for each session as a full bladder protects organs from radiation. In fact, if my bladder was not full enough which the radiation therapists could see on CT - a CT was taken before every radiation session - then they told me and I drank more water.

My name was called from the waiting from in Radiation Oncology and since I had already been informed which dressing area to go to, I went there, changed into my gown, and then waited for the radiation therapists to come and get me. This was generally 5-10 minutes after I changed which worked out well because my bladder was very full. I then went to the external radiation beam room where they asked my name and birthdate and then I laid on the table with my legs in the cradle that was made for me earlier, and that was my only job. Lay down and lay still. There was music playing and I was usually asked what kind of music I liked. Then the radiation therapists (there were always two) positioned me on the table with the use of some lights. They left the room, first ran the CT to check if my bladder was full and then recorded the images as the radiation oncologist looked at the CTs every day. The external beam machine rotated over me and I often zoned out almost falling asleep some days. After the radiation was completed, the external beam machine stopped and I waited until the radiation therapists came to get me. They helped me from the table. I always went to the bathroom first as my bladder was full and then I changed in the dressing room. The radiation session was complete.

I had 25 external radiation beam treatments. After those were completed I had 2 brachytherapy (internal radiation) treatments that I will write about in another post.

I had few side effects from the radiation. I had the expected side effects although mine were minor according to the nurse and the radiation oncologist. I had a few bouts of diarrhea (I took imodium when that happened), a few headaches (I drank more water), and some fatigue for a few days. I lost my appetite a little and lost about 8 pounds. Of course I've since regained my appetite and that weight. Darn.

The radiation oncology nurse and the radiation oncologist met with me weekly. They monitored my vital signs, my weight, and checked for signs of radiation toxicity - side effects. Their conclusion was that I tolerate the 25 treatments well.

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I’m about a month post-op a radical hysterectomy for Endometrial Cancer, grade 3/2C with all female reproductive organs removed including my cervix, 48 lymph nodes and part of my Omentum.
I suffer from colon and bladder complications post-op. When I pass gas or a bowel movement the pain that engulfs me can make me cry. The pain can be a 9-10/10. The gas never goes up to a 9 or 10 max is a 7.
When I live in a bubble: no stress, 100 ounces of water and green tea a day, stool softeners (my stools are not constipated at all, formed, smaller ) no real stress with movement, focus on relaxing my pelvic floor and lightly rock or slightly tip or twist instead of pushing, much cleaner diet, chew my food throughly, get 8 hours of sleep a night. The primary bowel pain can go down to a 3-7/10
The pain impacts my bladder too. If my bladder is more than half full the pain starts to climb. A full bladder could be a 7/10 pain.
My pain tolerance allowed me to deliver 2 babies at different times completely natural, no pain meds, and move through 2 broken ribs without pain meds.
I’ll be starting radiation soon. I didn’t know the bladder needed to be full. I don’t think I could handle that. Never had bladder issues before. Does it need to be full for Brachytherapy too? How can I protect my colon and bladder when a full bladder is used for the protection?

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Profile picture for junglepeach @junglepeach

I’m about a month post-op a radical hysterectomy for Endometrial Cancer, grade 3/2C with all female reproductive organs removed including my cervix, 48 lymph nodes and part of my Omentum.
I suffer from colon and bladder complications post-op. When I pass gas or a bowel movement the pain that engulfs me can make me cry. The pain can be a 9-10/10. The gas never goes up to a 9 or 10 max is a 7.
When I live in a bubble: no stress, 100 ounces of water and green tea a day, stool softeners (my stools are not constipated at all, formed, smaller ) no real stress with movement, focus on relaxing my pelvic floor and lightly rock or slightly tip or twist instead of pushing, much cleaner diet, chew my food throughly, get 8 hours of sleep a night. The primary bowel pain can go down to a 3-7/10
The pain impacts my bladder too. If my bladder is more than half full the pain starts to climb. A full bladder could be a 7/10 pain.
My pain tolerance allowed me to deliver 2 babies at different times completely natural, no pain meds, and move through 2 broken ribs without pain meds.
I’ll be starting radiation soon. I didn’t know the bladder needed to be full. I don’t think I could handle that. Never had bladder issues before. Does it need to be full for Brachytherapy too? How can I protect my colon and bladder when a full bladder is used for the protection?

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@junglepeach Welcome to Mayo Clinic Connect. I was diagnosed with endometrial cancer (endometroid adenocarcinoma) in 2019. I did not have the symptoms you describe after the hysterectomy. Since you were stage at 3/2C and from your description I wonder how the nerves and tendons were affected in your pelvic floor. Have you talked with your oncologist about your symptoms and asked these questions? The pain you describe makes me cringe as it sounds so excruciating.

Like you I had a radical hysterectomy. I was staged 1a so no other treatment in 2019 however I had a recurrence in 2021 and that’s when I had radiation therapy. I was advised to have a full bladder for the external pelvic radiation and this protects other organs. Considering the pain you describe I think if this were me I’d be asking the radiation oncologist lots of questions about how to prepare. Before your radiation therapy you will have a “simulation” that will provide the preparation for the actual radiation therapy. When I had the simulation I also had CT scans. Perhaps those scans will provide additional information for your radiation oncologist.

I did not have to arrive with a full bladder for brachytherapy. Some people here have shared that the brachytherapy they had where a radiation device is inserted into the vagina was very uncomfortable for them. I was comfortable throughout brachytherapy. I wonder now if some radiation oncologist used a radiation device that was not the right size for the woman - too large. Think of the speculum that is used in your pelvic exams by your gynecologist and how a size that is too large will painful or uncomfortable. Again, another question to ask your radiation oncologist.

When do you see your surgical oncologist again? And when are you scheduled to begin radiation therapy?

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Profile picture for cancerback @cancerback

I was diagnosed with adenocarcinoma of the cervix in 2016. After a bilateral salpingo-oophorectomy, I had external beam radiation and brachytherapy completed in 2017. In 2021, I had a metastasis to the left supraclavicular lymph node. I started on Libtayo in October of 2021 and it failed after 3 cycles. I then started chemotherapy with carboplatin and Taxol in March of 2012 and finished in May with no disease progression. In August a metastasis to my bladder was found. I am now planning to start chemotherapy with tisotumab vedotin, an antibody conjugate. This is a last resort treatment and has as many and more side effects than the previous chemotherapy and in clinical trial had a 24% overall response rate.

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I see these older posts and Pray it worked for her.

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I had external beam radiation 25 treatments & 2 Brachy treatments
After my Hysterectomy for uterus cancer !

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Profile picture for Helen, Volunteer Mentor @naturegirl5

@dlgbb Oh!! Are these bells and gongs the ones you rang at the facility when you finished your last radiation session? These are terrific pictures. You look so happy and with good reason! My bell at Mayo Clinic was considerably smaller and I did enjoy the applause and cheers from staff and other patients when I rang the bell.

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Yes Helen
Most rewarding feeling to ring the finishing radiation bell. So nice the radiation staff came out with me & other patients were waiting to go to there radiation treatments. They all clapped. I had my husband come in to my last Brachy appointment!
It sure was a uplifting experience to ring the bell 27
Radiation treatments completed! I must say i lived 1 hour away from my treatments & there was days i would of liked to stay home! The radiations were tiring , but so worth my end results . 6 month check up all was clear.

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Profile picture for Hilda Stone @hildastone

Yes Helen
Most rewarding feeling to ring the finishing radiation bell. So nice the radiation staff came out with me & other patients were waiting to go to there radiation treatments. They all clapped. I had my husband come in to my last Brachy appointment!
It sure was a uplifting experience to ring the bell 27
Radiation treatments completed! I must say i lived 1 hour away from my treatments & there was days i would of liked to stay home! The radiations were tiring , but so worth my end results . 6 month check up all was clear.

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@hildastone Thank you for sharing how you felt when you rang the bell!! 🔔. It's good news that your 6 month check up gave you the "all clear" message. Both of my parents died with cancer. Like you the word "cancer" was a shock and the last word I wanted to hear.

Do you return every 6 months?

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