1. < Osteoporosis & Bone Health

Tymlos is unaffordable and cardiologist says no to Evenity. What now?

Posted by nancy69 @nancy69, Dec 7, 2023

I switched health plans because Tymlos was on the formulary but when I got the co-pay info it was astounding. Between the Eliquis which I take for AFIB and the Tymlos, I will be at $8k by June 2024 with start date of 01/24. Any reco's?

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nancy69 | @nancy69 | Dec 9, 2023
In reply to @lynn59 "Why did your cardiologist say no to Evenity? Do you have heart issues? I’m asking because..." + (show)
@lynn59

Why did your cardiologist say no to Evenity? Do you have heart issues? I’m asking because two different endocrinologists recommended it to me, and I still haven’t decided. I have extra heart beats (benign condition) but a history of heart disease in my family.

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Yes, I have an inherited heart condition and AFib so my cardiologist said no to Evenity.

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1 reply
lynn59 | @lynn59 | Dec 9, 2023
In reply to @windyshores "@lynn59 I have occasional afib but Evenity is okay by my docs. I felt better reading..." + (show)
@windyshores

@lynn59 I have occasional afib but Evenity is okay by my docs.

I felt better reading the studies on effect on cardiovascular health. There was no difference between the Evenity an placebo group. There was a slight difference between the Evenity and alendronate group, but that might have been because alendronate has a slight positive effect.

I found that ironic since another bisphosphonate, Reclast, was at one time considered a risk for afib!

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Thanks! I think they may want me to follow up with Reclast so I’ll have to check that out. Maybe Actenol would be better. I tried Fosamax years ago and couldn’t tolerate it. I have to say though, I’m personally leaning to Forteo as it is has been around so much longer than Evenity.

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lynn59 | @lynn59 | Dec 9, 2023
In reply to @nancy69 "Yes, I have an inherited heart condition and AFib so my cardiologist said no to Evenity." + (show)
@nancy69

Yes, I have an inherited heart condition and AFib so my cardiologist said no to Evenity.

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That’s good to know. Thanks. I’ll be sure to check with my cardiologist if I decide to go that route.

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windyshores | @windyshores | Dec 9, 2023

@nancy69 why does your doc not want Evenity? My docs are okay with it. From what I have read and been told, it does not have any relevance for afib. Then again, sounds like you have another heart condition.

I posted above about the study comparing cardiovascular issues with Evenity and placebo and there was no difference. Two cardiologists told me Evenity was fine. I am nervous too!

The alternatives: Forteo and Tymlos do cause faster heartbeat for a short amount of time after the injection (Forteo for me was much worse but everyone is different. Tymlos was a godsend for me) and there was some caution about Reclast and afib which seems to have been lifted. It's tough!

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Funcountess | @funcountess | Dec 9, 2023

Have you talked to a pharmacist about your predicament? Maybe they can give you options.

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kallettla | @kallettla | Dec 10, 2023

Thank you for all this info. I will be starting Evenity soon and have been anxious about the cardio part. I feel better now. Thanks.

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baguette | @baguette | Dec 10, 2023
In reply to @nancy69 "Hi, I am over 65 and on Medicare. I applied for discount through Radium but was..." + (show)
@nancy69

Hi, I am over 65 and on Medicare. I applied for discount through Radium but was denied. Somehow they think I have too much income. Crazy. Thanks for your quick response and for being such a great help to all of us looking for the best, affordable solution.

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Nancy69: My understanding is that many, if not all, of these pharma programs to help with drug costs don't include Medicare. The ones I have looked at all said to be eligible you have to be on commercial insurance. Please correct me if I'm wrong!

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1 reply
milkweed | @milkweed | Dec 10, 2023
In reply to @windyshores "There is now a generic form of Forteo (teriparatide)." + (show)
@windyshores

There is now a generic form of Forteo (teriparatide).

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Really? That’s great news. If you have additional info that would be great too

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1 reply
milkweed | @milkweed | Dec 10, 2023
In reply to @baguette "Nancy69: My understanding is that many, if not all, of these pharma programs to help with..." + (show)
@baguette

Nancy69: My understanding is that many, if not all, of these pharma programs to help with drug costs don't include Medicare. The ones I have looked at all said to be eligible you have to be on commercial insurance. Please correct me if I'm wrong!

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I have Medicare and I have support. Are you using a medical specialty pharmacy? There are grants, programs etc. Speak with a speciality pharmacy pharmacist. Also contact the manufacturer Teraperitide ( Forteo) , often times they have programs. Although they have financial barriers fill out the paperwork anyway. It usually works out.

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windyshores | @windyshores | Dec 10, 2023

Coupons are not available for those on Medicare but Radius assist is, if you meet income limits.

Generic Forteo: https://www.drugs.com/availability/generic-forteo.html

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