Tymlos after 18 months

Posted by sbt54 @sbt54, Oct 28, 2023

How long should you wait after completing 18 months on Tymlos before you get follow-up dexascan?

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Anyone know if Tymlos is an 18 month or 2 year course of treatment on avg? I'm a bit confused because I see mention of 18 months a lot - and even the Radius co-sharing savings card has a lifetime limit of 18 months - they won't cover anything after that. But then I see others are on the drug for 2 years - and my own doctor said 2 years is standard treatment length.

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@katwhisperer

Anyone know if Tymlos is an 18 month or 2 year course of treatment on avg? I'm a bit confused because I see mention of 18 months a lot - and even the Radius co-sharing savings card has a lifetime limit of 18 months - they won't cover anything after that. But then I see others are on the drug for 2 years - and my own doctor said 2 years is standard treatment length.

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The company studies were two years and tht ws the limit in the original warning about bone cancer. That warning has now been lifted from Forteo and Tymlos and Forteo is now approved for more than 2 years. But I was told Tymlos is less effective after 18 months (or even one year) , I was told. I am doing the full two years but at this point it is just to maintain while deciding on next steps. My doc usually stops it at 18 months!

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