Share Your Brain Tumor type & Years since Diagnosis

Posted by jstow07 @jstow07, Aug 8, 2018

Hey everyone I was diagnosed almost 7 years ago with a medulloblastoma in my right cerebellum. Completely removed followed by proton radiation. No reoccurrence since. Just curious what everyone else has and how many years and treatment

Interested in more discussions like this? Go to the Brain Tumor Support Group.

My husband was diagnosed with gbm stage 3/4 in April 2018. Had it removed and has done Temador and rad currently is using OPTUNE and Temador and clinical trial for one week out of a month.

REPLY

My husband had a craniotomy dx GBM on June 18. Now taking Avastin and radiation. We are just starting this journey. The fatigue is unbelievable. Must have had some cerebral edema as increase of steroids has helped for more periods of wakefulness.

REPLY
Please sign in or register to post a reply.