Tulsa Pro Experience, Mayo Clinic MN – July 2024

Posted by jcf58 @jcf58, Jul 19, 2024

Gleason 7 (4+3). I was treated Wednesday July 17, 2024. I checked in at 7am, entered the MRI/Tulsa suite at 8:15, and woke up in the recovery room around 11:30am. Approximately 30% of my prostate was ablated. I woke up with no pain and catheter in. The first 5-6 hours of the catheter were a little tough as I felt an urgent need to pee, but you can’t because you have the catheter in. Was fine after that. I did take Oxybutynin for bladder spasms at night. At 12:30pm, I walked out of the hospital and 2 blocks to my car to be driven home to Minneapolis.
Over the course of the next 40 hours, I just needed to regularly empty the catheter bag and continued to have no pain. Didn’t even take a Tylenol. The morning after TULSA I took my normal 2 mile walk. Catheter was removed at 7:45 Friday morning and I was good to go home. Catheter removal was not bad and they had to ensure I could pee on my own before release. Urine stream is about half of normal but will improve as inflammation of urethra declines. No medication needed at this point.
I did a ton of research before deciding on TULSA Pro. I talked to 7 different doctors. 4 current and 3 retired (1 had RP and another had radiation). The technology and low risk of side effects made this an easy choice for me. I was also fortunate to have the cancer contained in a fairly small lesion.
I couldn’t be more pleased with the procedure and my care at Mayo.

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

Profile picture for jcf58 @jcf58

Thought I would give a two-year update on my Tulsa experience. I was just down at Mayo in Rochester last Wednesday and Thursday for my two-year complete check up. As a reminder, I was a 4+3 with cribriform, and a PSA of 8.6. My PSA has held steady at 0.8 for all 8 of my quarterly checks. All four MRIs have been negative. As part of the two year follow up, I had a transperineal biopsy of 14 cores. All 14 came back as benign. Very impressed that Mayo had the results back to me in two business days. I remain side effect free, and I’m very happy with the route taken.

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@jcf58

Congratulations. Grateful Tulsa Pro has worked so well for you.

Best wishes for many more years

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Thought I would give a two-year update on my Tulsa experience. I was just down at Mayo in Rochester last Wednesday and Thursday for my two-year complete check up. As a reminder, I was a 4+3 with cribriform, and a PSA of 8.6. My PSA has held steady at 0.8 for all 8 of my quarterly checks. All four MRIs have been negative. As part of the two year follow up, I had a transperineal biopsy of 14 cores. All 14 came back as benign. Very impressed that Mayo had the results back to me in two business days. I remain side effect free, and I’m very happy with the route taken.

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Profile picture for tcan2 @tcan2

Will I feel like flying home later the same day or next day? I have to fly into town the day before for treatment. Then I have treatment at 8am. I'll have a catheter for a few days. Will I feel like flying home later that day? Or the next day. Thanks folks.

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@tcan2

Real good info on catheter so far, however, many people have catheter for 10 to 14 days like I did, so one does have to plan around that. You might want to call and ask what they say how long the catheter will be in and since I had a lot of BPH it was in there awhile. I heard some do fly home or try doing activities, but I don't think I could have done that post Tulsa. I rented an AirBNB for the time I had catheter and found what worked is to catch up on streaming TV shows and so on. I guess it varies widely and does depend on how much ablated or ablation fraction, and how much BPH one has.

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I carried the catheter bag around in a small bucket around the house and in a reusable shopping bag when walking thru the neighborhood!

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Thanks. And that was with a catheter for the first few days? Wow. Didn't think it would be that easy. Good to know

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I only had 30% of my prostate ablated. I walked out of Mayo at 12:30 pm and walked 3 blocks to my car. I felt like I could have driven home. Went for a 2 mile walk the next morning. My recovery may not be the norm though.

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Will I feel like flying home later the same day or next day? I have to fly into town the day before for treatment. Then I have treatment at 8am. I'll have a catheter for a few days. Will I feel like flying home later that day? Or the next day. Thanks folks.

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Mine was covered under Medicare in 2024 (had to be done in a hospital— I did Mayo Rochester).

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What did it cost and does Medicare now cover

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Profile picture for etafkj12345 @etafkj12345

I am 66 and considering the TULSA as well. I am a little concerned as some of the report of unreliable post treatment monitoring ie. is PSA still accurate after treatment. Also, how do you know the biopsy done is not missing cancerous tissue? I have on spot Gleason 6 and one spot Gleason 3+4=7. I am a good candidate by recommendation of Dr. Woodrum's Team.

Worried about post treatment assessment and return for possible other cancer. Curious about percentage of people who have recurring cancer but like minimal side effects.

I know this is a newer therapy.

Appreciate any feedback.

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I had TULSA done at 68 years of age. Total gland ablation was performed for a 3+3 Gleason, with nine out of 30 cores positive for cancer. At 3 months post-TULSA, my PSA was 0.10, and my MRI results at 6 months ( see above ) show no cancer. My PSMA before TULSA showed no uptake, not even in the prostate, though the biopsy indicated cancer. I had two tumors and some mild BPH. It looks like TULSA resolved all of those issues.

Post-TULSA experience was zero pain, seriously, zero pain from the treatment. I had two medications for bladder spasm and the feeling that I sometimes needed to pee. I rarely took those for the 12 days I had a catheter.

You can have your prostate removed, and still have a chance of cancer returning. I looked for a procedure that was minimally invasive, low pain, quick recovery, did not limit any future treatment that hopefully I would not need, and did not require me to have the prostate removed. TULSA was the answer for me. At 6 months, I appear to be cancer-free. I will see what my URO wants to do, maybe another MRI at 1 year post-TULSA. I'm not sure what he will want to do, but right now I am delighted and grateful.

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