TS-HDS Antibody and Small Fiber Neuropathy

Anyone with a positive ts-hds test also test positive for rheumatoid factor ?

Upcoming webinar of interest...

Foundation for Peripheral Neuropathy Webinar: Hereditary Neuropathy & Genetic Testing
Thu, Oct 6, 2022 1:00 PM - 2:00 PM CDT

Sami L. Khella, MD and Shawna Feely, MS, LGC will join us for a one-hour program on hereditary neuropathies and the benefits of genetic testing. During this webinar, our experts will address the problem of misdiagnoses and the benefits of getting genetic testing early on, to lead patients down the right path for treatment. This program will also address the value of genetic counseling for families that are impacted by hereditary diseases.

Dr. Khella has more than 20 years experience in diagnosing and treating patients with a variety of neurologic diseases, and is an attending neurologist at Penn Presbyterian Medical Center. He co-founded the Penn Amyloidosis Center, one of the largest multidisciplinary programs in the United States treating patients with hereditary and acquired amyloidosis. They are a group that is active in clinical trials and cutting-edge therapies for this group of diseases. His other interests includes treating patients with acquired inflammatory neuropathies, such as chronic inflammatory demyelinating polyneuropathy (CIDP), and myopathies such as polymyositis and dermatomyositis.

As a certified genetic counselor specializing in neurology, Shawna Feely works with people who have a family history of neurological disorders—especially Huntington’s disease, a progressive and incurable brain disorder. She sees as many as 15 patients a day at the University of Iowa Hospitals and Clinics, guiding them through all phases of genetic testing.

A Q&A session will follow the presentation.

Webinar generously sponsored by Alnylam Pharmaceuticals.

Register here: https://register.gotowebinar.com/register/2535345596456129805

i have this tshds antibody which cause sensory nerve damage and horrible pain everywhere i also have a monoclonal Igm protein in the blood which usually causes this nerve attack

do you have the monoclonal Igm mgus that is basically the cause of this

@rpenn and others, I haven't read this article but did see that it talks about the management of this type of neuropathy and it was last updated in October 2021. You can read the abstract but would need to sign up for a free account to read the full article.

-- Neuropathies associated with monoclonal gammopathies:
https://www.medlink.com/articles/neuropathies-associated-with-monoclonal-gammopathies

i have tshds small fiber neuropathy with an Igm monoclonal protein but have other symtoms like red eyes incomtinence and itching but the pain in horrible in feet and hands and now in my teeth urinate constantly and leak out does this fit your symptoms

i have tshds neuropathy and would like to know where the facebook discussion is or someone to contact me

I think this might be the Facebook group you are looking for.

-- TS-HDS and FGFR3 Immune Mediated Small Fiber Neuropathy
"This group is for people with Small Fiber Neuropathy that have been diagnosed with high autoimmune antibodies TS-HDS or FGFR3. We will collaborate and share our experiences, knowledge and journeys through the group and a zoom call the first Sunday of each month (4:00 PM Eastern US). See announcements for zoom link."
https://www.facebook.com/groups/735210727192623

Hello @rpenn, I'm not sure you saw my reply to your post. I see that you started a new discussion on the same topic as this discussion so I thought I would respond here in the previous discussion you have posted in -- TS-HDS Antibody and Small Fiber Neuropathy: https://connect.mayoclinic.org/discussion/ts-hds-antibody-and-small-fiber-neuropathy/.

Did you see my reply to your earlier post above this one on Sept 28th?

i have the tshds antibody and Igm mgus and now have pain in my teeth and gums is this part of this illness