Trying to go to work with fibromyalgia..
I need help with trying to figure what I should do. I've been trying work a full time job while also dealing with fibromyalgia. I've been having to file for FMLA over and over trying to keep my job. I've only made it to work 3.5 days for all of December so far due to having one flare after another. I'm trying to get on disability so I have a safety net. I'm only 41 so it's been a steep uphill battle so far. Are there any other options out there? I'm open to any suggestions..
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I am so sorry. I had to stop work altogether due to my fibromyalgia. You should know that fibromyalgia is a condition that is approved by Social Security for disability payments - it just takes several months to get the approval. You are so young to have this problem! I wish you all the best. ❤️
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1 Reaction@jennmoh3 Have you considered looking into attending a Pain Rehabilitation Clinic? Since fibro is a condition without a cure, it is important to learn how to live with it.
Pain Rehab is different to Pain Management in that it acknowledges that the pain is a long-term or permanent part of you life, then teaches you coping strategies for dealing with pain, fatigue, depression, exacerbations, etc.
Mayo offers an in-patient version:
https://www.mayoclinic.org/departments-centers/pain-rehabilitation-center/sections/overview/ovc-20481691
Other places also have outpatient models available, you find them through your primary care provider.
Have you ever considered trying it?
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1 ReactionHi there,
I’m sorry to hear you’re going through this challenging time trying to get disability support and figure out what direction to take. Living with fibromyalgia can be tough, as it affects each person differently and manifests in a wide range of symptoms. I hope you find a positive outcome.
I live in the UK. I worked freelance for the past three years, but I was signed off by my GP for the past six weeks until next January. I have fibromyalgia, lumbosacral spondylosis with radiculopathy and hypermobility. I don’t know how I managed to work over the past three years, but being single, I had no choice but to go to work in excruciating neuropathic pain, chronic fatigue and other symptoms because I couldn’t afford to live on benefits. I didn’t realise that I would have received disability benefits and other support. Because that’s what we push through until our bodies can’t cope anymore.
Please get all the help and support you can. Don’t hesitate to ask the health professiosnals and Social Security,
questions even if they seem obvious, take someone with you if that's possible for support and to advocate for you. Take care and I wish you all the best.
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1 ReactionHave you tried to change out all your chemically laden scented products in your hope. That caused major trouble with my husband and my sister and their fibromyalgia pain. My sister walked out on her job because they wouldn't believe she was in the pain she was experiencing. I have MCS (multiple chemical sensitivity). When I talked to her about that she started changing things that were scented in her home. It didn't completely solve the problem but it did help her lot.
The chemicals they put in our everyday products are so toxic they make me want to die, I get so sick and the pain is so tremendous that I just want to give up. I have made my home as scent free and chemically free as I can and it makes a huge difference. So maybe some of your pain could be helped by eliminating scented products like laundry detergent. dryer sheets. perfume. cologne. dish soap. hand lotion, shampoo, any other products in your home that is scented. This save me and my husband his fibromyalgia and my sisters also. Hope you find a solution and I hope this could help.
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1 Reaction@klancee47
Wise move and I completely agree!
So many everyday products we use at home are carcinogenic and toxic. I’ve never really used scented sprays in my home, only essential oils from Holland and Barrett, a wholesome food chain in the UK, I also use paraben-free and sulphate hair products and skincare.
I have skin and smell sensitivity, which is terrible when I’m out. It’s terrible when I smell someone’s perfume, especially since I have a citrus allergy, so eating out is a nightmare. Restaurants don’t recognise that on their allergy lists.
Anything which eases our symptoms is a good decision.