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Asked chatGPT about how long to be on treatment for Multiple Myeloma
My spouse has been on Darzalex Faspro + Kyprolis + dex for her Multiple Myeloma after she was taken off Vecade and had a bad reaction to the immunomodulators Lenalidomide and Pomalidomide.
So she went on Darzalex Faspro+Kyprolis+dex. She's ok except for some nausea with the Kyprolis. I was wondering how long she may expect to stay on this treatment, so I asked chatGPT and got some very interesting information. You can ask chatGPT anything and you will always learn something, although they do warn you that chatGPT can make mistakes!
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@ahimsa, AI assistants, like ChatGPT can be helpful when searching for information about your health. When you ask an AI assistant a question or give it a prompt, it looks at the data and then gives back answers or suggestions in plain language. But the information AI assistants give you isn’t always 100% accurate—it depends on the data it was trained on and how your question or prompt was worded. It's important to fact check.
You may appreciate the guidance and information posted in this blog:
- What is Generative AI? What does this mean on Mayo Clinic Connect? https://connect.mayoclinic.org/blog/about-connect/newsfeed-post/what-is-generative-ai-artificial-intelligence-what-does-this-mean-on-mayo-clinic-connect/
- What is Generative AI? What does this mean on Mayo Clinic Connect? https://connect.mayoclinic.org/blog/about-connect/newsfeed-post/what-is-generative-ai-artificial-intelligence-what-does-this-mean-on-mayo-clinic-connect/
Did the answer you got from ChatGPT agree with the guidance you and your spouse got from the oncologist? When does she go for her next appointment?
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5 Reactions@colleenyoung
Yes, exactly, the chatGPT keeps reminding you that it can make mistakes so I am very cognizant of that. However I am getting more and better info from chatGPT than I am from my neurologist at the moment. I may be looking for a new neurologist. He runs a lot of tests but doesn't give me the results let alone interpret them. VERY frustrating. Chat GPT can tell me what the numbers mean on my labs; for example a number between 4.5 and 5.1 suggests such and such. The doc doesn't bother to do that.
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2 Reactions@ahimsa Please remember that our lab results are best interpreted by our medical team. There can be several factors they are looking at together. They will also take your physical appearance, mannerisms, and basic demographics into account.
Ginger
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1 ReactionI'm not getting any input from my neurologist here in Naples, FL. I can't travel very far because I cannot walk without a walker and I can only manage a few yards even with my walker. Can you recommend a neurologist in
the Naples, FL area? I'm getting desperate, Thank you.
I regularly use Chatgpt to verify and further explain my test results and the input from the many, many doctors that are involved in my complex diagnosis. I have found out the hard way that many hospitals and clinics (with the exception of Mayo and NJH in my experience) operate in silo's and don't ask for input or cooperation from outside their area of expertise. Chatgpt allows me to input data from the specialists that I have (Oncologist, Pulmonologist, Otolaryngologist, Immunologist, etc) and help me understand what's going on. It also develops questions to take with me when I visit any one of my specialists. I find it invaluable.
I completely agree. I think that our medical providers are getting somewhat defensive about chatGPT. However, my belief is that the more we know about our health, the better. And our providers do not have the time to educate us, nor are they compensated by Medicare et. al. for taking the time to explain things. I am reminded of the old Syms clothing store in the New York area, no longer in business, which had and ad campaign whose motto was, "An educated consumer is our best customer!" Amen!