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Triple Negative Follow Up After Chemo Ends
I am so glad to almost be finished with Chemo. I am on the TC regimen of 4 rounds one every 21 days. I have my last round on 6/11/26. My Triple Negative was very small 1.2 cm with negative margins and lymph nodes. I had a bilateral mastectomy flat closure and I do not have to do any radiation.
Can someone tell me what the usual follow up protocol may look like? I know I will be followed up every few months if I understood correctly. I don't think they will be doing scans etc so that to me is a little worrisome. They did do a Chest and Abdomen CT with contrast before I started Chemo in April. Everything looked good.
I can't help but worry something may be missed.
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Hi,
I had TN almost 5 years ago. My tumor was 5.8 cm not in nodes.
After all the treatment was done they did scans and said all was clear. Every 6 months I have my check up and every year a diagnostic mammogram. They just tell you if you notice any pain that lasts a long time, notify them.
This June is my last 6mth check up, then it will be every year. I plan so see my regular physician for cancer check every 6 months so I keep that every 6 months check up. My triple negative was lobulat which is rare so want to take extra steps.
This is the protocol in Canada.
Sending best wishes and a hug.
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3 ReactionsMy situation is similar with a slight difference. I too am TN but I'm also BRCA2+. I completed chemo then had a bilateral and a flat closure. Where my treatment differs is I had radiation and 18 mo of lynparza because I'm BRCA+. After all treatment I have had yrly scans and 6mo blood work and onco appts. It's only been 3yrs and I think it will continue for a couple more yrs then I'm anticipating check ups will only be yrly. I know I did everything I could with treatment so I don't worry about my BC until I have to do bloodwork and visit onco.
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1 ReactionI also had TNBC in 2025. I had a mastectomy followed by 4 rounds of chemo. My tumor was 1.2 cm , no lymph node involvement and clear margins. I see my breast surgeon every six months and my oncologist NP every six months. There are no scans or blood tests. So that is worrisome. I am just supposed to notice any pain or unusual problems? Research is ongoing for a vaccine. I did join the Breast Cancer Support Network for weekly zoom meetings. It is very helpful. The good news is we caught and treated it early.
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1 Reaction@roberta75 I was in the exact situation. Then after chemo (twice, mine came back) on mastectomy pathology, they found ER+ cancer as well. Personally, in my experience, I feel like the oncologist has done a poor job of explaining what comes next and what I am looking for. And I am at a top cancer hospital! It just adds to the worry to not be educated.
@beckyboston Hi, cancer is a challenge and unpredictable. I had my first breast cancer in 2017. I had 2 sites in my left breast Er+PR+ Her2-. I had on mastectomy on my left a breast and took Letrozole for 5 years. I faithfully had mammograms on my right breast. All has been fine until
April of 25. My chart reported “focal asymmetry”. “Maybe ultra sound right breast. Come back in a year.” I called for further clarification and got a letter on my chart that said my mammogram was normal and come back in a year. I called my oncology team and they ordered further testing. After a more targeted mammogram and ultra sound, I was told I need a biopsy. That result was TNBC! So here I am today after another mastectomy both now with reconstruction followed by chemo. i am starting to eat well and I lift weights and am walking 3 miles most days. My hair is coming back and I keep moving forward with cancer still lingering in my mind.