Triple Negative Breast Cancer: What treatments are you having?
I have just been diagnosed with Triple Negative Breast Cancer after having Estrogen Positive Breast Cancer for 21 years. Is anyone familiar with this diagnosis and treatment that you are having for it?
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My BC was also detected by mammogram and I do not miss my follow ups, believe me!
I know of numerous people who have had great success with Keytruda and I sincerely wish the same for you.
Thank you for your post and best wishes, Cindy 💌
Hello cmdw2600,
My bc was found during my 6 months mammogram. I finished chemo and had a simple mastectomy on July 17th. Starting 4 rounds of Keytruda on July 28. The pathology report showed all clear margins and I am truly grateful for the success of it all. The journey seems difficult sometimes but I choose to see the good in all things. Do not miss your mammogram appointments, early detection is the key to catching it before it’s spreads. Take care and I hope this helps.
💕💕💕
Great information. Thanks!!
I had chemo first (4 Adriamycin-“red devil”), 12 Taxol, then lumpectomy, then 30 radiation. I didn’t have lymph node involvement from the beginning. TNBC is tricky because we don’t get follow up treatment like our estrogen positive sisters unless oncologist recommends. Mine did not because these drugs also, of course, come with side effects.
I also saw an integrative medicine doctor during my treatment and I feel he was a big help with regard to diet, exercise, supplements (he did not try to sell me anything) even acupuncture, meditation and therapeutic massage. I did not avail myself of the last three but may in the future.
Hope this helps. 💌
Curious as to your treatment plan with such good results.
I am sorry to hear this. I am four years out from diagnosis of TNBC. 2019 was my (almost) year of treatment, with good results. I only get mammograms yearly based on my oncologist’s recommendation and must say I do worry quite a bit about recurrence. I try to take one day at a time and live in the present, but it’s difficult when I feel changes or discomfort in my affected breast. My oncologist did not prescribe any follow up drugs because I had a complete pathological response.
Best wishes to you, Cindy
My reoccurrence Tnbc was found when I, had my 6month mammogram. At first they said it was nothing and 6months later it turned out to be stage 1 Tnbc.
I agree about the zomeda. I have been on it every 6 months for almost 2 years, my oncologist said we may continue to 3 years or stop at 2. I had left side masectomy no reconstruction. No lymph nodes involved. 3 weeks of radiation and xeloda for 9 months, I had to stop twice and restart lowering dosage. Had peeling feet and bad diarrhea.
I alternate between the surgeon and oncologist every 6 month. Diagnostic mammo every other year, MRI the other years.
Best wishes to all of you on this journey.
TNBC in spring of 21. 2 cm no lymph nodes. Chemo, then double mastectomy (chosen due to ATM gene and my perceived better peace of mind). I had another round of taxol/carboplatin because I was given an initial chemo that was incompatible with Zeloda (the usual after surgery drug. They now test all TNBC for genes. I have no family history, so I was not initially tested. Knowing this informed my second chemo combination. Don’t hesitate to get second opinion. It is not disloyal and you may learn something useful. I now get a scan every 6 months.
I was very relentless when it came to my mammogram appointments. I called them before they called me. In August 2022 they saw a little speck, they called me back in for a second exam. The radiologist said it was gone. Six months later it turn into a 1,7 tumor. I should have insisted in August but I was so relieved that it was nothing. I will never make that mistake again. Always stay vigilant regarding your health. I know it’s scary but early detection is the best you can do for yourself.
Take care and stay strong!