Triple Negative Breast Cancer: What treatments are you having?

I also had TNBC. Chemo, then surgery (all clear, except some minimal lympho vascular invasion). The double mastectomy I had may be helpful to clearing the lympho vascular invasion. I then had another round of chemo (Taxol/carboplatin). I was also dealing with ATM gene. The new protocol is to test all TNBC for gene mutations. I too have the numbness in my toes and I wondered about the glutamine supplements. First I have heard about this. What brand and dose? Thank you!

What is "red devil"? Somehow I don't like the sound of it... Chemo hasn't been determined yet for me, if/what kind.

Hello everyone,
My first treatment was red devil and taxol. I did okay with it, a little numbness in my feet but I used a glutamine supplement which was amazingly effective. I was cancer free for 5 1/2 years. In February 2023, I was diagnosed with local reoccurrence Tnbc. Chemo first carboplatin, abraxine and Keytruda. This was a brutal regime for me but I made it through all treatments. Each person handles chemo differently. All I can say is take your anti nausea meds every 4 hours (I had two different meds). I’m happy today I had a mastectomy and my pathology report showed all clear margins. My onc plan is 4 more rounds of Keytruda and follow up in 6months. Hopes this helps!
Stay strong, stay positive.

My 1st time with TNBC, I had the red Devil and taxol for chemo. 2nd time I had Gemzar and Carboplatin. All of them had horrible side effects. Biopsy scheduled for 8/21 for a suspicious spot ( size of a parsnip seed- very tiny)🙏🏼

I was diagnosed with triple negative (TNBC) last month and had a mastectomy a week ago. I haven't gotten the pathology report back yet about lymph nodes and margins and all of that. I will likely be doing chemo of some sort regardless because it is triple negative and therefore more likely to recur, even if everything looks okay now.

I've heard it implied that chemo for TNBC is particularly challenging because there isn't the specific target to aim at, as with the other types. I'm sure responses and medications differ but I'm interested in hearing from any who may have an opinion on this. Thanks.

I've gotten approved to take Lynparza as maintenance med. I believe I'm starting on the lowest dosage 100mg 2/AM then 2/PM - 4 total daily pills. Wish me luck on minimal side effects. I just received the pills and am starting to read the literature before starting. I was advised to not ingest only a couple foods (grapefruits, Seville oranges (found in orange marmalade) and pomegranates. But was not told of any interaction with my existing meds or supplements.

My BC was also detected by mammogram and I do not miss my follow ups, believe me!

I know of numerous people who have had great success with Keytruda and I sincerely wish the same for you.

Thank you for your post and best wishes, Cindy 💌

Hello cmdw2600,
My bc was found during my 6 months mammogram. I finished chemo and had a simple mastectomy on July 17th. Starting 4 rounds of Keytruda on July 28. The pathology report showed all clear margins and I am truly grateful for the success of it all. The journey seems difficult sometimes but I choose to see the good in all things. Do not miss your mammogram appointments, early detection is the key to catching it before it’s spreads. Take care and I hope this helps.
💕💕💕

Great information. Thanks!!

I had chemo first (4 Adriamycin-“red devil”), 12 Taxol, then lumpectomy, then 30 radiation. I didn’t have lymph node involvement from the beginning. TNBC is tricky because we don’t get follow up treatment like our estrogen positive sisters unless oncologist recommends. Mine did not because these drugs also, of course, come with side effects.

I also saw an integrative medicine doctor during my treatment and I feel he was a big help with regard to diet, exercise, supplements (he did not try to sell me anything) even acupuncture, meditation and therapeutic massage. I did not avail myself of the last three but may in the future.

Hope this helps. 💌