1. < Breast Cancer

Triple Negative Breast Cancer: What treatments are you having?

Posted by thielmann1 @thielmann1, Dec 9, 2021

I have just been diagnosed with Triple Negative Breast Cancer after having Estrogen Positive Breast Cancer for 21 years. Is anyone familiar with this diagnosis and treatment that you are having for it?

Interested in more discussions like this? Go to the Breast Cancer Support Group.

callalloo | @callalloo | Apr 24, 2022
In reply to @leolion811 "Yesterday was a lot of fun! Check out respiteretreats.org . You should be able to fill..." + (show)
@leolion811

Yesterday was a lot of fun! Check out respiteretreats.org . You should be able to fill out the information online or ask your nurse navigator at your chemo center.

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I looked at the website and the organization looks great!

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leolion811 | @leolion811 | Apr 24, 2022
In reply to @auntieoakley "Knowing personally the side effects from what you took the first time, I am just going..." + (show)
@auntieoakley

Knowing personally the side effects from what you took the first time, I am just going to say “ you got this!”. They call adriamycin the red devil for a reason. Lol

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Thank you 🥰

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Mentor
Chris, Volunteer Mentor | @auntieoakley | Apr 24, 2022
In reply to @leolion811 "For my 1st diagnosis of TNBC, I had 4 cycles of the Red Devil followed by..." + (show)
@leolion811

For my 1st diagnosis of TNBC, I had 4 cycles of the Red Devil followed by 12 treatments of Taxol. Followed by 1 month of rads. This time I am having Gemzar/Carboplatin for 4 cycles ( 8 treatments) followed by 5 weeks of rads. Good luck to you 🙏🏼

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Knowing personally the side effects from what you took the first time, I am just going to say “ you got this!”. They call adriamycin the red devil for a reason. Lol

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1 reply
leolion811 | @leolion811 | Apr 24, 2022

For my 1st diagnosis of TNBC, I had 4 cycles of the Red Devil followed by 12 treatments of Taxol. Followed by 1 month of rads. This time I am having Gemzar/Carboplatin for 4 cycles ( 8 treatments) followed by 5 weeks of rads. Good luck to you 🙏🏼

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1 reply
leolion811 | @leolion811 | Apr 24, 2022
In reply to @colleenyoung "How liberating to color with crayons again. I love your adjective of zealful! What is the..." + (show)
@colleenyoung

How liberating to color with crayons again. I love your adjective of zealful! What is the program called and how might others take part?

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Yesterday was a lot of fun! Check out respiteretreats.org . You should be able to fill out the information online or ask your nurse navigator at your chemo center.

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1 reply
leolion811 | @leolion811 | Apr 24, 2022
In reply to @callalloo "I just freeze gingerale in waxed-paper cups, lol. I have a finicky stomach so have a..." + (show)
@callalloo

I just freeze gingerale in waxed-paper cups, lol. I have a finicky stomach so have a lot of old nostrum-tonic tricks that I've read about. And frozen liquids are just soothing as the doctor told me they could be. Another good frozen option for nausea that seems to help me is mint tea with honey. And a favorite, non-frozen, is Angostura bitters in soda with a small amount of sugar.

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I will have to get some wax paper cups to freeze ginger ale. So you also freeze mint tea with honey? Angostura bitters in ginger ale? Thanks for all of your tips and suggestions 🙏🏼

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1 reply
leolion811 | @leolion811 | Apr 24, 2022

I see where they sell the dried miracle fruit in packages on Amazon!

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1 reply
callalloo | @callalloo | Apr 24, 2022
In reply to @leolion811 "I have never heard of miracle fruit. Wonder where I can find it? Asian Market?I have..." + (show)
@leolion811

I have never heard of miracle fruit. Wonder where I can find it? Asian Market?I have a lot of ginger ale on hand . Popsicles too! Never heard of ginger ale popsicles? Thank you 😊

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There are growers of miracle fruit in Florida who sell it online. It's such a niche fruit that there are no commercial growers of size that I know of. According to botanical media, the sugar industry did a lot to suppress attempts to commercialize it as it allowed people to skip sugar. That's unfortunate as it would have been a boon for people who cannot have sugar in their diets.

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callalloo | @callalloo | Apr 24, 2022
In reply to @leolion811 "I have never heard of miracle fruit. Wonder where I can find it? Asian Market?I have..." + (show)
@leolion811

I have never heard of miracle fruit. Wonder where I can find it? Asian Market?I have a lot of ginger ale on hand . Popsicles too! Never heard of ginger ale popsicles? Thank you 😊

Jump to this post

I just freeze gingerale in waxed-paper cups, lol. I have a finicky stomach so have a lot of old nostrum-tonic tricks that I've read about. And frozen liquids are just soothing as the doctor told me they could be. Another good frozen option for nausea that seems to help me is mint tea with honey. And a favorite, non-frozen, is Angostura bitters in soda with a small amount of sugar.

REPLY
2 replies
Moderator
Colleen Young, Connect Director | @colleenyoung | Apr 23, 2022
In reply to @leolion811 "At my Cancer Center thru my hospital ( they recommended me to be a part of..." + (show)
@leolion811

At my Cancer Center thru my hospital ( they recommended me to be a part of this wonderful organization (respiteretreats.org) Their corporate office is right near me but they are always looking for people all over the country to participate. Please check them out! We did all kinds of fun activities- bingo, journal writing, creating our own Mandela, creating our own poems, chair yoga. And they send you all the activities ahead of time to join in the fun including a beautiful blanket, coffee cup, hat, coloring materials etc.

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How liberating to color with crayons again. I love your adjective of zealful! What is the program called and how might others take part?

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