Triple Negative Breast Cancer: What treatments are you having?

Posted by thielmann1 @thielmann1, Dec 9, 2021

I have just been diagnosed with Triple Negative Breast Cancer after having Estrogen Positive Breast Cancer for 21 years. Is anyone familiar with this diagnosis and treatment that you are having for it?

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@callalloo

I just freeze gingerale in waxed-paper cups, lol. I have a finicky stomach so have a lot of old nostrum-tonic tricks that I've read about. And frozen liquids are just soothing as the doctor told me they could be. Another good frozen option for nausea that seems to help me is mint tea with honey. And a favorite, non-frozen, is Angostura bitters in soda with a small amount of sugar.

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I will have to get some wax paper cups to freeze ginger ale. So you also freeze mint tea with honey? Angostura bitters in ginger ale? Thanks for all of your tips and suggestions 🙏🏼

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I see where they sell the dried miracle fruit in packages on Amazon!

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@leolion811

I have never heard of miracle fruit. Wonder where I can find it? Asian Market?I have a lot of ginger ale on hand . Popsicles too! Never heard of ginger ale popsicles? Thank you 😊

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There are growers of miracle fruit in Florida who sell it online. It's such a niche fruit that there are no commercial growers of size that I know of. According to botanical media, the sugar industry did a lot to suppress attempts to commercialize it as it allowed people to skip sugar. That's unfortunate as it would have been a boon for people who cannot have sugar in their diets.

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@leolion811

I have never heard of miracle fruit. Wonder where I can find it? Asian Market?I have a lot of ginger ale on hand . Popsicles too! Never heard of ginger ale popsicles? Thank you 😊

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I just freeze gingerale in waxed-paper cups, lol. I have a finicky stomach so have a lot of old nostrum-tonic tricks that I've read about. And frozen liquids are just soothing as the doctor told me they could be. Another good frozen option for nausea that seems to help me is mint tea with honey. And a favorite, non-frozen, is Angostura bitters in soda with a small amount of sugar.

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@leolion811

At my Cancer Center thru my hospital ( they recommended me to be a part of this wonderful organization (respiteretreats.org) Their corporate office is right near me but they are always looking for people all over the country to participate. Please check them out! We did all kinds of fun activities- bingo, journal writing, creating our own Mandela, creating our own poems, chair yoga. And they send you all the activities ahead of time to join in the fun including a beautiful blanket, coffee cup, hat, coloring materials etc.

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How liberating to color with crayons again. I love your adjective of zealful! What is the program called and how might others take part?

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@colleenyoung

@leolion811, I'd like to hear more about the Respite Retreat. How did you find it? What was most helpful to you? Any tips to share?

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At my Cancer Center thru my hospital ( they recommended me to be a part of this wonderful organization (respiteretreats.org) Their corporate office is right near me but they are always looking for people all over the country to participate. Please check them out! We did all kinds of fun activities- bingo, journal writing, creating our own Mandela, creating our own poems, chair yoga. And they send you all the activities ahead of time to join in the fun including a beautiful blanket, coffee cup, hat, coloring materials etc.

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@leolion811

Thank you 🙏🏼 The hospital messed up my port placement yesterday so now my port will be placed on Monday with chemo starting on Tuesday. I attended a virtual Respite Retreat today and it really helped my spirits 🥰

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@leolion811, I'd like to hear more about the Respite Retreat. How did you find it? What was most helpful to you? Any tips to share?

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@auntieoakley

I have a friend who just underwent treatment with carboplatin, and she did lose a lot of her hair, but not all. I was happy to see that she retained her eyelashes, and eyebrows. She did pull the remaining hair that was dead on her head to prevent it from just being everywhere as it fell out. (It does not hurt, you cannot feel it)
Her main complaint was not nausea but the unpleasant taste and smell. This is really common with chemotherapy. The doctors controlled her nausea quite well with odansetron and compazine.
The smell and taste associated with many chemotherapy drugs is a challenge. I found that aveeno unscented is the only truly unscented body wash I can find. Daily showering with it didn’t dry out my skin and kept the smell at bay. Everything tasted like it and I never found anything that changed that, but it doesn’t last the entire cycle.
I know you are full of anxiety right now, because I have been where you are. Not TNBC, but relapse. Are you doing anything to try and enjoy the time before treatment? I find that eating things I love during this time, helps me to set them aside during treatments. Also I seem to enjoy the outdoors more, how about you?
How are you feeling after getting your port?

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Thanks for all of thoughts and good wishes. I attended a virtual Respite Retreat today and I really needed that. I highly recommend it. I will check out the Unscented Aveeno body wash. The hospital messed up my port placement yesterday so it will be placed on Monday and my chemo will start on Tuesday. 😢 and I had to have another PCR COVID test in order to go back into the hospital on Monday 😢🙏🏼

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@olg1

I was diagnosed with triple negative grade 3 invasive carcinoma last December. I couldn’t get chemo because I couldn’t get an eight and I am in a wheelchair because with Covid nobody wanted to work so I got radiation I finished radiation the end of September I have horrific fatigue I have no feeling around the breast near the surgery site and read they did the radiation and now I have to go for another ultrasound is this fatigue, after so many months of radiation

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Why didn’t you have chemo? TNBC is very aggressive and everything needs to be thrown at it to kill this beast 🙏🏼🙏🏼

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@gbnana

I had my mastectomy in Dec for triple neg cancer stg 3
At age 70 here in Alberta I was advised by oncologist to avoid chemo as what is used for this type is too harsh on oldies like me. So I go forward without further treatment and just watch for indicators of possible recurrence.
I am ok with my decision.
Good wishes of health I send to all of you!

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Please ask your oncologist about the Gemzar/Carboplatin chemo treatment. You aren’t too old for chemo ( I will be 69 in 3 months) I have too much to live for and I won’t give up!

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