Trigeminal Neuropathy vs. Trigeminal Neuralgia: Is it the same?

Posted by earringsbylulu11 @earringsbylulu11, May 17 8:25am

Trigeminal Neuropathy versus Trigeminal neuralgia. After a failed MVD operation I Still have painful TN Plus trigeminal neuropathy. Why, what is the difference between the two

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Hi @earringsbylulu11, That would be a great question for a neurologist who can speak in layman's terms. I found a simple explanation that I think is what it boils down to on a pain and spine clinic's site:

"Neuropathy is a nerve condition that often can result in feeling pain, numbness, tingling, swelling, or muscle weakness in different parts of the body. It usually begins in the hands or feet, and gets worse over time. Neuralgia refers pain along the nerve pathway as a result of damage or irritation to that nerve." — Neuropathy Or Neuralgia: https://painandspinespecialists.com/conditions/neuropathy-or-neuralgia/

I think it's also covered on the Trigeminal Neuralgia Fact Sheet here: https://www.ninds.nih.gov/health-information/patient-caregiver-education/fact-sheets/trigeminal-neuralgia-fact-sheet. I also found some information on a redo of the MVD that may be helpful:
— Prospective Comparison of Redo Microvascular Decompression and Percutaneous Balloon Compression as Primary Surgery for Recurrent Trigeminal Neuralgia: https://pubmed.ncbi.nlm.nih.gov/30081435/

Have you asked your surgeon if a redo of the MVD surgery is possible or would help with your pain?

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Yes, I spoke to two neurosurgeons and one neurologist at Mayo clinic, They suggested I do not do any kind of intervention surgery.
In a year or two I was told that maybe my pain will go away.
I am working with a local MI pain clinic, still in pain. My neurosurgeon in MI said there is nothing he can do concerning my issue.

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@earringsbylulu11

Yes, I spoke to two neurosurgeons and one neurologist at Mayo clinic, They suggested I do not do any kind of intervention surgery.
In a year or two I was told that maybe my pain will go away.
I am working with a local MI pain clinic, still in pain. My neurosurgeon in MI said there is nothing he can do concerning my issue.

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I'd get ahold of dr.lim at Standford in California. Get fiesta MRI and send it to him, do a phone consult. He is amazing neurosurgeon

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