Traumatic Brain Injury: Come introduce yourself

Hey @hevykevy, I bet you're not the only ones with eye issues post TBI. Would you mind starting a new discussion about it?

Welcome to the group, Maggie20. I can sure relate to the vision issue. When I woke up in the hospital, I was seeing two of everything. One of them was slanted about 15 degrees. No matter how hard I tried, I could not correct this. Fortunately for me, it went away, mostly. I still see double on occasion, and I have shadows next to letters when I read. I need to use eye drops now. It is amazing how much we depend on our eyes.
I can't make any promises for your recovery, I have been amazed at our body and brain's ability to heal itself. At first, I wasn't aware of how much damage had occurred, as I went back to work within 2 weeks of the accident(I was only working half days), but as time went on I realized there were more things that I couldn't recall. But things continue to improve.
It is good to hear that you are getting help and that you are improving, even if it is a huge test of our patience. Also good to know that you are in tune with your current limitations. It is much safer for all of us, but also helps us mend faster if we don't over do it.

Hi everyone – my turn to introduce myself to everyone. This is Wendy. I have been a resource facilitator with MN Brain Injury Alliance (BIA) for 12 years now. Some of you have worked with me and all of you have talked with a BIA resource facilitator. I have experience working with troubled youth and victims of domestic violence and I often think - I wish I knew then, what I know now.
I get to hear people’s stories; their struggles and successes and be part of finding resources that will help them. But more importantly, I am better at my job because people teach me how they need to be heard. Sometimes I hear from people that professionals that they meet do not always recognize their unique injury and experience. Have you had positive experiences with providers or professionals who made you feel really heard? What did they do or say to make you feel that way?

I had a PLUS experience the other day. Went to the Co-op to fill water jugs and ran into a lady I haven't seen in 3 or more years. I remembered who she was and even her name. When I said 'Hi', she looked at me and asked "Where do I know you from?" True, she is 80, so having a better memory than an 80 year old is nothing to brag about, but for me, remembering her name was huge. It's possibly my worst issue from the TBI. So I'm going to view this as a positive, especially after a second TBI and over a week of recovering from a 'Man-cold.'
Glad to hear from Jane, 'FrontRunner, and good to see positive reports. Progress, even if it is very slow, is still progress, and worth celebrating. We need all the positive we can get.

Later.. my lawyer doesn’t have much hope for a good result for my lawsuit against our “Management “Company . I am really bummed. And depressed. The ambulance doesn’t keep a record if you don’t want to go with them. My Good Samaritan said he thought I had had a stroke or had fainted. The records at the ER say I had “collapsed” . None of the med files I gave to him made a bit of difference. Their lawyers are fixated on “ fainted, stroke, and collapse”. And I can’t testify because I have a brain injury. I’m beyond devastated.

Hi @frontrunner, so glad you emerged from lurker status to say hello and introduce yourself. As they say, better late than never. I'm glad I finally posted my intro as well. What do you do to take brain breaks? What activity or non-activity helps rest your brain?

How are you doing today? What's one thing you're grateful for today?

This group and Anne have been helpful to me as well. I am also grateful for the support of my employer though this ordeal.

Hi Frontrunner, I also had an incident with low sodium (Syndrome of inappropriate antidiuretic hormone secretion) that landed me in the hospital for a week last year. After my fall (December 2018) I was in HCMC overnight but then went to the ER at Methodist in St. Louis Park after I passed out in the bathroom. I was treated for the sodium issue at Methodist (they were terrific). Did you have hallucinations? Sorry that you suffered hearing loss. I have trouble with tinnitus and sensitivity to noise but otherwise my hearing didn't suffer too badly.

Hi, Anne! Nice to see a face to go along with your voice!
I saw my concussion doctor and he suggested doing PT again. I’ve been having vertigo again for a bit. So I’m back to being dizzy a lot and took some baby steps back. I’m disappointed, but am trying to be positive. My lawyer called a couple of times and is sounding like he’s not as enthusiastic as he was when I first brought my case to him.
And on a lighter note, I tried to melt the wax out of candles I still had, and discovered that hot wax is slippery on glass and I was very impressed by my juggling skills. It was a mess from beginning to end. I had a lot of candles in glass containers and wanted to recycle all that glass. I just can’t smell.

I've been lurking on this site for a couple of months and thought I should try to introduce myself. My name is Jane. My TBI occurred in June 2018 while riding my bike to work. A roller skier cut me off and the next thing I knew I was being put in an ambulance. Evaluation at HCMC showed 4 skull fractures and four (small) intracranial bleeds. I was discharged about 4 days later but had to take another ambulance trip back when my sodium dropped precipitously. (Has anyone else had that happen? Apparently it happens in about one third of severe brain injury cases.) I was out again in about a week after... let's just say HCMC did not show a very good side of themselves.

Since then I've come a long way but the cognitive fatigue still knocks me for a loop. I am able to work for only about 4 hours a day, although following the advice of the Mayo professionals and taking brain breaks every hour really helps. I lost my hearing in my right ear (one of the fractures was through my inner ear) and that is more of a handicap than I imagined. But I'm coming along.