Traumatic Brain Injury: Come introduce yourself

Welcome to the Traumatic Brain Injury (TBI) group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people who know first-hand about living with a traumatic brain injury. Together we can learn from each other and share stories about challenges and triumphs, setbacks and the things that help.

Pull up a chair and connect. Why not start by introducing yourself? What is your experience? Got a question, tip or story to share?

Interested in more discussions like this? Go to the Traumatic Brain Injury (TBI) Support Group.

I hear you. almost everything has become more challenging with TBI. Recovery becomes the focal point of our lives, then as we slowly are able to return to things we used to be able to do, our life's scope becomes broader again. But recovery still requires effort, and will for quite some time. As you said "My brain is in no shape to be messing with chemicals" Now you have all the more reason to avoid them at all costs.
I've never had an addiction problem, but my wife went through Hazelden a few years ago. I went through the family session. A few things I remember. Finding at least one really good support person is one of them. Avoiding the influences that trigger or encourage you to fall back. Try to see the whole picture...Are a few hours of pleasure/fun/relief worth the long term effect it will have on your recovery? Are friends who encourage you to do harmful things, really friends.
You have come a long way, you can do this. Keep the positive attitude. Look to the long term future, recovery, but set short term goals to focus on. Rejoice with every victory no matter how small it is. Accept any help and encouragement you can get. "We're all in this together"

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Yeah its s life long thing along with tbi i know this but i was doing really good with coping with the struggles i had with cd n learned do much on how to fight it i was confident i wouldn't go back now its challenging again

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Profile picture for msa1396 @msa1396

Thank you. On a desktop could prob type but on my phone not with both hands as my fine motor skills arent the greatest yet. Before my tbi i had an addiction problem & now after it seems even harder to say no. Not sure why because obviously my brain in no shape to be messing with chemicals. It frustrates me because i want to make the most of my recovery & really dislike fighting demons i thought i had left in my past for the most part.

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Sorry to hear that. Chemical dependency issues are such a challenge and you never get "cured". So important to surround yourself with friends who will encourage you to stay clean and continue to make progress. For sure I'm here to help and from what I've seen, all of us will be as positive and helpful as we can.

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Profile picture for msa1396 @msa1396

My name is McKenzie i am 23 live in pillager mn i acquired my tbi a little over a year ago & then vs now is amazing i wasn't able to use my left arm at all and now im working on making it stronger which is amazing. It isnt ever easy however ive learned that your attitude& mindset plays a huge role in your recovery. Right now my biggest issue is making good choices & remembering things which i write everything down to help that. As for making better choices still working on it

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Welcome McKenzie. You are so right about positive attitude and mindset. Wanting to do things again or trying to do better at what you can. If you never try, that is failure. If you try, even if it doesn't go as well as you'd like, It's still progress!
Memory issues are a common theme in this group. Writing things down has always been a key to remembering things better, I think because we involve more areas of our brain, plus, seeing it written helps. I still have to put all appointments on my phone calendar and everything else on a to do list. But even people without TBI have to do that.
Glad to hear you have made great progress and continue to improve. You have one good thing going for you...You live very close to a Fleet Farm. I am jealous. Anxious to hear more of your story.

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Profile picture for Colleen Young, Connect Director @colleenyoung

Welcome McKenzie @msa1396
Congratulations on being able to move your left arm again and moving forward with making it stronger. Does that mean that you can type with 2 hands now?
What types of challenges do you have with making better choices? What choices are the hardest?

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Thank you. On a desktop could prob type but on my phone not with both hands as my fine motor skills arent the greatest yet. Before my tbi i had an addiction problem & now after it seems even harder to say no. Not sure why because obviously my brain in no shape to be messing with chemicals. It frustrates me because i want to make the most of my recovery & really dislike fighting demons i thought i had left in my past for the most part.

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Profile picture for msa1396 @msa1396

My name is McKenzie i am 23 live in pillager mn i acquired my tbi a little over a year ago & then vs now is amazing i wasn't able to use my left arm at all and now im working on making it stronger which is amazing. It isnt ever easy however ive learned that your attitude& mindset plays a huge role in your recovery. Right now my biggest issue is making good choices & remembering things which i write everything down to help that. As for making better choices still working on it

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Welcome McKenzie @msa1396
Congratulations on being able to move your left arm again and moving forward with making it stronger. Does that mean that you can type with 2 hands now?
What types of challenges do you have with making better choices? What choices are the hardest?

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My name is McKenzie i am 23 live in pillager mn i acquired my tbi a little over a year ago & then vs now is amazing i wasn't able to use my left arm at all and now im working on making it stronger which is amazing. It isnt ever easy however ive learned that your attitude& mindset plays a huge role in your recovery. Right now my biggest issue is making good choices & remembering things which i write everything down to help that. As for making better choices still working on it

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Profile picture for hevykevy @hevykevy

Wow! You must have a million stories. Glad to hear you are doing so well. I can relate to the "look recovered" but not really. On the outside we heal quickly, but the real serious damage is hidden and takes a long time to mend. Based on the fact that you are back at work, you must be younger than me, us old people heal slower. Keep making progress and do pay heed to your limitations, Over doing things can hinder or slow down recovery.

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Thank you for responding. I am very motivated to continue to improve.
Mike G.

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Profile picture for lolabelle1 @lolabelle1

Hi! Some 14 months ago, I fell down 12 feet of stairs in the dark one night. Very scary and very life-changing. I broke my hip, pelvis, sacrum, four ribs, had a TBI and damaged my 4th cranial nerve (in other words, had double and triple vision). A month in the hospital, many months of rehab and two surgeries. My eye surgery was the last one a month ago. I'm extremely fortunate to be in good shape now and am back working full-time but am struggling with memory issues at times and have profound sensitivity for those earlier on their journey. So while I look recovered now, I'm not always and have to keep my memory issues largely undercover given I have a professional job. Thank you for letting me participate.

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HI @lolabelle1, I'm grateful that you're in the community to help support members who find themselves in the early stage of living with TBI. What tips and tricks have you put in place to help keep your memory issues "undercover?"

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Profile picture for mkgarrity @mkgarrity

I am Mike Garrity. l live in Sauk Rapids MN. My TBI was a fall into table with a sharp cornet which perforated my scull. From this accident I now have a metal plate, some vestibular impairment,some hearing loss, and tunnel vision. I have received excellent therapy at Cenra car and perform normal function with effort. I am happy to be connected with this support group.
Mike G

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Hi @mkgarrity, I extend my welcome to you too. Mike, I removed your exact address from your post for your security. While the TBI group is currently a private group, it will become a public group after the study period. We recommend not sharing personally identifying information like email address, phone number, mailing address or patient ID number. Sharing your town or state is fine. Should you wish to contact someone who lives near you, I recommend using the private message function. Find useful tips on how to use Connect, including private messages here: https://connect.mayoclinic.org/get-started-on-connect/

What extent is your hearing loss? Do you need hearing aids? Or is it more of a balance issue?

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