Why does the medical field shy away from toxic neuropathy?

Thank you for your comeback, Am trying to reply back to all messages received and just now read yours and will get back soon.

The bad thing is just not the Bp. I dislike the tachycardia and bradycardia. It gets in your kidneys and bladder. There is nothing they can do about the heart.The cardiologist and electrophysiologist gave me 8 years to live. 4 are gone repeated the one month holter monitor test and the bradycardia and tachycardia are worse. Medication for the arrhythmias did not help
They can’t use a pacemaker because it goes off the nerve conduction. Wait until you start having seizures with it.

Hi,
Unfortunately you're not wrong.
I have outlived my death sentence given by my previous Dr. My only recourse is to remind the Dr every time I see her in passing, I'm still here and very much alive, thank you. She gave me five years and I have snatched seven plus. Anymore is at the discretion of ANS.
To date my entire digestive system from end to end is compromised and under the whims of ANS, this is now a permanent feature. My BP, brain, eyes, limbs, stability, ears, hand eye coordination, temporary memory loss and other minor feature have become a daily obstacle course to wonder through. Just when I think I have a handle on it all I get hit with short term temporary paralysis from the waist down, usually stopping mid stripe and unable to command a move for a few minutes. Really weird feeling looking down at my feet unable to persuade from the waist down to move, like I'm wearing concrete boots. Then I might find I have lost the ability to speak, not knowing how to action the muscles to speak, felt like a right idiot, the brain searching rapidly for the tools to make speech. Touch wood my heart remains mainly unaffected by it all only giving me short periods of AF, just enough to shake up ED. But this is my life and I do whatever I can to fight on. I don't have a thirst for life particularly and have visited death before. All I can do is live each day as fullest I can trying not to waste a minute of it that I get to use.
Cheers

I am sorry you’re going through this but Thanks for sharing. I feel like I am the only one enduring this craziness with the gastroparesis and everything else. I occasionally go see a research neurologist in Boston when the doctors here in Texas get stumped. My seizures have been linked to the neuropathy. They tell you it can’t affect the brain yet it does.

as a former lab safety professional I can attest that nitrile gloves are NOT designed to be chemical resistant in almost all cases
I've attached one manufacturer's information
there's probably more out there
Do you have access to the Material Safety Data Sheet for the product you were exposed to in the workplace?
what was the written policy on preparing the solution for use and was it followed?
we often ran into folks who did not get adequate training and had no written standard operating procedures for making up the solutions for cleaning...
https://www.dartmouth.edu/ehs/chemical/nitrile_gloves_chemical_resistance_guide.pdf

Hi,
While it doesn't affect the brain directly as in a brain disease or damage, it does compromise the brain's ability to interpret corrupted signal it receives through the compromised nerves. Respectively it in turn sends out signals through compromised nerves to the appropriate muscles to do their thing. Sadly with the nerves being the "glue" that ties it all together can't make head nor tail of the instruction and we get corrupted signals to the muscles, either freezing, jittering or confusion, worst case we actually do something right!
For me when I strike a problem trying to step it is as though the brain sends out the usual signal to make tracks, it then figures I sent that signal so we are now stepping and I should follow up with the other foot stepping. Sadly the first step never got accomplished as the signal was corrupted and nothing happened other than I got down to kiss the wonderful ground beneath me, I stumble or fall. In the rear occasion neither leg gets the signals and I'm glued to the ground for a few minutes until the eyes get in on the act and say hay you didn't move, lets try that again. Now with this happening often the brain has learnt to catch me because the eyes see the earth hasn't moved beneath me, so get another signal out quick smart to catch myself before that beloved Papal kiss!
It amazes me how well the brain can re-educate itself to correct some of the deficiencies that are developing. Sadly it can't re educate the corrupted nerves to get it right. I always figured I could do anything, it just takes me time to figure out how to accomplish it.
I can't say the fight goes on, because frankly the ANS hasn't decided to let me join the fight, it insists on playing it's own silly game to which I'm the bystander.
Cheers

Nerve test done on a referral from hand surgeon who practices in the very building i worked at. In fact saw him daily as the exam rooms were on my floor of designated duties. I got the medical report before doing a follow up with hand surgeon, and it was diagnosed as carpal tunnel syndrome. I had brought up what i knew to be the cause to his nurse at the initial visit, and also with the nerve test doctor. The medical report was not very accurate about various things and had to get an amendment done. At the follow up with hand surgeon it was like he did not know what it was, provided no treatments, and basically showed me the hallway and also he would not return a request for a letter of causation to the state workers comp ombudsman.

Since this all began i have done many hours of research on the topic surrounding toxic neuropathy and it appears to be like the stepchild. My string of medical provider visits started with a dermatologist who called it contact dermatitis possibly from a chemical at work which was spot on. Allergy and asthma patch testing labeled it as a caustic/ irritant dermatitis. Hematologist called it a form of leukocytosis after blood test with high WBC. Four blood test were done over the course of last summer and all were high WBC with the final one done by the hematologist coming in as more acceptable. From there it went on to a nerve test in jan/24.

Employer was Aramark, who is contracted by Baylor, Scott, and White here in waco, tx to do cleaning and linen services. Very limited training and almost no supervision in the use of the chemicals on application and disposal of. The very gloves the EVS personnel used were the same thin gloves the doctors and nurses use. In fact, the emplyer did not stock the gloves themselves in the supplies inventory, we basically grabbed a box from the orthopedics medical supply rooms when needed with no questions ask. 3 mil in the palm and 4 mil in the fingers and says right on the box gloves are intended as a biological barrier and not intended for use agaist chemicals. That as a fact puts a lot of cost savings to employer, clinic when you issue 4 cent a pair gloves to cleaning personnel instead of what should be apprx $ 1.00 +/-.

Need to get busy on things. Thank you for your time and feel free to comment.

thank you for the reply
the box the gloves are in state on the back they are intended for use as a biological barrier and not intended to be used for chemical protection

ecolab is the current chemical company that has dispensers in the complex of buildings i worked in that use 3 different chemicals for cleaning, with A-456 disinfectant cleaner being most in contact with hands...application methods call for the rags and mops to be immersed in the dilluted solution and used in specific way to be effective so it requires a degree of wringing out before applying and in turn where the dermal absorption takes place if gloves are not right thickness

risk assessment by employer Aramark is out to lunch on PPE in the way of gloves because of cost no doubt, but management is very negligent in training and informing employees of the dangers involved using these chemicals...this is not just a user beware problem

Actually, I am currently part on a study that is showing autonomic neuropathy does affect the pain. It’s pretty interesting. The research neurologist picked me due to my symptoms out of nowhere I started having seizures and other problems. She has been researching neuropathy since before 2015.

Hi,
Fingers crossed, I hope it goes well for you.
Cheers