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Torture at night: Burning when something presses the skin

Posted by pitepalten @pitepalten, Oct 11, 2021

I have had this burning for the last 2 months. Started slow but have progressed. It is worse at night. It feels like where something presses on the skin it burns. I think that is why I can’t sleep. I have had the nerve tests but shows nothing. Anyone had something similar?

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pitepalten | @pitepalten | Oct 19, 2021

Thanks. Not sure why but I felt better last night. Hopefully it lasts.

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pfbacon | @pfbacon | Oct 19, 2021
In reply to @organizingkaos "I had to to leave a post for you on this. This is the exact thing..." + (show)
@organizingkaos

I had to to leave a post for you on this. This is the exact thing that happened to me when I contracted Lymes Disease. I had a ridiculously painful growing skin rash that hurt with a light breeze. I couldn't sleep or even lay down! I didn't think it was Lymes because I had not seen any bites. Come to find out, a rash can occur anywhere. Not necessarily at a bite. I had been so careful for years as a Landscaper. I forget the name of the Antibiotics I had been perscribed but, they helped with the rash and the unbearable pain. I can't tell you this is a result of Lymes but, it's something to consider. Hope this helps

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Thank you. I'll ask my doctor to test me for Lymes. Just what I need - one more condition. I have to admit that I'm weary of doctors, waiting rooms, labs, medicines, pharmacies ... all of it. I wish I could be healthy again, for just one month (I wrote day, crossed it out, wrote week, crossed that out). In one month I could finish my bucket list. No, two months. Yeah, two months. Peggy

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1 reply
pfbacon | @pfbacon | Oct 19, 2021

No, three months - for sure in three months I could do everything left on my bucket list. Peggy

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organizingkaos | @organizingkaos | Oct 19, 2021
In reply to @pfbacon "Thank you. I'll ask my doctor to test me for Lymes. Just what I need -..." + (show)
@pfbacon

Thank you. I'll ask my doctor to test me for Lymes. Just what I need - one more condition. I have to admit that I'm weary of doctors, waiting rooms, labs, medicines, pharmacies ... all of it. I wish I could be healthy again, for just one month (I wrote day, crossed it out, wrote week, crossed that out). In one month I could finish my bucket list. No, two months. Yeah, two months. Peggy

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I hear you. I now take a variety of supplements and vitamins daily. Not sure what would work for your benefit but, Omega 3, 9, Magnesium, Iron, Potassium, Turmeric and a Multivitamin are all something to look at possibly aiding and/or soothing some pains. It works for me and my Chronic Lymes and lifelong Depression. Hope this helps

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pfbacon | @pfbacon | Oct 19, 2021

Whew, that's one thing I don't have (I'm a comedian professionally and the class clown among my friends). I wish you all the best with your depression. Does Mayo have a department for that? Peggy

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oldkarl | @oldkarl | Oct 20, 2021
In reply to @organizingkaos "I had to to leave a post for you on this. This is the exact thing..." + (show)
@organizingkaos

I had to to leave a post for you on this. This is the exact thing that happened to me when I contracted Lymes Disease. I had a ridiculously painful growing skin rash that hurt with a light breeze. I couldn't sleep or even lay down! I didn't think it was Lymes because I had not seen any bites. Come to find out, a rash can occur anywhere. Not necessarily at a bite. I had been so careful for years as a Landscaper. I forget the name of the Antibiotics I had been perscribed but, they helped with the rash and the unbearable pain. I can't tell you this is a result of Lymes but, it's something to consider. Hope this helps

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Another possibility (even a likelihood) is Clarkson's Disease (CALR). It is a vascular disease. The vessels (mostly capillaries) just under the skin of any part of the body, including organs (spleen, lung, etc.--Same as Gelsolin (GSN) rupture and bleed into surrounding tissue. Rare, but not as rare as many would-be doctors guess. oldkarl

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organizingkaos | @organizingkaos | Oct 20, 2021

It's hard to get the treatment needed in some cases. Especially if a Doctor doesn't know what they don't know. We put so much trust in our diagnosis and course of treatment. I believe that every ailment has a remedy. We just need the right treatment.

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pitepalten | @pitepalten | Aug 24, 2023
In reply to @pitepalten "Thanks. Feels exactly like a bad sunburn all my whole body. Makes it impossible to sleep..." + (show)
@pitepalten

Thanks. Feels exactly like a bad sunburn all my whole body. Makes it impossible to sleep more than a couple of hours.

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This all went away after 1.5 years. I have no idea why.

I have all the pill bottles to remind me of those terrible days. It could have been related to Covid.

I am so lucky. Hopefully others will be as lucky. I also hope it will not come back one day.

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