Tortuous colon diagnosis and diarrhea for months? help

Posted by shortiseltzer @shortiseltzer, Oct 10 10:13pm

I’ve been dealing with weight loss, diarrhea, bloating, gas feeling full and acid buildup. I had my first colonoscopy/ upper endoscopy and it revealed that I have a torturous colon.I’m currently taking anti diarrheal, acid reducer and nausea meds as needed.
I’m very interested to hear about what foods are easier with this issue/ issues. I have not had much luck with most foods except bland.

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@slkanowitz

A torturous redundant colon can cause diarrhea if your bowel get so full of stool that liquid stool is forced around the hard stool that cannot be passed. This causes weight loss because you cannot eat when your G.I. tract is so full. that’s what makes you feel so bloated and uncomfortable. A CT scan will show a large stool burden, if that is the case. A colonoscopy does not show this since you’re cleaned out prior to the procedure.

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slkanowitz,
Really ‼️You're really good at explaining this 💩👍. I have had to ask for x-rays every few months, all showed mild to heavy fecal loads...my GI acted as if this was perfectly normal.(idiot, he's obviously never been 💩💩for years). Your explanation is exactly what happened when I was told, no obstruction issues, because I was so concerned I quit eating...then 3 months later, with only light solids I ended up in the ER. Maybe I will just quit all solid food and only drink. 🍷🥂, too bad I don't drink any alcohol, I can't stand the taste. ShelleyW

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@researchmaven

I hope the MD finds a fix. If they do not, try changing how you eat if you haven't already. A liquidy diet for most meals helps me (I eat a lot of thin but nutritous, high protein hot cereals, smoothies and soups). Plus an extremely limited diet, which I believe is unique to me. While trying to find out what to do, I lost 25 lb and became underweight. I am now normal weight. Good luck and there is hope!

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researchmaven,
👍 yes, I must eat small portions. I also have celiac, so I have gotten creative with hot rice cereal made with protein drink, instead of milk. We could probably compare diets, see who has the most bland and boring 🙄ShelleyW

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@shelleyw

researchmaven,
👍 yes, I must eat small portions. I also have celiac, so I have gotten creative with hot rice cereal made with protein drink, instead of milk. We could probably compare diets, see who has the most bland and boring 🙄ShelleyW

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Shelley I love your sense of humor! It’s the only way to deal with this stuff and maintain some sanity at the absurdity of it all! Your little emojis are so cute and appropriate 😀 you make me feel happy that I can make some sense of these dilemmas that bewilder us!

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For the acid excess, avoid citrus, caffeine, alcohol, acidic foods like tomato, vinegary salad dressing, etc. Creamy, non spicy foods are best. Then keep an arsenal of otc PPI like omeprazole or Nexium, a histamine 2 blocker like pepcid, and a chewable antacid tablet for purse and liquid antacid for nighttime GERD. The NSAIDS like ibuprofen and naproxen are bad culprits for excess stomach acid so use sparingly with food or milk. You can take all 3 meds if needed, listed strongest to weakest but the antacids work the fastest. . See your doctor if those things don’t work or persist over two weeks. Spring and fall are ulcer seasons for some reason. 😟

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@shelleyw

viscats,
A couple of options:
1. At 70, we aren't worth the time and effort of the medical community, so we just wait for THE permanent solution.🤪😱jk
2. Decide what hurts the most for you, research and document everything.
3. Join groups like this, and keep asking questions, in vivid detail, using different wording, until you get what you need.
4. Decide to just live with a problem. I have had to do this, for example, with my OMG migraines. I no longer care what the cause(s) are, just treat the symptoms. My chronic 💩💩pain, 17 years of tests and "miracle drugs" that have no effect on me. So, I buy miralax in bulk and pray for the diarrhea to kick in. I should have bought stock in miralax years ago... at least I'd be a rich person, full of 💩💩😳
5. Get a boxing bag and put a drawing of your pain on it, then punch 🥊 it out, til you are too tired to care. I did this.
Ain't getting old the pits‼️‼️
ShelleyW

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I understand all you said. I never thought I’d be so nothing!
Vicki

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@shelleyw

researchmaven,
👍 yes, I must eat small portions. I also have celiac, so I have gotten creative with hot rice cereal made with protein drink, instead of milk. We could probably compare diets, see who has the most bland and boring 🙄ShelleyW

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I could join you in the boring bland very limited diet as well. Stupid 💩 issues

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@vicscats

I understand all you said. I never thought I’d be so nothing!
Vicki

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viscats,
You, we, are NOT nothing..... but the course in med school that teaches:
Human compassion: To be a good doctor you MUST treat the whole patient as a person, not just an illness....has been removed completely from med school. Most of our medical professionals have turned to practicing this seriously flawed method...🤯🤬and we pay the highest emotional and physical toll for this huge failure.
Hey, everyone else gets to go on strikes to protest for wages and benefits, wouldn't it be stupendous if we could all go on strike, stop paying our premiums , do you think if our doctors were paid for their "cured patient care ", they might pay attention to how much they are hurting us all 👿 oops, I am ranting, I think I should go to bed now . ShelleyW

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@misssuezq

I could join you in the boring bland very limited diet as well. Stupid 💩 issues

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misssuezq,
FABULOUS....you can be one of the charter members 👍🤪 👎🏼 I couldn't decide if this is a good thing or a bad thing.
ShelleyW

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@slkanowitz

Shelley I love your sense of humor! It’s the only way to deal with this stuff and maintain some sanity at the absurdity of it all! Your little emojis are so cute and appropriate 😀 you make me feel happy that I can make some sense of these dilemmas that bewilder us!

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slkanowitz,
YAY! Thanx for your kind comment. You explained something to to me and I helped you with a moment of smile, I am going to try and make my thick dumb brain, see and remember this as a plus ✅ in the success column. ShelleyW

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@shelleyw

researchmaven,
👍 yes, I must eat small portions. I also have celiac, so I have gotten creative with hot rice cereal made with protein drink, instead of milk. We could probably compare diets, see who has the most bland and boring 🙄ShelleyW

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Ditto on small portions. Comparing cereal plans, I use (because I have to) LiveKuna plantain flour for my hot cereal. I cook it with liquid egg whites, pea protein isolate powder and Lactaid milk and water. 100% Stevia to sweeten. I change it up with the spices and flavorings I can tolerate. I make it a variety of ways. The longer I do this, the easier it gets.

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