Anyone else have a Redundant / Tortuous Colon?
Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.
My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne
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emo, I understand the cramps and bloating. For a long time I was using the Metamucil powder with the miralax. Recently my hubby purchased Metamucil gummies. WOW, they are much better for me. I take 5 at evening with my miralax, I take about an hour to get it all done. This has helped a lot. The bloating and cramping was getting worse, 🤮🤮 6x , felt like a gallon of fluid came out. I nearly fell asleep at the toilet. ShelleyW
Shelley,
Thank you for mentioning this as I also do Miralax and Metamucil and don’t like the feeling I get after taking it.
Thank you for the kind suggestion Shelley. I'll try that! And yeah, I've avoided Metamucil because of the bloating. Miralax is enough to take with water.
I have tried Linzess with no change. I take Motegrity now which is supposed to help with motility. I don't get things moving until I take some Dulcolax. I don't like to have to do that. It is a little more gentle than mag citrate, but not much. With CIC, it's kind or all or nothing.
Thanks again Shelley! Joe
Thanks! I’m glad you find a combo that worked for you. Took a look at the Metamucil gummies and not sure it would work for me because I see the fiber source is inulin/chicory root fiber, which I have a lot of problems with. It’s very high FODMAP (a fermentable carbohydrate so it causes gas) and maybe that’s why? I didn’t realize Metamucil had sooo many products!
Magnesium citrate powder works for me and pretty quickly. 1/2 teaspoon in water will do it in a short time. If not, take more.
heyjoe415,
I have the Motegrity too. I have only used it 2x, month apart, the headaches stopped me dead. I have chronic complex migraines that respond to only home injections and Valium.
Do you get the headaches? If yes, how do you treat them? What time of day, food/no food, anything else you can recommend for me to tamp down the headaches, so I could use the Motegrity. Thanx, ShelleyW
@mikaylar- thank you for input. I will check it out.
Hi Shelley,
Sorry I can't really help you as I don't get headaches from Motegrity. I take them in the morning without food, if that helps.
I really don't think these high-priced drugs do much for CIC. I have to use the stimulant Dulcolax, and I don't recommend that. I don't know what else to do because, for me, the alternative isn't acceptable.
Joe
I’m miserable too when I overeat. 😞
Hi Missuezq, I replied to your private message on this -- ResearchMaven