Anyone else have a Redundant / Tortuous Colon?

Posted by onaquest @onaquest, Nov 7, 2018

Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.

My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne

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Profile picture for emo @emo

I’m glad the Miralax worked for you. It caused cramping for me 😆. But I have POTS and visceral sensitivity so that could be why.

I take the magnesium citrate supplement, so in a capsule or tablet form, which is much less concentrated and intended to be used as a dietary supplement. But you’re right, the liquid form is a very strong laxative and not meant to be used regularly.

I’ve taken magnesium glycinate for sleep. I didn’t notice too much of a difference. My dietician told me it doesn’t have as much of a laxative effect because of the way it’s formulated whereas magnesium citrate draws more water into the colon, so that’s why it can help with constipation.

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emo, I understand the cramps and bloating. For a long time I was using the Metamucil powder with the miralax. Recently my hubby purchased Metamucil gummies. WOW, they are much better for me. I take 5 at evening with my miralax, I take about an hour to get it all done. This has helped a lot. The bloating and cramping was getting worse, 🤮🤮 6x , felt like a gallon of fluid came out. I nearly fell asleep at the toilet. ShelleyW

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Profile picture for shelleyW @shelleyw

misssuezq,
I also have finally found that Metamucil gummies work SOOOO much better for me. I had not realized how bad the powder was bloating me up. Until I finally realized it after a sudden vomiting episode, 6 big 🤮🤮, it felt like I puked up a gallon of fluid. I can drink the miralax and eat the gummy's slowly, I think this works better for me. ShelleyW

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Shelley,
Thank you for mentioning this as I also do Miralax and Metamucil and don’t like the feeling I get after taking it.

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Profile picture for shelleyW @shelleyw

heyjoe415, I have found that adding 5 Metamucil gummies with the Miralax actually makes a difference, a bit more often, not perfect by any measure, but it helps. I still take the Trulance (Linzess), but I don't think it's really very effective, but when our 💩💩is as bad as it is for all of us, you take anything. For me, the gummies (5 evening's) are definitely better than the powder. The powder bloats me up SOOOO bad, I can't even breathe deeply or walk without feeling like I need to support my stomach with my hands. ShelleyW

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Thank you for the kind suggestion Shelley. I'll try that! And yeah, I've avoided Metamucil because of the bloating. Miralax is enough to take with water.

I have tried Linzess with no change. I take Motegrity now which is supposed to help with motility. I don't get things moving until I take some Dulcolax. I don't like to have to do that. It is a little more gentle than mag citrate, but not much. With CIC, it's kind or all or nothing.

Thanks again Shelley! Joe

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Profile picture for shelleyW @shelleyw

emo, I understand the cramps and bloating. For a long time I was using the Metamucil powder with the miralax. Recently my hubby purchased Metamucil gummies. WOW, they are much better for me. I take 5 at evening with my miralax, I take about an hour to get it all done. This has helped a lot. The bloating and cramping was getting worse, 🤮🤮 6x , felt like a gallon of fluid came out. I nearly fell asleep at the toilet. ShelleyW

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Thanks! I’m glad you find a combo that worked for you. Took a look at the Metamucil gummies and not sure it would work for me because I see the fiber source is inulin/chicory root fiber, which I have a lot of problems with. It’s very high FODMAP (a fermentable carbohydrate so it causes gas) and maybe that’s why? I didn’t realize Metamucil had sooo many products!

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Profile picture for misssuezq @misssuezq

I have a redundant colon with chronic constipation. As many of you experience just when you figure out a way to help your constipation, it stops working. I’m looking for a new way and want to try magnesium but wasn’t sure if others on here recommend magnesium or magnesium citrate. I welcome your comments.

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Magnesium citrate powder works for me and pretty quickly. 1/2 teaspoon in water will do it in a short time. If not, take more.

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Profile picture for heyjoe415 @heyjoe415

Thank you for the kind suggestion Shelley. I'll try that! And yeah, I've avoided Metamucil because of the bloating. Miralax is enough to take with water.

I have tried Linzess with no change. I take Motegrity now which is supposed to help with motility. I don't get things moving until I take some Dulcolax. I don't like to have to do that. It is a little more gentle than mag citrate, but not much. With CIC, it's kind or all or nothing.

Thanks again Shelley! Joe

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heyjoe415,
I have the Motegrity too. I have only used it 2x, month apart, the headaches stopped me dead. I have chronic complex migraines that respond to only home injections and Valium.
Do you get the headaches? If yes, how do you treat them? What time of day, food/no food, anything else you can recommend for me to tamp down the headaches, so I could use the Motegrity. Thanx, ShelleyW

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Profile picture for mikayla @mikaylar

Magnesium citrate powder works for me and pretty quickly. 1/2 teaspoon in water will do it in a short time. If not, take more.

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@mikaylar- thank you for input. I will check it out.

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Profile picture for shelleyW @shelleyw

heyjoe415,
I have the Motegrity too. I have only used it 2x, month apart, the headaches stopped me dead. I have chronic complex migraines that respond to only home injections and Valium.
Do you get the headaches? If yes, how do you treat them? What time of day, food/no food, anything else you can recommend for me to tamp down the headaches, so I could use the Motegrity. Thanx, ShelleyW

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Hi Shelley,

Sorry I can't really help you as I don't get headaches from Motegrity. I take them in the morning without food, if that helps.

I really don't think these high-priced drugs do much for CIC. I have to use the stimulant Dulcolax, and I don't recommend that. I don't know what else to do because, for me, the alternative isn't acceptable.

Joe

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Profile picture for dedhambeth @dedhambeth

I am 58 and had issues as a child as well. Just dealt with it as a young person. In the last few years it has gotten worse. I found out I have a hiatal hernia as well as the redundant colon. The one thing I have found that works best is not eating until 10:00ish in the morning. Water first thing then sitting with hot coffee for a while in the morning almost always works for me. Staying away from bread products has also seemed to be beneficial. Lots of home cooked meals rather than processed and eating slowly and stopping as soon as I feel full definitely helps. When I over eat I am miserable.

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I’m miserable too when I overeat. 😞

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Profile picture for misssuezq @misssuezq

Ok so I guess that wasn’t as easy as I thought it would be. I couldn’t find your blog. I searched on this sight and did an internet search. Would you please help direct me to it.

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Hi Missuezq, I replied to your private message on this -- ResearchMaven

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