Tongue issues with Sjogren's or neuropathy?

Hi @robertjgoldenjr, You will notice that we added to your discussion title to better describe your question and hopefully bring members into the discussion. I'm tagging fellow members like @athenalee @rexsan20 @cmtg @ninette @lilymol @dancing1 @no1likemo @jetsetter @anniemaggie @curlyq @aalbb and others who have experience with Sjogren's syndrome and may share this same symptom.

You may also wish to join these related discussions:
– Sjogren’s Syndrome – Introduce yourself and meet others https://connect.mayoclinic.org/discussion/sjogrens/
– Burning Mouth Syndrome (BMS): Anyone found any relief?: https://connect.mayoclinic.org/discussion/burning-mouth-syndrome-2/

I did find the following research from 2017 that mentions a possible connection:
-- Is it Sjögren’s Syndrome or Burning Mouth Syndrome? Distinct pathoses with similar oral symptoms:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6025751/
Have you discussed the symptoms with your doctor?

Hi Robert,

I have Sjogren’s. I have lots of neuropathy (tingling, numbness, strange feelings) in my feet. Not painful, but still troubling!

I highly recommend you sign up to the Smart Patients website.
https://www.smartpatients.com/conversations
There are many Sjogren’s patients and a Dr who has Sjogren’s who all help with figuring out how to deal with the many manifestations of this disease.

I hope you can get some help! It’s a challenge…..

Before diagnosis and several years after I had a burning tongue, numbness in half of the inside of my mouth and trouble swallowing. Trouble eating anything hard or crunchy. Could not stand to go to the dentist and had to get special toothpaste. Slowly improved but still have trouble eating some things.

Thank you i will sign up.