TKR revision surgery and problems

Posted by szqyoung @szqyoung, Jan 17, 2019

I fell and hurt my knee in March 2017. MRI showed meniscus damage. DR did surgery to repair meniscus in June of 2017 - removed most of left meniscus and removed affected area of right meniscus. Knee continued to swell and was very painful. Tried more PT, cortisone shot = no improvement. Had a TKR on 9/26/17. Right after surgery my knee would buckle while still in the hospital. DR said PT would take care of it. Knee continued to swell and buckle and be painful. In December of 2017 I returned to DR and he ordered more PT. Unsuccessful in correcting buckling, swelling and pain. DR did revision surgery on 2/19/18 - replaced 4mm liner with 10mm liner. Buckling greatly improved, however, I still have pain, kneecap pain, swelling and stiffness. Returned to DR and he said that recovery can take a year and to continue to elevate and ice my knee as needed. I’m now 11 months out from the revision surgery and am no better off. My regular Dr did X-rays and bone looks good. 2 years of limping has caused tendon issues in my hip (hip MRI done in Dec). Before the original injury I walked 3 miles every day. I’m now lucky to walk 1 mile without stiffness, pain and swelling. Consequently I’ve put on a lot of weight. I’m 69 years old, frustrated, fat and wondering what, if anything can be done. My yellow lab is also frustrated with my lack of mobility:-)

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@doodles418

I have learned so much from the Joint Replacements discussion group since having my bilateral TKR's. I've learned recently that I may have to have a revision on the right knee due to a poor sizing fit (too big). I would like to connect with any revisions out there and ask for any insights and how was the recovery? Did you feel you were better off after the revision?

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The Conformis customized knee replacement is the only way to go in my opinion. Had mine done two years ago and it's like my knee is was when I was young! Honestly! It only makes sense....

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@jeffkirc

The Conformis customized knee replacement is the only way to go in my opinion. Had mine done two years ago and it's like my knee is was when I was young! Honestly! It only makes sense....

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@jeffkirc Do you also happen to be in the Boston area? I had the advantage of having mine down by Dr. Fitz, one of the developers of the Conformis knee. He gives you choices of course, to do otherwise would be a conflict of interest, but who wouldn't choose the Conformis? I figured he would really want that to work well since his reputation is a stake, and I have been very happy with it. I wish I had my first one done by him too. He really is a lovely man. I like him a lot.
JK

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I have learned so much from the Joint Replacements discussion group since having my bilateral TKR's. I've learned recently that I may have to have a revision on the right knee due to a poor sizing fit (too big). I would like to connect with any revisions out there and ask for any insights and how was the recovery? Did you feel you were better off after the revision?

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Hi @doodles418,

I’m so happy to know that you’ve found support from the incredible members on Connect! You may notice that I moved your message and combined it with this existing discussion as I thought it would be beneficial for you to connect with members who are discussing TKR revisions.
If you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members talking about their or their loved ones' experiences.
Do you know when you might have the procedure?

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@contentandwell

@jeffkirc Do you also happen to be in the Boston area? I had the advantage of having mine down by Dr. Fitz, one of the developers of the Conformis knee. He gives you choices of course, to do otherwise would be a conflict of interest, but who wouldn't choose the Conformis? I figured he would really want that to work well since his reputation is a stake, and I have been very happy with it. I wish I had my first one done by him too. He really is a lovely man. I like him a lot.
JK

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No I live in Woodbury Minnesota a suburb of St Paul Minnesota. My surgeon was Doctor Weiss and he also did a terrific job. Yes I'm a firm believer in the conformis knee, it was initially suggested by my orthopedic surgeon and after discussion with him and a little bit of independent research I decided this was the only way to go. I understand that there is some hassles with MRI insurance reimbursements but even if I was not reimbursed I would have paid out of pocket due to the fact of the implant was such a successful outcome for me and like I mentioned before makes total sense, a customized joint...

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@jeffkirc I was surprised but very pleased that Medicare and my excellent supplement paid the whole bill. That's such a relief when you are on a limited retirement income.
JK

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@contentandwell

@jeffkirc I was surprised but very pleased that Medicare and my excellent supplement paid the whole bill. That's such a relief when you are on a limited retirement income.
JK

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For sure, and you really never know until the final bill comes!

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@ellerbracke

There have been a few mentions here and there about wrong size artificial knees. I am curious how exactly one determines that..... what are the specific problems that occur, and how do you zero in as the size of the replacement knee being the culprit?

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@contentandwell I had bilateral Jan 2019. MUA Feb 2019. Active, healthy, 125lbs, 61 yr old. No health issues at all other than bad knees. Should have been an excellent candidate for surgery. After the manipulation things never got better. I was diligent with PT at home and I still go once a week at 6 months post op. By April I felt frustrated and so did my PT's with the little progress I was making. The pain was unbearable, still is. I still can't walk very well, people tell me it's painful to watch me walk. I can't stand for more than 10 minutes due to pain. At 5 months my surgeon said "just part of recovery". My PT's didn't agree and suggested a second opinion. It was with a top surgeon who specializes in failed implants and revisions. He said they appear to be too big for me, along with knee caps that were not placed back properly. I have 3 different sizes ranging from 3-5 in the surgical notes. 2 nd opinion Dr. suggested revision on right femur that is a size 5, tibia size 4, he could shave the plate and use the tibia implant. On my left knee I have a 4 femur and 3 tibia, so not as big nor as painful, but still not the right fit. He said to revise right and if I was pleased with the outcome I could consider the left or just live with it. I asked about custom fitting before surgery and was told no one in the area did that, would have to travel out state. I'm trying to decide how long to wait, Dr said within 18 months (which would be 24 months post op). The pain and rehab are still pretty fresh with me, so I want to know if those that had revisions were satisfied with outcomes.

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@kanaazpereira

Hi @doodles418,

I’m so happy to know that you’ve found support from the incredible members on Connect! You may notice that I moved your message and combined it with this existing discussion as I thought it would be beneficial for you to connect with members who are discussing TKR revisions.
If you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members talking about their or their loved ones' experiences.
Do you know when you might have the procedure?

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I'm trying to decide when. Hoping to get insights with this group. Thank you for your reply.

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@doodles418

@contentandwell I had bilateral Jan 2019. MUA Feb 2019. Active, healthy, 125lbs, 61 yr old. No health issues at all other than bad knees. Should have been an excellent candidate for surgery. After the manipulation things never got better. I was diligent with PT at home and I still go once a week at 6 months post op. By April I felt frustrated and so did my PT's with the little progress I was making. The pain was unbearable, still is. I still can't walk very well, people tell me it's painful to watch me walk. I can't stand for more than 10 minutes due to pain. At 5 months my surgeon said "just part of recovery". My PT's didn't agree and suggested a second opinion. It was with a top surgeon who specializes in failed implants and revisions. He said they appear to be too big for me, along with knee caps that were not placed back properly. I have 3 different sizes ranging from 3-5 in the surgical notes. 2 nd opinion Dr. suggested revision on right femur that is a size 5, tibia size 4, he could shave the plate and use the tibia implant. On my left knee I have a 4 femur and 3 tibia, so not as big nor as painful, but still not the right fit. He said to revise right and if I was pleased with the outcome I could consider the left or just live with it. I asked about custom fitting before surgery and was told no one in the area did that, would have to travel out state. I'm trying to decide how long to wait, Dr said within 18 months (which would be 24 months post op). The pain and rehab are still pretty fresh with me, so I want to know if those that had revisions were satisfied with outcomes.

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Wow @doodles418 - Your recovery journey sounds like a nightmare. I am so impressed that you are being so methodical in continuing your PT, getting the 2nd opinion(s) and evaluating your options. I've had two TKR's and never knew that the patient had to worry about size. In fact, I have no idea what size mine are. My last TKR was January and I can only imagine how discouraging it must be to be this far post-op and still dealing with pain. It sounds as if you are thinking of getting a revision in January 2021 - and wondering if you can do it sooner. Is that correct? I can see why you would want to get relief sooner rather than later. Wishing you the best.

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