Tips wanted for post surgery

Posted by suzieqqqqq @suzieqqqqq, Sep 3 9:57am

Hubby is scheduled for radical prostatectomy next week; we have a 5-hour ride home the day after. Haven’t received any guidance from facility as to what to wear, how to manage trip home, and safely managing the first several days. Can I ask for your most useful tips please? Thank you!!

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

Suzie I myself would talk to doctor and ask max amount of pain med to get home also nausea medication. I had dry heaves @ a hour after I was awake from surgery, that hurt. I was very miserable and should have been using pain medication more often. I ended up using 16 of the 30 pill I was given but looking back I wish I would have taken more especially first few days after. Again ask doctor about nausea medication. Hopefully your husband will be one of to many that go through this much easier than I did. I have no regrets and fully confidence I made correct decisions to have surgery. 15 months after and zero psa yeah. I don’t think I could have made it through without my wife. She was right there to help with everything I was so thankful for her. Your support for your husband is showing and both of you will do great.

REPLY
@jasonfarmer

Suzie I myself would talk to doctor and ask max amount of pain med to get home also nausea medication. I had dry heaves @ a hour after I was awake from surgery, that hurt. I was very miserable and should have been using pain medication more often. I ended up using 16 of the 30 pill I was given but looking back I wish I would have taken more especially first few days after. Again ask doctor about nausea medication. Hopefully your husband will be one of to many that go through this much easier than I did. I have no regrets and fully confidence I made correct decisions to have surgery. 15 months after and zero psa yeah. I don’t think I could have made it through without my wife. She was right there to help with everything I was so thankful for her. Your support for your husband is showing and both of you will do great.

Jump to this post

Oh man, sorry you had such a rough time but loving the zero pSA!! Thanx for the advice, have put it on the list.

REPLY

I would ask surgery place if they have any after surgery care sheets? Most do . Keep in close contact with the hospital , and watch for any signs of infection ( like temperature ) . Having lots of pain med is a good idea . Maybe Oxycodone , like I had . Dont get too behind on the pain curve , always take a pill before pain comes , every 6-10 hours usually . He will need lots of help and im sure you will do great ! Tell us how everything goes . Keep positive and try and get him to walk around and be active if he at all can . God Bless ! James on Vancouver Island .

REPLY
@jasonfarmer

Suzie I myself would talk to doctor and ask max amount of pain med to get home also nausea medication. I had dry heaves @ a hour after I was awake from surgery, that hurt. I was very miserable and should have been using pain medication more often. I ended up using 16 of the 30 pill I was given but looking back I wish I would have taken more especially first few days after. Again ask doctor about nausea medication. Hopefully your husband will be one of to many that go through this much easier than I did. I have no regrets and fully confidence I made correct decisions to have surgery. 15 months after and zero psa yeah. I don’t think I could have made it through without my wife. She was right there to help with everything I was so thankful for her. Your support for your husband is showing and both of you will do great.

Jump to this post

After surgery I did not get to zero . It was down there at 0.03 or so and started to climb over the next two years very slowly . So 1 year ago I got 22 sessions of external beam ( EBRT) . The radiation took about 7 months to work , but so far has taken it down from 0.14 , then 0.072 , and then 0.056. The trend is my friend ! My wife is Filipina and a ex nurse , so I had compassion and lots of help . she just showed her love in so many way . I was so grateful . God Bless . James on Vancouver Island .

REPLY
@retireditguy

Here's a few ideas -- cheap velcro breakaway gym pants so you can easily get to whatever you need to without pulling his pants down; box of thin latex gloves and alcohol wipes so you can keep things sterile without easy access to a sink to wash your hands; an empty gaterade bottle or something with a tight lid so you can empty the bag (if necessary) without dragging him into a restroom; if he's using the larger overnight bag, maybe have a cheap dollar store plastic bucket so it doesn't have to lay on the car floor; OTC antibiotic gel to lube the catheter tube by the penis (a recommendation I got from my health care team); a trash bag and roll of paper towels in case there's any spillage if the catheter tube catches and pulls out of the bag; a disposable pad or plastic liner for the car seat so if there's an accident the seat doesn't get drenched; a clamp to clamp off the catheter tube if you need to change bags; I'd probably travel with the overnight catheter bag as the day bag fills up pretty fast; as my health care providers told me frequent stops so he can walk around to reduce likelihood of blood clots; as others said, lots of pillows and such so he can get comfortable; water and whatever meds he's prescribed so he can take them on schedule; maybe a change of clothes if he does have an accident and get's soaked; some kind of screen or paper and tape to block the sun if it's coming in the car window and shining in his face. The only other comment I'd make is that my wife and I had a 6 hour drive to where I had my surgery done. We also struggled with whether to drive home or just stay in a hotel next to the hospital for the week the catheter was in. We finally decided to just stay there. But the cost was affordable and the deciding factor was it took the pressure off my wife if something had happened (either medically to me or a car issue on the drive home). Nothing did happen, but we don't regret staying at the hotel. I think staying just another day at the hotel might be advisable as you're adjusting to the routine of having a catheter and frankly just giving yourself some time to see how he's doing. Just my 2 cents. I am not a medical professional nor do I have any special expertise in all this. Best of luck!

Jump to this post

I'd like to echo the break away pants. You can get them on amazon. They are super helpful. In my case (4 weeks ago), on the nurse's recommendation, I didn't even wear underwear leaving the hospital and I'm glad for that decision - it made accessing the catheter much easier. When I got home, I cut a slit in a few pair of boxers for that same reason. I also want to echo the small bucket to carry around the bag (and recommend only using the overnight bag; the other is too small and fills too fast). The bucket provides a handy way to carry the bag and also protects the bag from getting moved, stepped on, etc. To empty the bag on the go (or even in the house), my wife used a fresh 1 gallon ziplock bag. That turned out to be brilliant - easy to use and no spills. My personal preference would be to stay an extra 2 days in the hotel, but everyone is different.

REPLY
@vancouverislandhiker

I would ask surgery place if they have any after surgery care sheets? Most do . Keep in close contact with the hospital , and watch for any signs of infection ( like temperature ) . Having lots of pain med is a good idea . Maybe Oxycodone , like I had . Dont get too behind on the pain curve , always take a pill before pain comes , every 6-10 hours usually . He will need lots of help and im sure you will do great ! Tell us how everything goes . Keep positive and try and get him to walk around and be active if he at all can . God Bless ! James on Vancouver Island .

Jump to this post

Thanx James — good ideas to add to my list!

REPLY
Please sign in or register to post a reply.