Tinnitus

Posted by 19465 @19465, Jun 23, 2023

Has anyone found anything that helps with tinnitus in long covid? Tinnitis started this past week. I’ve found very limited knowledge in the medical resources where I live on any long covid issues. High pitched sound in ears/head.

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Yes, long COVID and many medications. Anyone gone to an ENT specialist?

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I have the same. Doctor said old age but I’m convinced it’s long Covid.

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@wendyhobbie

Yes, long COVID and many medications. Anyone gone to an ENT specialist?

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I have been to eight different ENTs. They have no idea what’s going on. All eight had different
(Or no) diagnosis. My ear issues started after Covid. I lost some hearing in both ears. The first ENT blamed age, and put me in hearing aids. That helped for awhile, but over time I have developed tinnitus and hyperacusis. I also feel fullness and pressure in my ears and head.
Finally an ENT suggested balloon inflation of my Eustachian tubes. I had high hopes for that procedure, but if anything it has made the situation worse.
I’m now looking into Lenire for tinnitus, but when I asked my Audiologist he knew nothing about it! Disappointing when the so-called experts don’t stay up to date in their own field!
It all falls on the patient to try to find help when you are feeling so terrible already. It isn’t right, but that is our situation.
If anyone out there has tried Lenire, please let us know what you think of it.

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I have your exact symptoms post-covid but more pronounced due to severe vestibulopathy (including vision distortions). I did have this oily ointment called Otocalm that wasn't prescribed by an ENT (like you ive been to more than 10). It did not eliminate it completely but it reduced the Tinnitus and made it more manageable

hope this helps

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I also developed tinnitus and hyperacusis post COVID. I am curious about the Otocalm, and would appreciate more information.

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I will outline my experience in hopes it might help

Basically out of desperation (I have severe symptoms) I was doing guess-work with medications & vitamins and came across otocalm (it is usually given for external infections).

For those who don't know, usually with intense vestibular attacks and dizziness (idiopathic or not), cortisone injections are administered. I did take the injections and surprisingly the ointment (which contains cortisone) was much more effective for the tinnitus. I am guessing the medication is absorbed direcly into the ear canals/brain nerves. Below timeline

Month 1: Took Cortisone injections during acute phase - was useless for my tinnitus
Month 2: Took Cortisone injections - was useless for my tinnitus
Month 4: Took cortisone injections - was useless for my tinnitus
Month 5: Tried ear spray - useless for my tinnitus
Month 6: Tried Otocalm for 2 weeks - immediately noticed difference ( after 2nd day)
Month 12: I take the ointment every 5 to 15 days depending on my needs

NOTE: A doctor did not prescribe this for me so please take at your own risk

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Where can I buy the Otocalm ointment? I can only find the Otocalm drops. Do you put this in your ear? I’m willing to try anything.

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I’m finding Otocalm pills, but not an ointment. Can you provide more information on where to buy?
Thanks.

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@hypofunction

I have your exact symptoms post-covid but more pronounced due to severe vestibulopathy (including vision distortions). I did have this oily ointment called Otocalm that wasn't prescribed by an ENT (like you ive been to more than 10). It did not eliminate it completely but it reduced the Tinnitus and made it more manageable

hope this helps

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How are your other symptoms? Has anything else improved? I’ve been in this for over two years and very discouraged. My vision is also effected.
When hearing and vision and balance are all involved it’s impossible to live anything like a normal life.
I’m looking for Otocalm, but only found pills. Where did you buy?

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@dloos

I have been to eight different ENTs. They have no idea what’s going on. All eight had different
(Or no) diagnosis. My ear issues started after Covid. I lost some hearing in both ears. The first ENT blamed age, and put me in hearing aids. That helped for awhile, but over time I have developed tinnitus and hyperacusis. I also feel fullness and pressure in my ears and head.
Finally an ENT suggested balloon inflation of my Eustachian tubes. I had high hopes for that procedure, but if anything it has made the situation worse.
I’m now looking into Lenire for tinnitus, but when I asked my Audiologist he knew nothing about it! Disappointing when the so-called experts don’t stay up to date in their own field!
It all falls on the patient to try to find help when you are feeling so terrible already. It isn’t right, but that is our situation.
If anyone out there has tried Lenire, please let us know what you think of it.

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It's being recommended I see an ENT for tinnitus AND for hearing loss AND for excessive mucus after eating, all which occurred after I was sick for 10 days w/ COVID in March 2023. I want someone who sees me holistically not in pieces and parts for each part and then the recommendations do not coincide. (Case in point: podiatrist said cortisone cream for peeling heels; PCP said not daily even tho' it gets worse "just that fast".)

Do they all get referral 'points' or dollars for the many to whom we are referred?

Does everyone (other than me!) w/ Long COVID have easy time off and transportation? < -- yes that was snarky. I'm so tired of all the attempted coordination of this.

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