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Timeframe from PET scan to start of cancer treatment?
My husband received his diagnosis last week. Prostate Cancer, Gleason 3+4, PNI in one sample, cancer in 5 of 12 samples. He has his PSMA PET scan next Friday 6/29, and then will review results with doctor from Mayo on 7/5.
Curious as to how quickly others have started treatment after that PET scan results meeting. I am guessing that if it hasn’t spread he will be looking at a RALP or proton treatments. If it’s spread then a different path forward.
Any insight you can provide would be appreciated. He is quite anxious to either have the cancer removed or killed. It’s not mentally sitting well with him that he is walking around with active cancer in his body. Thank you for any insight.
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Thank you for sharing all this. I am glad you are doing well with your battle. It is a good reminder to live life to the fullest. Nothing is guaranteed.
What a great forum to hear from others. I thought I was alone in being disappointed in both my original Urologist and Oncologist/Radiologist attitudes and information being given.
I too chose what I thought was best for me in preventing as much collateral damage to surrounding organs and tissues not just what was being told to me as no difference. I wonder sometimes if these same oncologist/radiologist would chose photon over proton if it were them with prostrate cancer.
There are some new long term studies being done on pros/cons and outcomes on proton radiation versus photon (one is Mendenhall with thousands of participants). What gets me is what medical experts say one day then change. It was like smear tons of sun screen on you to prevent cancer only to find out the ingredients in the sun screen were causing cancer.
I do think we owe a lot to Mayo for having a forum like this. For those of you that can get to Phoenix and/or Rochester feel fortunate to be able to get proton and other updated treatments. Not all Mayo locations offer proton treatments and latest types of treatments.
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1 ReactionYes. On a recent webinar presentation a doctor showed a slide (I think it was Kwon from Mayo) that of 44,000 patients there were 2,200 treatment paths. Long story short, there isn't one size fits all for prostate cancer, and with new treatments becoming available, the overall treatment paths continues to increase. --- This is why I'm a firm believer in self-education and meeting your health team in the middle in terms of the decision making. That isn't to say this is the right approach for everyone, but it can help.