Time you took to process

Posted by gpigford @gpigford, Jan 19 3:37pm

So a little history. My wife sister died of Breast cancer 25 years ago. It was a second occurrence for her. Now my wife was diagnosed 2 weeks ago. Single tumor 3.5 cm stage 1. Genetically negative. No other signs of any spread. Doctor said we caught it early and suggested a lumpectomy. Fast forward 2 weeks, countless doctor appointments and mountains of information. All the research we found seems to put lumpectomy ver mastectomy on a level playing field.

It has been a crazy whirlwind of information. I know time is a concern. I would like to know how much time people took to process and decide a course of action. Lump ver mastectomy? Single v both, etc. while I don’t wish to add any more time than needed I also don’t want us making life decisions while very emotional and still a little confused. Also did anyone ask for second opinions or is that just a waste of value time

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hi ,, my cancer was in my right breast nipple ,stage 3 , i did a double mastectomy and kept it moving . No chemo , no radiation ..its 13 yrs and never felt sick 🙂

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I was diagnosed at stage 2 which was later determined to be stage 3. I made my decision 10 days after diagnosis, 2 tests, 1 doctor, one surgeon. I didn't have surgery for another 7 months because of drug treatment with an oncologist to shrink tumor first. Even with the extra time and additional tests, my decision did not change.

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@margerite

hi ,, my cancer was in my right breast nipple ,stage 3 , i did a double mastectomy and kept it moving . No chemo , no radiation ..its 13 yrs and never felt sick 🙂

Jump to this post

Any treatment?

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My diagnosis was on 11/21. I met with the surgeon on 11/23. While I was at the surgeon, I had signed the paperwork for a lumpectomy with radiation. Genetic testing on 11/26 (negative for markers but have 2 sisters that are 30+ year survivor and 4+ year survivor). Then came the research on the effect of radiation and red flags started waving as I learned of the effects of radiation on lungs, as I have a family history of idiopathic pulmonary fibrosis. I didn't want to hurt my currently healthy lungs. I was now seriously considering a mastectomy. So I requested a meeting with my surgeon, pulmonologist and the radiation oncologist. I was able to have a telehealth call with the surgeon and pulmonologist and express my concerns. While they didn't have the experience of the rates of pulmonary fibrosis that I had read about, they did hear my concerns and arranged for me to meet with my radiation oncologist. That meeting was so helpful. It gave me a such peace. I was then able to confirm the lumpectomy, which I had on 12/20. My tumor was 4mm with 8 mm margins with negative nodes. It is Estrogen and progestogen positive HER2- and negative nodes. So radiation begins on 1/30, 5 days a week for 3 weeks. The time it takes is very dependent on the growth of the tumor and treatments needed. This isn't a sprint but a marathon. Take the time you can to get the information the two of you need to help her make the decision.

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