TIL Treatment for Stage 4 Internal Body Melanoma...any Success?

Posted by darmitag @darmitag, Sep 19 12:02pm

In about 30 days, I will be receiving my own re-grown cancer T-Cells. This comes after chemo . Once my T-Cells are re-infused, I get the immune system boster drugs and I hopefully will be able to fighy off new cancer growth in my body and brain . Immunotherapy did not work for me after several months of trying 2 different therapies.

This is very new. Has anyone had sucess with this, or it did not work?

Interested in more discussions like this? Go to the Melanoma & Skin Cancer Support Group.

Susan, Volunteer Mentor | @grammato3 | Sep 23 2:20pm

@darmitag: Welcome to Mayo Clinic Connect! I'd have responded sooner with the red carpet roll-out but unfortunately the carpet was rolled up I was holed up in the hosptial myself with some unknown but suspected adverse reaction to immunotherapy for melanoma.

We're fortunate that we have such various options for treatment and I know TIL promises much hope as explained here: https://newsnetwork.mayoclinic.org/discussion/mayo-clinic-minute-what-is-til-therapy/

I don't personally know of anyone who has had it, so can you be our Ambassador? Seriously, if you could just check in from time to time after your treatment starts and let's us know how you're doing, I for one would would greatly appreciate it. Best of luck to you!

darmitag | @darmitag | Sep 23 4:45pm

Thsnk you for your reply. I would love to be an ambassador for this new approach . Not sure just when I get the til but we are hoping for late October or November. Feel free to reach out any time,

Susan, Volunteer Mentor | @grammato3 | Sep 23 5:32pm

@darmitag: You get the til, I'll extend the honorary title! It sounds a lot more complicated than straight immunotherapy so I'm curious to hear the details. Thanks for being open to sharing!

yasiraffan | @yasiraffan | 6 days ago

Hello @darmitag ,

Hoping you react well and fight off the cancer with til therapy.

My father is in similar situation(stage 4 melanoma), we have tried Immunotherapy (Nivolumb + ipilimubab) for 3 months now and the latest pet ct scan shows it is progressive.
My father has wild Braf gene, so the targeted therapy option is closed as well.

Wanted to check with you what other Immunotherapy you tried?