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Thyroid Cancer Group: Introduce yourself and connect with others
Welcome to the Thyroid Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with thyroid cancer or caring for someone with thyroid cancer. Let’s learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.
Feel free to browse the topics or start a new one.
Pull up a chair. Let’s start with introductions.
What type of thyroid cancer were you diagnosed with? What treatments have you had? How are you doing?
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Thinking of you this morning!
Just thinking of you this Monday Morning and wondering how you are feeling!?
I trust there is improvement!?
Bob
Have you joined the Facebook group? I also have MTC and that groups is everything. The group is:
Medullary Thyroid Cancer -MTC
I had a thyroidectomy May of 2011 at Mayo by Dr. Thompson. I have medullary thyroid cancer. I also had papillary in my tumor. I have had one tiny recurrence of disease. My endo at Mayo is Dr. Marius Stan and I love him. Any Medullary patients I encourage you to join the Facebook group Medullary Thyroid Cancer - MTC. Also read the books put together by MTC thyvers- After the Diagnosis and The Butterfly Sings.
HI EVERYBODY! my name is Elba, I live in Puerto Rico and have medullary thyroid cancer, diagnosed during 2007, TT same year, I am treated at MD Anderson, at this point I am stable after so many years and 3 surgeries (neck and head), taking a new medicine called Retevmo that is working very good to me. I participated on the medical trial, by then the name was Loxo but it was FDA approved this year during May I think.
HI! you are a meddie
fellow! I am also in the Facebook group and have participated with comments in our two books, I am kind of a veteran after 14 years leaving with MTC.
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1 ReactionHi -- I haven't been diagnosed with thyroid cancer. I had FNA for thyroid nodules in 2011 and 2013 that were both negative. I had annual follow up ultrasounds until 2018 and was advised to discontinue because ultrasounds had been clear for 5 years. In 2020, I had another thyroid ultrasound which didn't show much change. All nodules (and I have many) at that time were no greater than Ti-RADS 2. I just had a thyroid ultrasound this past week and had widespread changes. Most are TI-RADS 4 now and I have one TI-RADS 5. I am surprised that nearly all of the nodules have become suspicious for malignancy. Has that happened to others who had multiple nodules? I meet with my PCP next week to get FNAs scheduled. I've been educating myself this week on the types of thyroid cancer. I do have the RET mutation on genomic testing and so am quite concerned about medullary thyroid cancer.
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1 ReactionI was diagnosed with Papillary cancer that has metastasized to both lungs. Hundreds of small and larger cancers in each.
Had RAI, 175 with better results than expected.
Doctors would like me to do it again. I’m reluctant because I was originally told it could cause a secondary cancer elsewhere.
Hello, my son age 30 is diagnosed with anaplastic thyroid cancer in May, 2022. He had a 2 lb mass removed from his neck, thyroid was removed and another lymph node on his neck. He begins chemo and radiation this week but a second grape size mass is now growing close to the site of the mass. Any advice is greatly appreciated.
Hi, I'm Wendy from San Diego. I had three papillary cancer tumors in my thyroid in 2014. I'm doing well and take tirosint every morning. I have Lynch Syndrome and CHEK2.