Thyroid Cancer Group: Introduce yourself and connect with others

Hi Bob ! I am Annebee from Norway. I had my right thyoroid removed 18 may-21 and beacause of canser they removed my left in aug.18 -21.They found small traces of canser in the left too.Nothing in my lymps. I been very lucky and had no pain or sore.Started with 100 mg Levaxin and will have my first control 1 okt. then radioactiv iodine 10 nov.So i wonder why they wait with yous ? Hope you get better soon and i hope to hear what happens next.I know so little about the iodine treatment.

Hello @botts and welcome to Mayo Clinic Connect and this discussion.

Members like @daroca and @maureenelizabeth both were also diagnosed with Papillary Thyroid Cancer and are part of this discussion. I am hoping they may be able to help you with your question on soreness.

In the meantime, what is the dose of Levothroxine you are on?

I’m Bob, with Papillary Thyroid Cancer and Thyroidectomy Surgery May 17, 2021. We have taken a Wait and Watch approach and not done Radioactive Iodine.
Still a little sore hard to swallow. Will this ultimately go away?

Working on gettin the proper dose of Levothroxine.

Thanks.

It surely is confusing. It's a good question to ask your oncologist. A primary cancer may be treated differently that a secondary cancer (cancer that spread).

Hi Colleen, this all gets very confusing to me. I believe the lymphoma is a cancer all on its own, just as the prostate cancer was.

Oh, I understand now. The cancer behind his nasal area is actually metastatic thyroid cancer. Do I have that right? Is the lymphoma a second cancer diagnosis or also metastatic thyroid cancer?

Thank you for your response. I will also join the blood cancer group. He is getting R-Chop chemo treatments. They will end in Oct. then they will have to operate to remove the remaining thyroid tissue. I believe they call it metastatic because of his other two cancers. We were at Mayo this week and new CT and PET scans show the tumor behind his nasal area has shrunk. It also appears the cancerous thyroid tissue has shrunk a little. We will the surgeon about that when we return to Mayo on another trip.

Oh, Patty. Three cancers and seemingly unrelated. That is most definitely not the lottery you want your husband to win. You are good here in the thyroid cancer group. I also encourage you to join the Blood Cancers group here: https://connect.mayoclinic.org/group/blood-cancers-disorders/

You are in good hands at Mayo Clinic.

I'd also like to tag fellow members to join me in welcoming you and to share their experiences with you @jessea @bobr @nancirae @lindameyerson @sweetgia003 @jlanderson76 @ljcarper @aejohns @trod @sophia07 @maureenelizabeth @daroca

Patty, What chemo is Brian getting for NHL and when will he be done? Where has the thyroid metastasized to?

My name is Patty and my husband had been diagnosed with thyroid cancer 10 yrs ago. He had his thyroid removed at that time. He went to all follow up appts/tests. We thought all was good and the thyroid cancer was behind us. In January of this year he was diagnosed with prostrate cancer. We opted for a second opinion for how to address the cancer through Mayo Clinic in Rochester. Everyone there was wonderful and so he opted to have his prostrate removed by a Mayo surgeon. Since the cancer had not spread past the prostate to any other parts of his body, we thought cancer was once again behind us. However, in June of this year, we discovered he had a large tumor behind his nasal area, which was cancerous and was determined to be non-Hodgkin lymphoma. When they did a PET scan, they also found (and later confirmed) cancerous thyroid tissue. Apparently when his thyroid had been removed 10 yrs ago (not at Mayo) they did not get all of the tissue. Brian is currently undergoing chemo treatments for the non-Hodgkin, but once that is done, a surgeon at Mayo will have to operate to remove the metastatic thyroid cancer. I know we are at the best place possible for care right now, but I am so scared that the cancer issues are never going to end.

@colleenyoung I’ve been reading a lot on the benefits of either taking it in the morning or before bed and how certain foods containing calcium, magnesium, and fiber should be avoided within several hours of the dose. I wake up like clockwork around 2:00 so I figured that would be a perfect time to take it....nothing to interfere with absorption.