Thyroid Cancer Group: Introduce yourself and connect with others

Hi Annebee,

So nice to meet you… my dosage is at 200mg.

I did not have any Cancer outside the one Thyroid Node and non in the Lymphatic System.

We have chosen to hold off in the Radioactive Iodine and “Wait and Watch”. Close monitoring will be by blood work and Ultra Sound. If there is any signs of Cancer Cells or activity I will do the RAI.

The one drawback to the RAI for me was the 20% to 30% possibility of drying up the Salivary Glands although my Endocrinologist said the likelihood of that happening was lessened when a low dose of Iodine is used…under 100.

Thank again and I look forward to staying in touch.

Bob

200

Hello group. Recently diagnosed with micro papillary thyroid cancer right lower lobe. Scheduled to have partial thyroidectomy next month in addition my parathyroid gland on the left side of my thyroid will also be removed. I have recently (7 months ago) had a liver transplant after liver cancer diagnosis . I am freaking out but I know that I have to conquer this just as I conquered my transplant. I am doing great on the liver transplant aspect and I am praying for a similar outcome after the PT. It helps me to read about others experiences so I can help mentally prepare myself for what is going to happen to me. Anybody out there have similar experiences and how are you feeling and coping now? How does the body function without any parathyroid glands? And how do all the medications make you feel. Thank you

Hi Bob ! I am Annebee from Norway. I had my right thyoroid removed 18 may-21 and beacause of canser they removed my left in aug.18 -21.They found small traces of canser in the left too.Nothing in my lymps. I been very lucky and had no pain or sore.Started with 100 mg Levaxin and will have my first control 1 okt. then radioactiv iodine 10 nov.So i wonder why they wait with yous ? Hope you get better soon and i hope to hear what happens next.I know so little about the iodine treatment.

Hello @botts and welcome to Mayo Clinic Connect and this discussion.

Members like @daroca and @maureenelizabeth both were also diagnosed with Papillary Thyroid Cancer and are part of this discussion. I am hoping they may be able to help you with your question on soreness.

In the meantime, what is the dose of Levothroxine you are on?

I’m Bob, with Papillary Thyroid Cancer and Thyroidectomy Surgery May 17, 2021. We have taken a Wait and Watch approach and not done Radioactive Iodine.
Still a little sore hard to swallow. Will this ultimately go away?

Working on gettin the proper dose of Levothroxine.

Thanks.

It surely is confusing. It's a good question to ask your oncologist. A primary cancer may be treated differently that a secondary cancer (cancer that spread).

Hi Colleen, this all gets very confusing to me. I believe the lymphoma is a cancer all on its own, just as the prostate cancer was.

Oh, I understand now. The cancer behind his nasal area is actually metastatic thyroid cancer. Do I have that right? Is the lymphoma a second cancer diagnosis or also metastatic thyroid cancer?

Thank you for your response. I will also join the blood cancer group. He is getting R-Chop chemo treatments. They will end in Oct. then they will have to operate to remove the remaining thyroid tissue. I believe they call it metastatic because of his other two cancers. We were at Mayo this week and new CT and PET scans show the tumor behind his nasal area has shrunk. It also appears the cancerous thyroid tissue has shrunk a little. We will the surgeon about that when we return to Mayo on another trip.