Thyroid and Synthroid

Posted by annedodrill44 @annedodrill44, Nov 24, 2018

After much testing for numerous possible ailments — all with “normal” results, I am wondering if anyone who is taking Synthroid as I am, is experiencing nausea and nervousness? I’ve been on this med for almost 20 years and it’s closely monitored. But I’m wondering if this med could be causing my discomfort?

Hello. I have been on thyroid meds for 10 plus years. Have not experienced any nervousness or problems.

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Are you in the name brand ,I've been on it going in 8 years now

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@jo2010

Been on 137mcg Levothyroxine @ 25 years. Only real problem was when PCP decided to suddenly drop dosage two increments, to 112mcg. Fingers were cold, depression escalated. Anxiety, nervousness escalated so that I lost my job!
Had it put back to 137mcg, with the suggestion that there be a step-up of 125mcg for a month, which was ignored. I seem OK now, after month back on 137mcg.

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I had the same issue until they wrote me for name brand witch is a huge difference been on now for 8 years ,they have to adjust ,just don't let them take u off ever,I also had problems with off brand my hair falling out in clumps not so much now I'm on 88 mg got up from 75 mg 3 months ago

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@johnhans

I had nervousness from it. It turned out that testing showed I no longer needed it. Have your thyroid levels been tested recently? I did not have nausea.

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Please make sure u have it check reg ur not ever suppose to get off this meds as it control ur whole body ,I'm on it 8 years now stable and normal range as my daughter they took my daughter off of it dew to normal limits and withing a month in the hospital her thyroid level dropped and sad to say lost her baby 5 months pregnant as her body didn't function properly, u thyroid control ur whole body.

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I should mention that I've been required aby different insurances to have my thyroid checked every 3, 6, or 12 months. Most often is appropriate while dose is being adjusted. Be sure they do all the tests – T3, T4, and TSH, I think they're called.
Even after I specified this it was not done until I double-checked. It costs more so verify the results for yourself!

Liked by karolyn

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@jo2010

I should mention that I've been required aby different insurances to have my thyroid checked every 3, 6, or 12 months. Most often is appropriate while dose is being adjusted. Be sure they do all the tests – T3, T4, and TSH, I think they're called.
Even after I specified this it was not done until I double-checked. It costs more so verify the results for yourself!

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This is very true must have all 3 check most Dr Only check one u have to ask for the other 2 when being checked it makes a difference ,the one they check on me was normal even tho I kept telling them it's not ,I have all the symptoms and it runs in my family on both sides so for w years nothing till I got real sick and they checked all 3 and I was right all along been on meds I years now and doing good a few gourders from not catching it in time but hopefully they have shrank

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PS I also wonder about drug interactions or too-high dosage?

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@jo2010

PS I also wonder about drug interactions or too-high dosage?

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I only had one witch was with my bone 12 shot not sure why as I've been on b 12 for years until the syndriod

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@karolyn

Please make sure u have it check reg ur not ever suppose to get off this meds as it control ur whole body ,I'm on it 8 years now stable and normal range as my daughter they took my daughter off of it dew to normal limits and withing a month in the hospital her thyroid level dropped and sad to say lost her baby 5 months pregnant as her body didn't function properly, u thyroid control ur whole body.

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I am so sorry to hear that this happened to your daughter. I recently attended a presentation by a chiropractor who asked the audience what organ controls the whole body. He was fishing for "the brain" but I almost shouted out, "the thyroid!" Ha ha

Liked by karolyn

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@jo2010

I am so sorry to hear that this happened to your daughter. I recently attended a presentation by a chiropractor who asked the audience what organ controls the whole body. He was fishing for "the brain" but I almost shouted out, "the thyroid!" Ha ha

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Thank u so much and ur very true,I'm not a dr but I do know alot about the thyroid

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@annedodrill44

Thank you both for responding. Yes, I am on brand name Synthroid, and my pharmacist and my doctors at Mayo are aware of all my medications. I have my annual physical at Mayo in a couple months and will discuss my symptoms again at that time. Looking for something to blame them on! Nausea and nervousness are so nebulous. Most doctors say general anxiety disorder — could be!

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Synthroid and Levothyroid are the most over prescribed medicine in the word. Our thyroid glands are to important to be messed with. YES they can cause the symptoms you have and countless others.

Liked by karolyn

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@annedodrill44 It really is such a great place to hear other people's experiences. It can be reassuring, and it can also give us food for thought about something we might want to discuss with our own doctor.
@retiredteacher Does your doctor not prescribe TSH tests yearly? I know I requested the last one myself but when I had an endo I was having them yearly. I have gone back to the endo I used to go to. He moved about an hour away, but it's worth it, and it's not like I have to go often.
JK

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@contentandwell

@annedodrill44 It really is such a great place to hear other people's experiences. It can be reassuring, and it can also give us food for thought about something we might want to discuss with our own doctor.
@retiredteacher Does your doctor not prescribe TSH tests yearly? I know I requested the last one myself but when I had an endo I was having them yearly. I have gone back to the endo I used to go to. He moved about an hour away, but it's worth it, and it's not like I have to go often.
JK

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@contentandwell I have blood profiles done by my PCP twice a year. I assume the TSH is part of that. She never goes over my results. I am just not a sickly person. I see my Endocrinologist twice a year, and he does a blood profile. One time my PCP lowered the dosage of Synthroid. She's never mentioned it since. She sent the results and all were "normal." My endo also reports via the Portal on my computer that all results were "normal." If there is a problem, the endo will report on my computer Health Portal. My PCP sends a printout. I don't know all the medical terms and jargon because I've rarely been sick. The big bang came with Diabetes. Unless one of the doctors says something, I assume my thyroid is "normal.
Carol

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@contentandwell

@annedodrill44 It really is such a great place to hear other people's experiences. It can be reassuring, and it can also give us food for thought about something we might want to discuss with our own doctor.
@retiredteacher Does your doctor not prescribe TSH tests yearly? I know I requested the last one myself but when I had an endo I was having them yearly. I have gone back to the endo I used to go to. He moved about an hour away, but it's worth it, and it's not like I have to go often.
JK

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Yes JK, I’m tested 3 times per year for thyroid function. Falls the “normal” range. But I’m going to ask if I can bump down a bit on Synthroid regardless and get good results. See if that helps with the bouts of nervousness/nausea. If not, I’ll be more inclined to think I truly do have an anxiety disorder. Doctors are too willing to label women anxious and write us off. Mayo ran a battery of tests. I’d never doubt their diagnosis but I’m only there once a year for a physical. Maybe thyroid hormone can ebb and flow in between and cause symptoms or the Synthroid itself can?

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@retiredteacher

@annedodrill44 I am so glad you shared your thyroid/Synthroid with all of us. I know I am going to have some questions for my endo at next visit. Maybe I need a change or adjustment. I've been taking it so long; maybe I need him to check.
Thanks,
@retiredteacher, Carol
Volunteer Mentor

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@retiredteacher I've been on thyroid hormones most of my life: I'm now 80 years old, and recall clearly being on it in my 20s and possibly earlier. But years ago I changed from synthetic hormones (Synthroid, Levothyroxine, etc) to Nature-Throid, derived from natural desiccated porcine thyroid. The manufacturer, RLC Labs, has been producing all natural thyroid treatments since the 1930s. Most doctors don't know what I'm talking about, as they've been educated only about the synthetic products. They try to get me to go on the synthetic stuff, but I'm polite and firm in refusing. Do our research!

Liked by karolyn

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