throat lymphedema
Is anyone else dealing with throat lymphedema after throat-cancer treatment? My lymphedema is with aspiration that has caused me to get hospitalized for pneumonia now creating the need for a permeant 'feeding-tube'.
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Hello @amadewell and welcome to Connect. That seems to be a more rare problem as I see few posts involving lymphedema of the throat, despite our neck dissections that remove many if not all lymph nodes. I have not suffered from this issue, but perhaps someone who has will chime in. From what I read massage and exercise can help with limb edema. Has your doctor suggested any physical or swallowing therapy that could help? I know many patients with throat issues benefit from working with a swallowing therapist. My father lived his final years with a permanent g-tube due to oral cancer. He missed the taste of food but kept his weight up with the liquid supplements and this was over 30 years ago so things have improved. Certainly repeated bouts of aspiration pneumonia would be dangerous, and sometimes it is the lesser of two evils in learning to survive this cancer battle. Perhaps I can tag @roblem for experience with lymphedema.