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This is crazy
Had my appointment today. The doctor although he seems compassionate he doesn't seem to remember what was said from one visit to the next. He also threats you like a criminal.
I asked for a skin biopsy and his response was I don't even know where to send you for that!
He keeps on saying opioids are not a preferred treatment for neuropathy and when I bring up every article I read list them as a treatment he tell me not in the medical books he has. Said I don't know what your reading. I asked then why has it made my life tolerable for the last 12 years he had no response. I said why have I bin given it for 12 years again no answer. Keeps on saying gabapentin I'm on the maximum dose already and it doesn't seem to help much not even close to the opioids. Frankly I feel little to no difference on or off them. I have heat disease, lung disease, liver disease, skin disease now he wants to ruin my kidneys with gabapentin. The other side effects with gabapentin are not pleasant either. My memory is already shakey how long before its ruined with that drug.
All these doctors are making me sicker. The hydroxyurea I was on that gave me the pain was misdiagnosed in the first place. This is crazy .
Thanks again for all the info and support I bin given!
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@da20pilot Chuck that doctor!! He sounds totally incompetent. Go to a website like http://www.vitals.com and write what you're experiencing in the review under his name. People should be warned about him.
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3 Reactions@da20pilot Your doctor is not the one for you. Please try another. Although it may be hard to find the right doc, they are out there. So sorry for such a rotten experience. Lori Renee
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2 ReactionsYes Tom, it is indeed crazy and you're validated in thinking that. I assume you saw a Neurologist today? My experience is that you are barking up the wrong tree thinking a neuro will prescribe an opioid. Maybe a PCP if you establish a relationship with them. Truth is this really sucks! However, you can not allow it to defeat you. First off...if your Dr is not familiar with a skin biopsy then they either need to commit to figuring it out for you asap or find a better qualified provider fir you. Stay persistent and hold them accountable, as tiring as that may be. I always felt confused about all this...we are the sick ones, the ones who are disabled and need help, yet we are the only ones who need to work hard in advocating for ourselves (hopefully with a little help from friends, family and Connect). I'm humored that I lost my job due to disability yet continue to work (without pay) for my health. Full time job! Keep fighting. 💪🏼
Be well this evening.
Rachel
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1 ReactionNo I saw a pain doc. I had a great relationship with my pcp for 12 years . He then left his own practice and started working for a hospital. The guy he hired to replace him doesn't prescribe opioids. So they sent me to a pain doc and after a nerve test came back negative he started taking me off my meds. I went 3 a second one the one I saw today and hes all over the place. Thanks for sharing much appreciated
Thanks going to do just that.
Thanks I'll use the link