This and That and Talk - My Transplant

Posted by Rosemary, Volunteer Mentor @rosemarya, Apr 9, 2017

As our Mayo Connect community grows, I am constantly meeting organ transplant members on a wide variety of forums with a wide range of issues that are not directly transplant specific. However, because we are all transplant recipients, we have a special connection: a unique journey and best of all - a new life! We don't always need help or advice. Many times we just want to chat with someone like us! That is my purpose in starting This and That and Talk.

Drop in and say 'Hi'. You are welcome anytime.

What do you want t to talk about? What words can you offer to someone who is on the journey? Do you have any questions for another recipient?

Interested in more discussions like this? Go to the Transplants Support Group.

@jeanne5009

@rosemarya
Guess I'm ahead of the game...I detest leftovers. If it's not fresh made even by me..I don't eat it
One good thing about being a picky eater as a child. When in doubt..throw it out

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@jeanne5009 I love leftovers -- a night off from cooking! If I am cooking anything that can be reheated I always cook enough for two nights.
JK

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@rosemarya

Here is the resource that was given to me in my post transplant information. It is a brochure put out by the US Department of Agriculture called: "Food Safety for Transplant Recipients: A need-to-know guide for bone marrow and solid organ transplant recipients."

You can find it at https://www.fsis.usda.gov/shared/PDF/Food_Safety_for_Transplant_Recipients.pdf

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@rosemarya This is excellent. I think I will print it out when I have more time.
I think the trick of soaking berries in water with white vinegar is a good one for us too. The berries keep longer because the vinegar kills off any spores but even when the berries are fresh that should be a help I think. After thoroughly rinsing there is no vinegar taste.
JK

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@rosemarya
Guess I'm ahead of the game...I detest leftovers. If it's not fresh made even by me..I don't eat it
One good thing about being a picky eater as a child. When in doubt..throw it out

REPLY

Here is the resource that was given to me in my post transplant information. It is a brochure put out by the US Department of Agriculture called: "Food Safety for Transplant Recipients: A need-to-know guide for bone marrow and solid organ transplant recipients."

You can find it at https://www.fsis.usda.gov/shared/PDF/Food_Safety_for_Transplant_Recipients.pdf

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@contentandwell

@cmael @rosemarya is two days a limit that Mayo suggests? I don’t recall that being mentioned at MGH. I know I have gone three days.
JK

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@contentandwell if I remember correctly they said no longer than 3.

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@cmael

Just sharing something I found when I got home from Rochester after my transplant. My oldest daughter, not the donor, had made a few of these and posted them in the kitchen and bathroom. My husband has memory problems and this helped both of us. I think

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@cmael what a fantastic idea! I am tempted to put up a few in our house. Lol My husband tends to get a little lazy sometimes since his transplant. Sigh

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@cmael

Just sharing something I found when I got home from Rochester after my transplant. My oldest daughter, not the donor, had made a few of these and posted them in the kitchen and bathroom. My husband has memory problems and this helped both of us. I think

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@cmael @rosemarya is two days a limit that Mayo suggests? I don’t recall that being mentioned at MGH. I know I have gone three days.
JK

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@cmael

Just sharing something I found when I got home from Rochester after my transplant. My oldest daughter, not the donor, had made a few of these and posted them in the kitchen and bathroom. My husband has memory problems and this helped both of us. I think

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That is a fantastic idea! Your daughter is very clever.
Thanks for sharing:-)

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Just sharing something I found when I got home from Rochester after my transplant. My oldest daughter, not the donor, had made a few of these and posted them in the kitchen and bathroom. My husband has memory problems and this helped both of us. I think

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@rosemarya

It was scary, and something we don't ever want to repeat. It has made me extra aware of listening to my body for any signs that are just not normal. I don't take any chances with my health, and I am fortunate to have a husband who supports me on that. We learned how quickly unexpected things can happen for us.

There was a real neat side of all of this.
-The ER staff remembered me from when they had sent me off to UK the previous year.
- I had the same EMT in the ambulance as I had the previous year when transported to ICU.
-When I was a patient in Mayo Methodist on 10-2, I was cared for by some of the same nurses that had cared for me pre transplant and post transplant. We had the opportunity of catch up: who got married, had a baby, etc.
-I had one beautiful afternoon to enjoy the rocking chairs at GOL.

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@rosemarya We have all learned to not take things for granted I think. I tend to sort of brush things off but I am working on that. It was my husband who called MGH when I had a fever, which turned out to be Legionnaire's, and he also pushed me to go to the doctor for my leg this week, which if I didn't mention it before is fine. I was about to call on that one because if it was a clot I was afraid that exercise could dislodge it and it could cause serious problems. I am so thankful that it was not.
I was in MGH two or three times prior to transplant, and then once after. The first two times I was not in the transplant unit, the last time I was and it was like a reunion. The nurses there were incredible.
JK

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