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Mentor

This and That and Talk - My Transplant

Posted by Rosemary, Volunteer Mentor @rosemarya, Apr 9, 2017

As our Mayo Connect community grows, I am constantly meeting organ transplant members on a wide variety of forums with a wide range of issues that are not directly transplant specific. However, because we are all transplant recipients, we have a special connection: a unique journey and best of all - a new life! We don't always need help or advice. Many times we just want to chat with someone like us! That is my purpose in starting This and That and Talk.

Drop in and say 'Hi'. You are welcome anytime.

What do you want t to talk about? What words can you offer to someone who is on the journey? Do you have any questions for another recipient?

Interested in more discussions like this? Go to the Transplants Support Group.

JK | @contentandwell | Dec 28, 2018
In reply to @contentandwell "@rosemarya Your church is lucky to have such talent to play their music. At my church..." + (show)
@contentandwell

@rosemarya Your church is lucky to have such talent to play their music. At my church there is an organist and a soloist. I realize, they take what they can get but I generally cringe when any of the soloists sing. I wish the music was a bit better, but I guess there is a lack of volunteer talent up here.
JK

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@rosemarya I have to update my comments about the music in my church. I went to the midnight mass on Christmas and the music was lovely. There was a very good choir. I guess the Masses I generally attend just do not get the choir. It was so nice, and the church was surprisingly only about half-full. I had anticipated a much larger attendance at that Mass. I really enjoyed it despite almost falling asleep at one part of the liturgy.
JK

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1 reply
jeanne5009 | @jeanne5009 | Dec 27, 2018
In reply to @rosemarya "Ginger, I hope you and your husband will have an opportunity to relax and enjoy some..." + (show)
@rosemarya

Ginger, I hope you and your husband will have an opportunity to relax and enjoy some time together. Have a safe trip:-)

Thanks for your kind words. I have to tell you the whole truth: I have found that by playing music at church, I always have a 'safe' reserved seat that is away from the crowd/germs. It is also a way for me to give back to those wonderful people who prayed and supported me and my husband when I was so very ill before my transplant.

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@rosemarya

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1 reply
JK | @contentandwell | Dec 23, 2018
In reply to @rosemarya "Ginger, I hope you and your husband will have an opportunity to relax and enjoy some..." + (show)
@rosemarya

Ginger, I hope you and your husband will have an opportunity to relax and enjoy some time together. Have a safe trip:-)

Thanks for your kind words. I have to tell you the whole truth: I have found that by playing music at church, I always have a 'safe' reserved seat that is away from the crowd/germs. It is also a way for me to give back to those wonderful people who prayed and supported me and my husband when I was so very ill before my transplant.

Jump to this post

@rosemarya Your church is lucky to have such talent to play their music. At my church there is an organist and a soloist. I realize, they take what they can get but I generally cringe when any of the soloists sing. I wish the music was a bit better, but I guess there is a lack of volunteer talent up here.
JK

REPLY
1 reply
Mentor
Ginger, Volunteer Mentor | @gingerw | Dec 23, 2018
In reply to @rosemarya "Ginger, I hope you and your husband will have an opportunity to relax and enjoy some..." + (show)
@rosemarya

Ginger, I hope you and your husband will have an opportunity to relax and enjoy some time together. Have a safe trip:-)

Thanks for your kind words. I have to tell you the whole truth: I have found that by playing music at church, I always have a 'safe' reserved seat that is away from the crowd/germs. It is also a way for me to give back to those wonderful people who prayed and supported me and my husband when I was so very ill before my transplant.

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@rosemarya You made me laugh! A childhood friend of mine was blessed with a naturally high soprano voice. [we sang duets thru Jr and Sr high school] She often told me the same thing, as she sang for services, weddings and funerals. What a wonderful gift to your fellow church members.
Ginger

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Mentor
Rosemary, Volunteer Mentor | @rosemarya | Dec 23, 2018
In reply to @gingerw "@rosemarya That sounds like a fine plan! The granddaughter may be quite the center of attention,..." + (show)
@gingerw

@rosemarya That sounds like a fine plan! The granddaughter may be quite the center of attention, I bet! How wonderful to use your musical talent and play hymns for others.
@contentandwell Be careful in the stores! We stopped yesterday to top off fresh things, and boy howdy it sure was packed. We are going out of town for a few days, so no need to get many supplies in.
Ginger

Jump to this post

Ginger, I hope you and your husband will have an opportunity to relax and enjoy some time together. Have a safe trip:-)

Thanks for your kind words. I have to tell you the whole truth: I have found that by playing music at church, I always have a 'safe' reserved seat that is away from the crowd/germs. It is also a way for me to give back to those wonderful people who prayed and supported me and my husband when I was so very ill before my transplant.

REPLY
4 replies
Mentor
Ginger, Volunteer Mentor | @gingerw | Dec 23, 2018
In reply to @rosemarya "I made a run to the grocery this morning after church. WooHoo! I don't have to..." + (show)
@rosemarya

I made a run to the grocery this morning after church. WooHoo! I don't have to go there tomorrow:-) (I hope)
My husband and I will have a quiet and relaxing Christmas. We will attend Christmas Eve service together at his church, and Christmas morning at my church. I have picked my violin back up since transplant, and I will be playing some hymns. That has long been our tradition, even when the boys were young. My brother-in-law will join us for Dinner on Christmas and our boys will be here on Saturday. There will be 6 adults and 5yr old granddaughter who is celebrating her birthday.

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@rosemarya That sounds like a fine plan! The granddaughter may be quite the center of attention, I bet! How wonderful to use your musical talent and play hymns for others.
@contentandwell Be careful in the stores! We stopped yesterday to top off fresh things, and boy howdy it sure was packed. We are going out of town for a few days, so no need to get many supplies in.
Ginger

REPLY
1 reply
JK | @contentandwell | Dec 23, 2018
In reply to @rosemarya "I made a run to the grocery this morning after church. WooHoo! I don't have to..." + (show)
@rosemarya

I made a run to the grocery this morning after church. WooHoo! I don't have to go there tomorrow:-) (I hope)
My husband and I will have a quiet and relaxing Christmas. We will attend Christmas Eve service together at his church, and Christmas morning at my church. I have picked my violin back up since transplant, and I will be playing some hymns. That has long been our tradition, even when the boys were young. My brother-in-law will join us for Dinner on Christmas and our boys will be here on Saturday. There will be 6 adults and 5yr old granddaughter who is celebrating her birthday.

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@rosemarya sounds like nice times, and being spread out gives you breathing time. I hope to get to midnight mass on Christmas Eve but it will depend on how tired I am. I go alone. My son is not a church-goer but when he lived here he would go with me.
I went to the supermarket today but I still have to go tomorrow, and will have to go on Wednesday too, to get some things very fresh like bread or rolls. I used to make those things but now I do not.
JK

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Mentor
Rosemary, Volunteer Mentor | @rosemarya | Dec 23, 2018

I made a run to the grocery this morning after church. WooHoo! I don't have to go there tomorrow:-) (I hope)
My husband and I will have a quiet and relaxing Christmas. We will attend Christmas Eve service together at his church, and Christmas morning at my church. I have picked my violin back up since transplant, and I will be playing some hymns. That has long been our tradition, even when the boys were young. My brother-in-law will join us for Dinner on Christmas and our boys will be here on Saturday. There will be 6 adults and 5yr old granddaughter who is celebrating her birthday.

REPLY
2 replies
JK | @contentandwell | Dec 22, 2018
In reply to @rosemarya "To JK, and all recipients - Remember that it IS okay to say, "No" and to..." + (show)
@rosemarya

To JK, and all recipients -
Remember that it IS okay to say, "No" and to step away from the hustle and bustle when it begins to be too much. Go ahead and squeeze in a short nap when you need one!
I made my final (I hope) shopping stop today! I am already dreading the final grocery run on Monday morning.

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@rosemarya Yep, as I mentioned to @retiredteacher, I did step away and go the gym. That really helped.

I'm with you, I hope I can remember everything I need to get in the store on Monday. We always go to a friend's home on Christmas Eve and I will be bringing something there, we are going for a casual meal to my sister's on Christmas, and again I will be bringing some things along, and I really do not want to have to do much shopping on Wednesday morning for our own Christmas celebration with dinner for 10.
It sounds like you are staying at home Rosemary. Are your children joining you? If so how large a group will you be having?
JK

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Mentor
Rosemary, Volunteer Mentor | @rosemarya | Dec 22, 2018
In reply to @contentandwell "@cmael I often use the word surreal when speaking of my transplant, the whole thing is..." + (show)
@contentandwell

@cmael I often use the word surreal when speaking of my transplant, the whole thing is so extraordinary.

Get well to all of you fighting colds! I had one this year that lasted and lasted. I think as Rosemary commented, it does take longer to fight it off when you are on immunosuppressants. That, of course, makes perfect sense. Right now I am healthy though, so thankful for that. The coming week is going to be very busy and social so I hope I manage to not catch anything then.
Stay well!
JK

Jump to this post

To JK, and all recipients -
Remember that it IS okay to say, "No" and to step away from the hustle and bustle when it begins to be too much. Go ahead and squeeze in a short nap when you need one!
I made my final (I hope) shopping stop today! I am already dreading the final grocery run on Monday morning.

REPLY
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