This and That and Talk - My Transplant

Posted by Rosemary, Volunteer Mentor @rosemarya, Apr 9, 2017

As our Mayo Connect community grows, I am constantly meeting organ transplant members on a wide variety of forums with a wide range of issues that are not directly transplant specific. However, because we are all transplant recipients, we have a special connection: a unique journey and best of all - a new life! We don't always need help or advice. Many times we just want to chat with someone like us! That is my purpose in starting This and That and Talk.

Drop in and say 'Hi'. You are welcome anytime.

What do you want t to talk about? What words can you offer to someone who is on the journey? Do you have any questions for another recipient?

Interested in more discussions like this? Go to the Transplants Support Group.

@threerrr3

Thank you so much 😊 glad you are doing good and everything worked out .. I was also wondering when did you go back to work ? I really have no idea how long realistically I’ll be off ? I work a physical job and have to be able to lift 60 lbs
So just wondering if anyone can say like 4 or 6 months ? Thanks again for the reply ❤️

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@threerrr3 congratulations on your upcoming transplant! When my husband's had his liver transplant last July he was on lifting restrictions for 4 months. He is still careful now with lifting if he is turning with the weight.
Best of luck and blessings,
JoDee

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@des46893

You will need some sort of pill organizer for the medications they will put you on

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I already use that cause I am on all them meds for 20 years already that is what got my kidneys .. so try and take care of then they are are precious! ❤️

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@des46893

I had my transplant mid April and did not get back into my job which is also physically demanding until October. 5 1/2 months. One of the worst things you can do is go back early and at full throttle. I ran into several people in the waiting areas of Mayo that felt great and went back to a full schedule and paid the price. Keep in mind that every individuals circumstances are different. Good luck

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Thank you that is kind what I thought .. being that it’s my second transplant and I’m only 53 I was kinda thinking 6 months at most .. but I also work a swing shift of 12 hour shifts that rotate day and night ... so yea I know it will fake time to get my body and mind back into shape for that !! Thank you so much 😊❤️

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@threerrr3

Hi everyone I had explained before about having a liver transplant 20 years ago . It will be 21 year March 8 and on this years anniversary I will be getting a kidney transplant... my sister is donating and we are all set to go on March 8 .. but I was wondering since it’s been awhile since my last transplant there .. is there anything I would need to bring from home and stuff not to forget ? I’m getting kinda nervous cause I haven’t really heard anything from my coordinator and time is coming so fast .. so any recommendations .. we have an apartment rented and all is set for that but wondering what to even bring to the hospital that I would need ? Slippers and thing ? Thanks just need a little help and assurance

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You will need some sort of pill organizer for the medications they will put you on

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@threerrr3

Thank you so much 😊 glad you are doing good and everything worked out .. I was also wondering when did you go back to work ? I really have no idea how long realistically I’ll be off ? I work a physical job and have to be able to lift 60 lbs
So just wondering if anyone can say like 4 or 6 months ? Thanks again for the reply ❤️

Jump to this post

I had my transplant mid April and did not get back into my job which is also physically demanding until October. 5 1/2 months. One of the worst things you can do is go back early and at full throttle. I ran into several people in the waiting areas of Mayo that felt great and went back to a full schedule and paid the price. Keep in mind that every individuals circumstances are different. Good luck

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@threerrr3

Hi everyone I had explained before about having a liver transplant 20 years ago . It will be 21 year March 8 and on this years anniversary I will be getting a kidney transplant... my sister is donating and we are all set to go on March 8 .. but I was wondering since it’s been awhile since my last transplant there .. is there anything I would need to bring from home and stuff not to forget ? I’m getting kinda nervous cause I haven’t really heard anything from my coordinator and time is coming so fast .. so any recommendations .. we have an apartment rented and all is set for that but wondering what to even bring to the hospital that I would need ? Slippers and thing ? Thanks just need a little help and assurance

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Don’t forget your passwords to all your online accounts and a second list to give to your caretaker

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@danab

@threerrr3 the other item is a cell phone charger. With a long cord usually the outlets are a ways from the bed. Unless your lucky and get a bed with an outlet on the bed. Also sometimes the iv pole has an outlet. If you don't have a long cord you can get a usb extension cord also.

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Thank you forgot about a cord altogether..so I do have a long one too ! Thank you ! ❤️

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@contentandwell

@threerrr3 I found it nice to have a lightweight fleece jacket to wear in bed. I always find hospital rooms cold. I used that instead of a bathrobe also when walking around the halls.
I prefer real slippers to the non-slip socks the hospitals all give to patients, but don't bring expensive ones. I had some taken off my feet and apparently stolen when I was having an endoscopy! They were brand new Uggs too, so fairly expensive.
They do give you soaps and shampoos but generally not conditioner if you use that in your hair. Also, if you do use a body cream and want a better one than they have, bring your own. Some hospitals insist on non-scented. I did not bother with any makeup of course but I do like a facial moisturizer.
The only other thing I can think of right now is some form of lip balm. My lips were incredibly dry in the hospital. They did give me one when I mentioned it and what they gave me was fine, but I don't know if that's something all hospitals have on hand.
It's nice to have some hand wipes too.
JK

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Good advice thank you I will put that on my list ! ❤️

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@cmael

@threerrr3 I had my kidney transplant 10 mos ago with my daughter as donor. The only thing I used at the hospital from home was my phone and a bag with toiletries. We rented a home for me, my daughter and the family that were caretaking. I brought comfortable pj’s and loose pants. You’ll have a support to wear for your abdomen. It took me about 7 weeks for the abdominal pain to leave when I was on my feet, walking etc. I didn’t wear the support for that long, though. Feel free to call your coordinator anytime with questions. My daughter and I did. Wishing you a good recovery. 🙏🏻

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Thank you so much 😊 glad you are doing good and everything worked out .. I was also wondering when did you go back to work ? I really have no idea how long realistically I’ll be off ? I work a physical job and have to be able to lift 60 lbs
So just wondering if anyone can say like 4 or 6 months ? Thanks again for the reply ❤️

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@jolinda

Hi @threrrr
CONGRATULATIONS!!!! Everyone I have ever met who has gotten a kidney transplant feels so much better afterwards, me included, so this should be an awesome experience for you. Also congrats on have such an amazing sister. 🙂

I had my transplant at Mayo in Rochester and everything I needed while I was in the hospital was provided, even unattractive non-slip sock slippers. In my opinion you really don't need much as far as clothing while you are there. I kept all of my clothes in the small duffel bag I brought until I was ready to leave which was good because I certainly didn't want them coming home with hospital germs on them. I knew in advance that my incision was going to be on my lower right abdomen so based on that I brought a pair of comfy high waisted sweatpants to wear home (and by "home" I mean the ultra sterile Kidney Transplant House).

My only advice and I give it to everyone is whatever you (and your sister) do DON'T get constipated. Bowels have a tendency to sleep for several days after surgery so be very careful what you eat just before and after surgery. Your incisions will need time to mend without added strain. Walking a few times a day also helps.

My donors advice is that she wished she had gotten her incision side-to-side not up-and-down because it sometimes dents in slightly and she thinks if she had chosen sideways it wouldn't be visible at all.

Good luck. I'm so thrilled for you and your sister!

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Thank you so much I do remember that from my liver transplant .. and did lots of walking ..thank you again for the advice ❤️

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