This and That and Talk - My Transplant
As our Mayo Connect community grows, I am constantly meeting organ transplant members on a wide variety of forums with a wide range of issues that are not directly transplant specific. However, because we are all transplant recipients, we have a special connection: a unique journey and best of all - a new life! We don't always need help or advice. Many times we just want to chat with someone like us! That is my purpose in starting This and That and Talk.
Drop in and say 'Hi'. You are welcome anytime.
What do you want t to talk about? What words can you offer to someone who is on the journey? Do you have any questions for another recipient?
Interested in more discussions like this? Go to the Transplants Support Group.
@contentandwell thanks, I'll look into those websites. While I've never had a transplant, I have very fair-skin and look for good ways to protect it from sun. I also get rashes from the chlorine in the pool, I go to a very nice 24/7 health club that always looks very clean, so it must be the chlorinated water that gets to me. Have you found any help for that? Thanks, Teresa
@hopeful33250 Teresa, the site that was recommended by lcamino, Solumbra (http://www.sunprecautions.com/) has clothing like tops that can be worn when out in the sun for regular usage, like some nice, cool looking tops. I have some "rash guards" (not sure why they call them that) that are generally worn over your bathing suit for sun protection. As I mentioned those are available at Lands End, Speedo, Talbots and various other merchandisers. In my water class, inside of course this being New England, some of the women wear them because they find the pool to be a bit chilly. I figure once they are wet they can't help much but I may be wrong. I had one rash guard before that I occasionally wore but this year I will need to be even more careful so I bought two more.
JK
@contentandwell What sort of "water clothes" are you referring to? I'm sure you are referring to something other than a swim suit. Teresa
@lcamino Thanks, the clothes there are a bit pricey as you said, for sure. I have bought rash guards for sun protection SPF 50. I got one at Lands End and one at Speedo. I really like some of the tops on the Solumbra site though, I looked at "casual". The ones I have purchased are good for in the water too which is important to me.
JK
@lcamino, Thank you for sharing this information.
You are right, sun protective clothing can be very expensive. I look for the clearance sales and end of season items. I have a collection of long sleeved t-shirts that I like for casual and for hiking. Mine are breathable and moisture wicking, and actually comfortable.
After transplant, we have to take the antirejection medications to prevent organ rejection by reducing our immune system. That makes us susceptible to other things. You will learn that prevention and early detection, and perhaps treatment, are the best defense.
Rosemary
A comment bout sunscreen. I have not had a transplant yet but I'm trying to learn what to expect before and following. I've been noting the sunscreen lessons, especially since I'm fair skinned, burn easily and freckled. Interestingly, I just received in the mail a catalog I have not received in years. I highly recommend you go to http://www.Solumbra.com to find clothing that is 100+ SPF. The clothing is very expensive but when we are talking about our avoiding skin cancer maybe some things should go on our birthday and Christmas lists. If anything I would take a peek at their hats, most which pack flat, and rash guards and leggings to swim in so you can enjoy the water in safety. I can't emphasize enough that it is very expensive but I also think we are all worth the splurge, for our own safety.
@eileenheart Thanks for joining the conversation and giving us a first-hand review of the product! Teresa
Hi Rosemary,I also use Neutrogena (Ultra Sheer Dry Touch Sunscreen SPF 55. Also, my foundation has some light sunscreen. The sunscreen is really fast absorbing and doesn't run. I live in Florida so the fast absorbing is very important. I do wear short sleeves and a light long sleeve blouses as a cover and Capri pants or slacks. There are sun reflecting shirts/hats that you can buy at Sports Stores or I guess online. Skin cancer is a problem for all transplants so it is an important battle.
@rosemarya Up until now I have done a good job of avoiding sunscreens but I have in the past used some from neutrogena. I recently was in a Rite Aid and they had that brand in SPF 100 and the one meant for the fact in SPF 110! I would imagine if it is specifically for the face it would be less apt to cause eye-tearing.
JK
@hopeful33250, Thank you, Teresa, I will look into this one. I currently have several Neutrogena sun protection products, and I really like them. I will look into this particular one.
Once I asked one of our high school football coaches what product he used because he has a very fair complexion and red hair. It worked, but so gooey. My problem is that when I sweat it runs into my eyes and burns like crazy.
Rosemary