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Mentor

This and That and Talk - My Transplant

Posted by Rosemary, Volunteer Mentor @rosemarya, Apr 9, 2017

As our Mayo Connect community grows, I am constantly meeting organ transplant members on a wide variety of forums with a wide range of issues that are not directly transplant specific. However, because we are all transplant recipients, we have a special connection: a unique journey and best of all - a new life! We don't always need help or advice. Many times we just want to chat with someone like us! That is my purpose in starting This and That and Talk.

Drop in and say 'Hi'. You are welcome anytime.

What do you want t to talk about? What words can you offer to someone who is on the journey? Do you have any questions for another recipient?

Interested in more discussions like this? Go to the Transplants Support Group.

Mentor
Rosemary, Volunteer Mentor | @rosemarya | Jun 5, 2017
In reply to @2011panc "@Contentandwell, You are right about sunscreen. I have never had a problem with sunburn and grew..." + (show)
@2011panc

@Contentandwell, You are right about sunscreen. I have never had a problem with sunburn and grew up on a farm. I have also been advised to use a good sunscreen (SPF 15 or higher was recommended at the time, so you know how long ago that was!), but have never gotten into the habit. I use positioning more than sunscreen to protect myself. Since I have allergies I do not miss being outside much.

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@lcamino, It does get overwhelming with so many uncertainties ahead. Remember that you are not alone. You are blessed to have your family, medical team, and your faith. These are your strength.
Your current thinking, and questioning, and fears, and emotions are where mine were, too.
I sincerely hope that your visit goes well for you. We can talk more when you get home.
Rosemary

REPLY
IWantToBelieve | @IWantToBelieve | Jun 5, 2017
In reply to @2011panc "@Contentandwell, You are right about sunscreen. I have never had a problem with sunburn and grew..." + (show)
@2011panc

@Contentandwell, You are right about sunscreen. I have never had a problem with sunburn and grew up on a farm. I have also been advised to use a good sunscreen (SPF 15 or higher was recommended at the time, so you know how long ago that was!), but have never gotten into the habit. I use positioning more than sunscreen to protect myself. Since I have allergies I do not miss being outside much.

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@rosemarya - Believe me I know. I just wish I had gotten connected years ago, gotten in the study earlier and most likely I would not be needing a transplant for another 5-10 years. But, that is not the case and I'm so grateful that my husband is supportive and willing accepts the expense to travel monthly to the Mayo, have them do the transplant etc. It is more complicated (local hospital 10 minutes away has a transplant center but their results are not great and a nurse even told me to stay away) so I'm blessed that I'm able to be seen by Dr. Torres and the transplant team soon. Just a little emotional and nerve racking.

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Mentor
Rosemary, Volunteer Mentor | @rosemarya | Jun 5, 2017
In reply to @2011panc "@Contentandwell, You are right about sunscreen. I have never had a problem with sunburn and grew..." + (show)
@2011panc

@Contentandwell, You are right about sunscreen. I have never had a problem with sunburn and grew up on a farm. I have also been advised to use a good sunscreen (SPF 15 or higher was recommended at the time, so you know how long ago that was!), but have never gotten into the habit. I use positioning more than sunscreen to protect myself. Since I have allergies I do not miss being outside much.

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@lcamino, Lynn, you are in good hands. Rosemary

REPLY
IWantToBelieve | @IWantToBelieve | Jun 5, 2017
In reply to @2011panc "@Contentandwell, You are right about sunscreen. I have never had a problem with sunburn and grew..." + (show)
@2011panc

@Contentandwell, You are right about sunscreen. I have never had a problem with sunburn and grew up on a farm. I have also been advised to use a good sunscreen (SPF 15 or higher was recommended at the time, so you know how long ago that was!), but have never gotten into the habit. I use positioning more than sunscreen to protect myself. Since I have allergies I do not miss being outside much.

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@contentandwell - Well I'm just "glad" I'm in kidney failure and not liver failure but this whole conversation just makes me pause and be in awe with what our doctors know. There is so much that is unknown (probably always will be) but there is so much that is known. My grandfather died of PKD (kidney disease I have) at 51 because they did not know dye contrast imaging damages kidneys. My Dad lived to be 72, and hopefully I'll live longer although I'm needing a transplant 15 years earlier than my Dad so I'll just have to leave it in God's hands.

Off to Mayo tomorrow...

REPLY
Mentor
Rosemary, Volunteer Mentor | @rosemarya | Jun 5, 2017
In reply to @2011panc "@Contentandwell, You are right about sunscreen. I have never had a problem with sunburn and grew..." + (show)
@2011panc

@Contentandwell, You are right about sunscreen. I have never had a problem with sunburn and grew up on a farm. I have also been advised to use a good sunscreen (SPF 15 or higher was recommended at the time, so you know how long ago that was!), but have never gotten into the habit. I use positioning more than sunscreen to protect myself. Since I have allergies I do not miss being outside much.

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@hopeful33250 Thank you, Teresa. That's what friends are for! Rosemary

REPLY
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Jun 5, 2017
In reply to @2011panc "@Contentandwell, You are right about sunscreen. I have never had a problem with sunburn and grew..." + (show)
@2011panc

@Contentandwell, You are right about sunscreen. I have never had a problem with sunburn and grew up on a farm. I have also been advised to use a good sunscreen (SPF 15 or higher was recommended at the time, so you know how long ago that was!), but have never gotten into the habit. I use positioning more than sunscreen to protect myself. Since I have allergies I do not miss being outside much.

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@rosemarya I understand completely! Teresa

REPLY
Mentor
Rosemary, Volunteer Mentor | @rosemarya | Jun 5, 2017
In reply to @2011panc "@Contentandwell, You are right about sunscreen. I have never had a problem with sunburn and grew..." + (show)
@2011panc

@Contentandwell, You are right about sunscreen. I have never had a problem with sunburn and grew up on a farm. I have also been advised to use a good sunscreen (SPF 15 or higher was recommended at the time, so you know how long ago that was!), but have never gotten into the habit. I use positioning more than sunscreen to protect myself. Since I have allergies I do not miss being outside much.

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Teresa, I had to smile when I read your reply because I don't ever really 'want' to exercise! But I do enjoy seeing the benefits and I feel good afterwards. And, yes, it is nice to be able to go anytime, if I chose to do so. Rosemary

REPLY
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Jun 5, 2017
In reply to @2011panc "@Contentandwell, You are right about sunscreen. I have never had a problem with sunburn and grew..." + (show)
@2011panc

@Contentandwell, You are right about sunscreen. I have never had a problem with sunburn and grew up on a farm. I have also been advised to use a good sunscreen (SPF 15 or higher was recommended at the time, so you know how long ago that was!), but have never gotten into the habit. I use positioning more than sunscreen to protect myself. Since I have allergies I do not miss being outside much.

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@lcamino That is interesting. I didn't know about hidden milk and lactose in medications. Thanks for that info. Teresa

REPLY
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Jun 5, 2017
In reply to @2011panc "@Contentandwell, You are right about sunscreen. I have never had a problem with sunburn and grew..." + (show)
@2011panc

@Contentandwell, You are right about sunscreen. I have never had a problem with sunburn and grew up on a farm. I have also been advised to use a good sunscreen (SPF 15 or higher was recommended at the time, so you know how long ago that was!), but have never gotten into the habit. I use positioning more than sunscreen to protect myself. Since I have allergies I do not miss being outside much.

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@contentandwell Medicare does not cover health clubs, but my "brand" of Medigap (through AARP-United Health Care) has an incentive program that offers 1/2 off membership to select work out facilities in my area. It includes the "Y" and several others. Teresa

REPLY
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Jun 5, 2017
In reply to @2011panc "@Contentandwell, You are right about sunscreen. I have never had a problem with sunburn and grew..." + (show)
@2011panc

@Contentandwell, You are right about sunscreen. I have never had a problem with sunburn and grew up on a farm. I have also been advised to use a good sunscreen (SPF 15 or higher was recommended at the time, so you know how long ago that was!), but have never gotten into the habit. I use positioning more than sunscreen to protect myself. Since I have allergies I do not miss being outside much.

Jump to this post

Hi Rosemary: My club is 24/7 as well. Kind of neat to be able to exercise whenever you want. Teresa

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