The pain never stops after 7 years. Any advice?
Hello all. 30M.
It will be 7 years this October 18th I was hit by a car and received my TBI (frontal lobe according to my scans) and ever since that day, the pain… never… stops. EVER! I ended up getting a bleed in my brain and was taken to ER to get it drained, but I’m now in a constant scale of 4/10 pain unless if I do something, anything that’s not laying in bed or sleeping… my head will explode up to a 9/10 or 10/10 in an instant and I usually got to nap, though it’ll still last the majority of the day. All I can describe it is I get extremely bad nausea that 60% of the time I puke, dizziness, tiredness and the worst is the whole of my head feels like a weight is crushing it. Not many pulsing or spike nerves but more the whole of my head just badly hurts. This can spike from just watching a YouTube video, playing a game, talking to people for only a mere 2 minutes, being near cars; which I got to use noise cancelling headphones always because of noise sensitivity. It’s crazy. I can’t live like this. This isn’t living. I already failed my medical exam for the 5TH TIME and being unemployed just sucks. Seriously, I can’t even work from home, even if I passed my exam because of the pain. Relationships are hard. I feel like a burden. I’ve been to so many Nuero’s to count, even waiting on the list for the top Nuero specialist in Canada and… he said nothing can be done. Nothing helps. In fact, at this point, I’ve done so much that their usual response is they’ve done “everything they can.”
I just need some advice for anyone who’s in the same boat and what that’s helped for them. I can live with the memory loss and being slow on things but I can’t stand the pain. It’s ruining my life. Below I’m going to write on the top of my head, if I can even remember, what I’ve taken. And still, it never helps.
Topamax, Gabapentin, Pregbalin, Tizanidine, Quetiapine, Tylenol, Duloxetine, Amitriptyline (which I’m already on), normal ibuprofen, muscle relaxers, Botox, Nurtec, Eamgality, medical cannabis, lymph drainage, acupuncture, ketamine therapy, physiotherapy, occupational therapy, cognitive therapy, noise exposure therapy, Nuerofeedback, a sleepy study, my eyes checked, ears checked, neck checked… Lion’s Mane, magnesium, omega 3, ginger, curcumin, anti-flame diet, lots of water, great sleep, dimmed lights and bigger fonts, light cardio, special glasses, CT scans, MRI, SPECT… pressure point bands, everything. I’m probably missing a few medications but no doubt I’ve had it.
I’ve had so many scans but always shows I got frontal lobe damage and that’s about it. No tumours, clots or what not apparently. I was diagnosed with Hyperacusis too. Played around with all the meds and doses… and nothing. People suggested microdosing but does that really stop the pain? The pain is priority here. I’ve been so consistent with exposing myself to noises and doing activities at my own pace but it feels like nothing has ever changed 7 years ago. In fact, I only feel like I’m getting worse and the Nuero’s got no idea what else to do. They’re surprised I’m even still continuing to be here…
Please help. At this point I’ll try anything.
Interested in more discussions like this? Go to the Traumatic Brain Injury (TBI) Support Group.
I've been in constant pain since a stroke nearly seven years ago.
Not a minute passes that I don't have a headache, pain in my joints, muscles, eyes, you name it, it hurts.
Over time, it has moderated, but it's still pretty bad.
Now... what has helped.
Meditation, prayer, acupuncture, Emotional Freedom Technique (EFT/tapping), buckets of ibuprofen and acetaminophen, stretching, aromatherapy, and anything else I could think of.
I don't know how helpful that is for you, but I encourage you to explore alternatives. What have you got to lose?
Hang in there. I hope you'll find some relief soon. I know the hellish torment all too well.
I have an episode on pain on my YouTube channel:
https://m.youtube.com/watch?v=mou44nM1JGQ
https://www.ncbi.nlm.nih.gov/books/NBK562152/
Read about this treatment. It’s made such a difference for me when all the other things listed have not.