The Importance Of Sharing Experiences

Posted by survivor5280 @survivor5280, Aug 21 11:29am

I wanted to write about this because it was such a positive thing.

Today I met a friend, who is also a customer of mine, for coffee. We hadn't seen each other since before my surgery and I'm pretty private and didn't share anything more than 'some medical issues I'm having to address'.

Over coffee, we talked about what we had planned and discussed what a crazy year it's been for us both and he asked how my medical stuff went. I told him that it's still going for a few years as I get tests done. He asked "wow, so you have to keep doing tests huh?" and I told him it was PSA tests because I had prostate cancer.

He shared with me that he's currently going through a bit of a scare on that front, how he has had his PSA jump quite a bit over the past year and it's at 4.8 now, the same mine was when I started with biopsies and all of that.

He was really privately concerned about his prostate issues and after spending an hour talking about my experience and what I went through and how I'm doing now, he was greatly uplifted from what was becoming a bad funk for him every day, dreading the possible reason for his PSA jumps - and this was due to another friend of his having a VERY bad experience with PC (ED/incontinence/depression/etc) so his point of view was very tainted.

The moral of the story is that we've gone through something very scary to all men - including us when we first found out. I've written so many times how impossible it was for me to find positive experiences for me to talk to in order to offset the deep funk I was getting into over nothing but bad news. We don't have to be preachy about things, or some kind of martyr, but we can share our experiences with others and we might just help them overcome something we weren't even aware they were going through until we shared and suddenly hear "wow, I'm dealing with that right now too and am really scared".

Helping him made my month, maybe my year. I told him, I'm the poster boy, I'm the success story you may want or need if this proves to be PC and know that I'm here for you day or night to talk about my experience and knowledge on the topic and he got misty because I think that's the first good news he heard.

In this case, sharing really was caring.

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

I know it only took me 52 years to admit I had PTSD

REPLY
Profile picture for MaxC @cobratk

I know MCC has really helped me, it seams like if you do try and talk about PC everyone says it’s no big deal most men get it and they only have to monitor it and that you will die with prostate cancer not from it. But for me it was a really big deal that I didn’t want to be going through with. My wife has memory issues so I can’t really talk to her about anything and the kids all live in other states so there is really no one to talk honestly with about what you are feeling and having to deal with. I am relatively new at this now six weeks on Orgovyx and starting radiation next Wednesday for 28 treatments. I also suffer with PTSD from Vietnam which makes me not want to talk to anyone about anything. This form has allowed me to open up some and really just reading what others have experienced has helped me so much. It was here that I found out about asking for a Decipher test which my Doctor requested and it confirmed what my Gleason score of 8 said that my cancer was aggressive but at the same time my PMSA PET scan said that my cancer was small and still contained in just my prostate. I thing because you hear so much that prostate cancer is no a big deal it make us deciding to follow the Doctor's plan that much harder. We all want a quality of life and no matter what you do the treatment for PC is going to reduce your quality of life but at the same time it will also increase your life expectancy.

Jump to this post

@cobratk
You sound like me. If you read my spotlight I wrote almost the same thing.

MCC is great and I am an introvert also and also have PTSD anxiety/panic disorder which is under control with medications.

I think important Max is to do what you think is right for you. What is done by others was their decision and you need to make your own. Do research, listen to post, get second opinions and then decide what is best for you.

I have a wife that is a 1.5 diabetec with other serious healh issues and recent surgeries. Her personality is one that stressful things really bring her down so like you hard to talk to her .

What I did on my journey with this was I got two different opinions, did research, and then met with my PCP. We went over all and we came to a conclusion that what was best for me based on my medical and mental history.

REPLY

This group has been enormously helpful to me

REPLY
Please sign in or register to post a reply.